Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Correct Name ?

Rebecca47

Recommended Posts

Rebecca47 Contributor
Rebecca47
Posted

I really would like to know, my doctor says that I have "Celiac Sprue Disease" is this the same as 'celiacs"

I never see CSD only celiac disease what is correct or is it all correct and have different meaning.

Also does one always have DH if so then are colds sores which I haven't had in 3 months I also had super big blister like sore on my face itself a few months ago very painful. :unsure:

Thanks

Rebecca

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Rebecca, Celiac Sprue and celiac disease is the same thing. And no, not everybody with celiac disease has DH as well.

happygirl Collaborator
happygirl
Posted

Celiac Sprue is kind of he "old school" name for Celiac. It is also Celiac not Celiacs. :)

Most of us just call it Celiac....you will see that the majority of the time .... hence, the C D.

Also, in some European countries, it is spelled "coeliac"

Oh-another one, which is the same thing, is "non-tropical sprue" (because there is a type of sprue that you can acquire, but is not common, and not really related to Celiac.)

If you think you have DH, you should get it biopsied. But make sure you find someone who knows the protocol for biopsying it...many don't.

Hope this helps.

Rebecca47 Contributor
Rebecca47
Posted
  • Author

Thank you everyone.

Generic Apprentice
Generic
Posted

Don't forget Gluten Induced Enteropathy. LOL

-Laurie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,917
    • Most Online (within 30 mins)
      7,748
    Nana 0.4
    Newest Member
    Nana 0.4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, Migraines ran in my family as well.  Correcting my Thiamine insufficiency made a dramatic improvement in frequency and duration.   If you take Thiamine, B12 and B6 together, they have analgesic (pain relieving) properties.  Taking thiamine every day has cut down on their occurrence and severity for me.   Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide).  These forms get into the brain easily.  Magnesium Threonate gets into the brain easily, too, and helps thiamine work.  My gave a sigh of relief when I first took it, and no migraines. Yes, lowering histamine levels helps one feel better, too.  Vitamin C and B12 help reduce histamine.  A low histamine diet can help, too.  DAO supplements lower histamine, as well.  DOA is a digestive enzyme we can run short on.  
    • knitty kitty
      Refractory Celiac disease - what to do

      By knitty kitty · Posted

      @ehb   Great you're going to start the AIP diet!  I know it's scary and stressful, but you'll soon start feeling better.  It's a challenge, but you can make it.  Do ask for a Erythrocyte Transketolace test which tests for Thiamine level.   I hope your Vitamin D level is between 70 and 100 nmol/L.  In this optimal range, Vitamin D can act like a hormone and regulate the immune system.  Vitamin D 3 is the form that the body can utilize well.  I was prescribed the synthetic firm D2 and my body didn't like it.  I know getting my Vitamin D up in the eighties made a world of difference to me.  My depression improved and I felt so much better at higher levels.   I prefer Life Extension brand for many vitamins.  The important thing is to read the label and watch out for fillers like rice flour.  This may help. Keep us posted on your progress!  
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      @knitty kitty I have an appointment to go over the results tomorrow. Vitamin D was in the normal range. I’ve decided to start the gluten contamination elimination diet, while avoiding nightshades as recommended by the AIP. I am still hoping to get support from a nutritionist or advice from the doctor about supplements to make sure I’m getting enough nutrients. I’m still having a hard time sorting through all of the different brands and possible combinations
    • cristiana
      confirmed via biopsy, quite depressed

      By cristiana · Posted

      We've definitely all had such thoughts.  But as Scott says, it does get easier with time.  I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes.   I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone will create a decent substitute for them! One thing that I remember my husband said to me when I was feeling down one day  was: "Why don't you try to think of all the things you can still eat, rather than the things you can't?"  The list is long, and it did help - sort of!  
    • Scott Adams
      Quaker Instant Grits, gluten-free?

      By Scott Adams · Posted

      It looks like they are naturally gluten-free, but not labeled gluten-free. https://www.quakeroats.com/products/hot-cereals/grits/instant-grits-plain
×
×
  • Create New...