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Please Consider The Diet!

Terch

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Terch Apprentice
Terch
Posted

Hi,

I just want to say that I have had an endoscopy that came up negative. My GI did not do any blood work for Celiac, and it's too late now for that since I have been gluten free for 9 weeks and I am never going to go back on it. I am still waiting for more medical results and do see my GI in two weeks again. He is testing me for Crohns now. I told him I was on this diet and he said to keep it up! I would recommend to anyone that has any digestive problems to go gluten dairy and soy free just to see if they improve some of their symptoms. I kept thinking the diet wasn't working because after 6 weeks I still didn't notive an improvement but I was told to keep hanging on and I did. Finally 2 weeks ago I noticed a good couple of hours. I said to my husband " I don't have any pain right now!" and I kept on the diet and soon I was having a couple of good days and now I am having a GOOD WEEK! Thanks to all who said to keep this up, I am still going to be tested by enterolab for curiosity sake. And no matter what the diagnosis even if it is Crohns I will know that this diet has helped.

Once again THANK YOU for this site, this advice and my hope is that all those that are suffering will find some resolution.

Thank you.

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jerseyangel Proficient
jerseyangel
Posted

Hi Terch, I'm so glad that you're feeling better! :D

happygirl Collaborator
happygirl
Posted

Terch,

whatever the "reason"---celiac, gluten intolerance, gluten sensitivity etc.---I am so happy to hear that you are feeling better because of diet changes. Good for you----it sure does feel better, doesn't it?

we are happy to have you here and happy that you are doing better. I hope it continues :)

Laura

par18 Apprentice
par18
Posted

Hi,

When I read a post like yours in which you are taking control of your health I am really encouraged about the future. I think it will be the "preventive medicine" approach that will ultimately make the biggest impact to getting more and more people to try the diet first. I applaud you for not being afraid to go forth without getting an "official" diagnosis. The idea of still getting a blood test is good in that it gives you a reference point in which to gauge your progress. Anyone who can improve the quality of their life without having to get really ill is a plus. Congratulations on what you are doing.

Tom

Nantzie Collaborator
Nantzie
Posted

I also had completely negative test results. If it wasn't for me finding this forum and doing the diet no matter the test results, I would have still been trapped in my house because of "bathroom problems". I also would have had a handicapped placard for my car and probably a Lark scooter of some sort by now.

Gluten is a horrible thing for those of us who react to it. It just overwhelms me how many people out there must be suffering and have no idea that the "cure" is SOOOOO close.

Nancy

daffadilly Apprentice
daffadilly
Posted

Congratulations on your better health and also for going on the diet without the need for "doctors orders". It is so refreshing to hear from people that have learned to think for themselves!!!!

Yes, the blood test might be a good idea, but be prepared for it to be negative. I would encourage you to go the Enterolab route & check the genes also.

wow, those people must be busy, two of my family members have a test in there at the moment and two friends, & I keep reading about all the new people that are testing there, even the new people at my support group are using them!! The word is out :D

Nantzie Collaborator
Nantzie
Posted
I would encourage you to go the Enterolab route & check the genes also.

wow, those people must be busy, two of my family members have a test in there at the moment and two friends, & I keep reading about all the new people that are testing there, even the new people at my support group are using them!! The word is out :D

That's true. Even a friend of mine, who moved away three years ago, told me that her sister did a stool test for celiac at her M.D.'s office and that it would be a few weeks before the tests came back. As far as I know, Enterolab is the only lab that even does a stool test. Celiac runs in her family too.

Nancy

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daffadilly Apprentice
daffadilly
Posted

yes, the doctors are now using them also, from what I hear, and some doctors are also reading these boards...

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  • Posts

    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By trents · Posted

      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
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