Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pancreatitis, Gall Bladder Sugery, Thyroid

TCA

By TCA
in Related Issues & Disorders

Recommended Posts

TCA Contributor
TCA
Posted

My aunt, who I suspect has celiac disease, is in the hospital and very ill. going to have her gall bladder out tomorrow. Has had pancreatitis for about a month now. She's suffered from thyroid issues for over 40 yrs. She had a duodenal ulcer that almost killed her about 30 years ago. She also has fybromyalgia and a host of other problems. she is such a strong person and I'm really concerned. She is opened to being tested, but her dr. doesn't think it's a possibility. I think she's a prime candidate. anyone here know of any papers I can point her to? Thanks for your help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Several of those conditions she has have been linked to Celiac disease. Just do a search in Google for "Celiac disease and thyroid, Celiac disease and ulcers, Celiac disease and fibromyalgia, " etc.

Steve

jesscarmel Enthusiast
jesscarmel
Posted
My aunt, who I suspect has celiac disease, is in the hospital and very ill. going to have her gall bladder out tomorrow. Has had pancreatitis for about a month now. She's suffered from thyroid issues for over 40 yrs. She had a duodenal ulcer that almost killed her about 30 years ago. She also has fybromyalgia and a host of other problems. she is such a strong person and I'm really concerned. She is opened to being tested, but her dr. doesn't think it's a possibility. I think she's a prime candidate. anyone here know of any papers I can point her to? Thanks for your help.

i dont know of any papers but i had pancreatitis in january and from that eventually got my celiac diagnoses. my gastro said its common for undiagnosed celiacs to get pancreatitis. it was the worst thing ever- i was sooo sick. lots of ppl who are celiac have had pancreatitis before. i hope she feels better. tell her to get tested regardless of what her dr thinks. i never thought i would have it in a million years and my gastro told me just to do the test.

- jess

edit- found this

Open Original Shared Link

Open Original Shared Link

Lauren M Explorer
Lauren M
Posted
i dont know of any papers but i had pancreatitis in january and from that eventually got my celiac diagnoses. my gastro said its common for undiagnosed celiacs to get pancreatitis. it was the worst thing ever- i was sooo sick. lots of ppl who are celiac have had pancreatitis before. i hope she feels better. tell her to get tested regardless of what her dr thinks. i never thought i would have it in a million years and my gastro told me just to do the test.

- jess

Oh my Gosh, Jess, your post could have been my own! That is EXACTLY how my diagnosis went! Pancreatitis is the most painful thing I have ever experienced! And as I was getting better (still undiagnosed w/Celiac, mind you), all I ate was graham crackers. I would eat a HALF of a single graham cracker and be sooo bloated and uncomfortable. This went on for awhile, so they eventually did a scope to check my pancreas, which was fine, but then found that my intestines were the issue. They took biopsies, and the rest is history.

Sorry for the life story, I've just never heard of someone who was diagnosed in the same way as I was!!!

- Lauren

georgie Enthusiast
georgie
Posted

That's amazing. I had a severe attack of something that seemed to be either Gall or Pancreatis 2 years ago. By the time I got to a Gastro ( 6 weeks ) I was better again. He didn't do any tests then - as I was OK and just said to come back if it happened again. It was one of the scariest and most painful things I have had go wrong. I would never have connected it with Celiac.

jesscarmel Enthusiast
jesscarmel
Posted
Oh my Gosh, Jess, your post could have been my own! That is EXACTLY how my diagnosis went! Pancreatitis is the most painful thing I have ever experienced! And as I was getting better (still undiagnosed w/Celiac, mind you), all I ate was graham crackers. I would eat a HALF of a single graham cracker and be sooo bloated and uncomfortable. This went on for awhile, so they eventually did a scope to check my pancreas, which was fine, but then found that my intestines were the issue. They took biopsies, and the rest is history.

Sorry for the life story, I've just never heard of someone who was diagnosed in the same way as I was!!!

- Lauren

hi lauren

that is so crazy. i was sooooooooo sick i thoughi would die from the pancreatitis. i also only ate crackers and pasta when i was trying to heal. my mom feels so bad she was feeding me "poison". i was only getting mildly better so i begged my dr to refer me to a gastro. when i got there he immediatly guessed celiac and that was it. since then my dad has also been diagnosed. its nice to know someone else has the same story :)

Jess

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,078
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.