Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally An Answer! I Have Celiac


Guest ShannonL

Recommended Posts

Guest ShannonL

OK just left the dr. I DO have celiac. I am beginning this journey AGAIN...I was dx 4 years ago then told I didnt have it. Now I do for sure. Anyway....here are the first of many questions. I dont have issues with my skin...should I still not use make-up that may contain gluten? What is a good book to start with? Is there a celiacs for dummy's???? LOL if so I need it.

Should I just go basic fruits and vegetables for 2 weeks and then add dairy and other somewhat processed stuff? Any advise would be appreciated. I am exhauseted and need some hand holding. I have a 11 mo who is IGg4 deficiant and she is sick ALL the time and I dont sleep! ARRRR I hoping this fod lifts. MY dh told me last week that I am going to be something when I am 60. Now maybe I will get my brain back.

Shannon

www.Lame Advertisement.com

Home of the Kids with Food Allergy Monkey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

It's a good ideato start with simple foods. You could do vegetables, fruit, meat, fish, eggs, rice, for a couple weeks and then see how you feel. That way you don't have to spend so much time reading labels right away.

I hope you start to feel better soon. :)

Pauliina

gadgetgirl Newbie

Shannon,

There actually is a "Living Gluten-Free for Dummies" book available. It is worth reading - I found it combined information from a lot of sources into one book. It would be a good place to start.

So is the advice to just go with a basic diet for the first few weeks. In my case, I have intolerances that go beyond gluten and it was frustrating the first month or so to figure out everything that I was intolerant to. It would have been much simpler if I had started out very simple and then started adding back foods.

I hope you start feeling better soon.

Regina

SchnauzerMom Rookie

I have the Gluten Free for Dummies book and it has helped me a lot. Tremendous amount to information in it. I learned about this website from that book.

happygirl Collaborator

Check out the book listed in my signature. It is written by one of the top Celiac physician's and researchers and was just published this year. While much still is unknown about Celiac, it is a great resource for the information that is currently out there. I HIGHLY recommend it. you can get it from amazon or any other bookstore.

Feel free to ask any and all questions. Celiac is strange. Remember that Celiac is a genetic disorder...so your children could have it or could develop it. They suggest that ALL first degree relatives are tested via the full blood panel (Open Original Shared Link), including parents, siblings, and children. However, in children under two, the testing is somewhat unreliable at this point and often can miss Celiac.

Also, just because someone in your family is tested now, doesn't mean that they can't develop it later (like you developed it later...I "got" it in my early 20s).

The only "cure" for Celiac is a STRICT gluten free diet....it will take time to heal, so make sure you have patience. It took me months to feel somewhat normal, but I felt a difference within days. Celiac is often referred to as a medical chameleon because of its multitude of different symptoms, and course of the disease.

We are here to help! Best of luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,056
    • Most Online (within 30 mins)
      7,748

    Dano2
    Newest Member
    Dano2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.