Should I Still Be Sick After 2 Years ?

[rlemmon]

Hi. I was (sort of) diagnosed with celiac two years ago. I delt with one doc for eleven months. By that time i was in some much pain and misery all i could think about was jumping off of a building. The second doc said he was 99% sure it was celiac. I stopped eating gluten that day.

Things slowly got better since then. I slowly began to fell better and regained my sanity. The thing is I still get sick 75 % of the time after I eat. Its not nearly as bad as it was before but it still hurts and I'm sick of it.

I have tried eating smaller portions and different things but it doesn't help. I can't begin to tell you how intrusive this is with day to day living. I am thinking that since it took a year to get diagnosed I may have done irreparable damage to my intestines. Any help would be greatly appreciated.

[AndreaB]

Have you tried the elimination diet?

Eliminate all foods except a few (rice, chicken, apple/pear and a veggie). After 3 weeks reintroduce one thing a week and make sure to keep a food journal to note any possible reactions. They can take anywhere from a few hours to couple days.

I don't really have any ideas but I invite you over to the OMG thread. It's turned into a thread for those that haven't had symptoms resolved going gluten free.

[CarlaB]

A rotation diet is a good idea. If it's a food sensitivity causing your ongoing problems, you will pick it up.

For some of us, gluten intolerance is only once piece of the puzzle. Gluten makes me sick, and I'm doing a lot better off it, yet I'm still sick. I'm in the process of finding out what else is wrong. In some cases, a person has celiac, they get off gluten and get better. In other cases, there are other problems that go along with it.

As Andrea has said, we talk a lot about related issues on the OMG thread. DON'T try to read the whole thread!!! Just jump in and introduce yourself. Some of us are being tested for Lyme Disease, some for Eos, some are having heavy metal toxicity ... you can get ideas of other avenues to research.

[marciab]

I would still be 100 % sick if I had not gone on the elimination diet too. I react to soy, dairy, corn and eggs. And anything fried.

It takes time to heal, but if you are still having symptoms, chances are you are sensitive to one of the other foods listed above and won't feel better until those are gone.

In order to fully take advantage of the elimination diet, you have to get your digestive system to calm down so that you can really tell what food is upsetting it.

Papaya, mango and pineapples contain natural digestive enzymes and are a good thing to add right away.

I still have problems from time to time, but I am also adding in new foods regularly now.

Hope this helps ... marcia

[Lisa]

I would suggest that you keep a food diary. Just get a notebook with loose leaf paper and write down every thing that you eat. Document how you feel after eating the things that you wrote down and the time of reaction. There may be a pattern here that you may not be aware of.

I hope that you feel better soon and feel always free to ask here.

[eleep]

Edit: I just reread your post and I think my suggestion is off-track!