Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Becoming Gluten-free Increases Sensitivity?

Shawn

By Shawn
in Dermatitis Herpetiformis

Recommended Posts

Shawn Apprentice
Shawn
Posted

Hi -

I've been off of gluten for 1 and 1/2 months now, and it seems the longer I'm off, the more sensitive I am. The slightest hint of anything makes me itch! And I'm allergic to sulpha drugs (like Dapsone). Any ideas as to what to do? It's so frustrating.

I am trying to be very vigilant (I think). Today I had popcorn at the movies, and made sure that the butter topping was just butter, but I started itching afterwards! From popcorn that must have had a speck of something on it!! That would not have made me itch a couple of weeks ago.

What are your ideas?

Thanks,

Shawn :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ladybugpumpkin Contributor
ladybugpumpkin
Posted

You may want to contact the company that makes the popcorn. I know that Kerasote theaters in Indiana do not have Gluten Free Popcorn. I contacted the company, and strangely enough...it was the SALT that has the gluten in it...not the butter. He suggested that I call the manager in advance and they could clean the popcorn maker and make some without the salt. However, I don't do that because it seems like a lot of trouble and I'm not sure they'd REALLY clean it anyway. Just a little insight. Hope you figure out what's doing it!

CarlaB Enthusiast
CarlaB
Posted
You may want to contact the company that makes the popcorn. I know that Kerasote theaters in Indiana do not have Gluten Free Popcorn. I contacted the company, and strangely enough...it was the SALT that has the gluten in it...not the butter. He suggested that I call the manager in advance and they could clean the popcorn maker and make some without the salt. However, I don't do that because it seems like a lot of trouble and I'm not sure they'd REALLY clean it anyway. Just a little insight. Hope you figure out what's doing it!

Really? I never reacted to Kerasotes popcorn ... I read the popcorn and the butter, but you're right, never looked at the salt they use. It is the salt they use or the salt you can put on it yourself? I THOUGHT I had checked it out there ... I'd read the salt ingredients myself if I still lived there ... I find that one hard to believe ... not that I don't believe YOU, I just am having trouble believing that the person you spoke with knew what they were looking for.

Shawn, your theater has REAL butter??? I know a small, local theater around here that does, but I thought that was pretty rare ... lucky you!!!

I did become hypersensitive to gluten once I got off it. I have had to go to a very simple diet of meat and veggies, with a little fruit for some time. A lot of people need to do this to heal. It might help you for a while .... then you can add things in one at a time and see how you react. Lots of time other sensitivities show up once you eliminate gluten.

Rusla Enthusiast
Rusla
Posted

Theater's have not used real butter for decades. Maybe the staff says that is what it is but it isn't. Their buttered popcorn always made me sick. They refer to it as a butter topping meaning it is not butter. If by some fluke of fate it is real butter you could be reacting to the casein in the butter which, for many Celiacs causes the same reaction as gluten.

Shawn Apprentice
Shawn
Posted
  • Author

Hi - thanks for your replies. It was indeed real butter (it was an indy theatre and they let me read the ingredients). It had just been popped and smelled irresistible. However, I didn't think of the salt. I definitely reacted to SOMETHING. I'm out in Seattle. You can always come out here for real buttered popcorn. As I said, it was an indy theatre, and they always seem to have "real" ingredients.

Milk products, eh? Never reacted to them before. I feel like miss high maintenance. And I was high maintanance before this whole thing started!

I'll have to pop my own Newman's popcorn next time I go to a movie. Then I'll be safe!

Thanks again,

Shawn

CarlaB Enthusiast
CarlaB
Posted

Most theaters don't use real butter, but we have one here in Cincy that does, too. They even charge extra for it. It's worth it, too!! ;)

ladybugpumpkin Contributor
ladybugpumpkin
Posted

Yeah, the salt thing was a little weird. The person who responded was indeed talking about the salt that is already on the corn...not the kind you add after you get it. He sent me the list of ingredients and while I can't remember exactly what the ingredient was, it was a "no-no" for sure! So, I don't eat the popcorn anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Do you happen to still have the email they sent you?

ladybugpumpkin Contributor
ladybugpumpkin
Posted

Unfortunately, I don't. Sorry.

CarlaB Enthusiast
CarlaB
Posted
Unfortunately, I don't. Sorry.

I was just curious what the questionable ingredient was.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.