Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hey! I'm New Here!


TBCGurl

Recommended Posts

TBCGurl Newbie

Hey Everyone,

Well, I do not have celiac disease, but my very close (like and 2nd mother) does. I just basic wanted to get involved in this site so I can learn more about it. I am not sure what kind of celiac she has, but i know she cant really have anything. I am hoping to find some recipies on here so i will beable to cook her up some treats. Thanks for starting this site! Its been very helpful so far!

God Bless!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice
Hey Everyone,

Well, I do not have celiac disease, but my very close (like and 2nd mother) does. I just basic wanted to get involved in this site so I can learn more about it. I am not sure what kind of celiac she has, but i know she cant really have anything. I am hoping to find some recipies on here so i will beable to cook her up some treats. Thanks for starting this site! Its been very helpful so far!

God Bless!

Hi and welcome! How nice of you to do that for your 2nd mom! I don't cook, so really can't offer any recipes...just make sure you don't use any wheat, oats, barley or rye or any products that contain them. You might also want to use either dedicated utensils or make sure they are very well sterilized. Some people react very strongly to even the tiniest amounts of gluten even the stuff left on utensils. If she has Celiac or gluten sensitivity, the only way to even hope to get better is to strickly avoid gluten--even crumbs.

Again, welcome!

KaitiUSA Enthusiast

That's so sweet of you:) Hope you find this site very helpful

happygirl Collaborator

Welcome to the board! I'm sure it means a lot to your '2nd mom' that you are taking the steps to help her out and support her. Feel free to ask any questions. Read, read, read! Let us know what we can do to help!

GFBetsy Rookie

For more recipes, check the parent page of this site, Celiac.com. Also, try looking for gluten free cookbooks in your local library. The recipe book "Saving Dinner" by Leanne Ely is also really good . .. it's not deliberately gluten free, but most of the recipes are gluten-free naturally. The website www.eatingglutenfree.com also has a lot of good recipes . . . try the sugar cookies! They are really good!

  • 1 month later...
New Dreams Newbie

Hi there everyone,

I'm Sue , I'm new to this forum and I must say that I had no idea really that so many suffer from Celiac :o . My Mother had the disease and I know how hard it is on the person and the ones around them .

My mother had the disease for about 7 years and to watch them go through all the pain and agony is heartbreaking :( . I know they have come up with new ways of dealing with it and I hope that you, that have friends or family with the disease keep them on there diets and makes sure they stick to them to the letter .. ;)

Sue

JackieM Newbie

There is so much on this site. I find it overwhelming. How is one diagnosed with this disease, is it done with lab work only? If so what part of the lab test will show that Celiac disease is the culprit? I am sure there is somewhere on here to find that answer, but again, so much to look through with so many topics. Someone I know has been experiencing this 'brain fog,' and dizziness, a feeling of bloating with dairy products. How common is this? Yet she never has mentioned being check for this disease. I would like to learn more about it, and plan on reading more here. Everytime she eats anything she gets very bloated and she is a very thin person. From some of the symptoms people write about here, it sounds like some symptoms that I have even experienced, as well as others. How does one differientiate between this disease and another condition? I guess what I am asking is how are you tested for it, and what is the key that the medical field is looking for in order to diagnose one with Celiac disease.

Thank you for your patience, as I said I am new and am interested in learning more about Celiac disease.

JackieM


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor
There is so much on this site. I find it overwhelming. How is one diagnosed with this disease, is it done with lab work only? If so what part of the lab test will show that Celiac disease is the culprit? I am sure there is somewhere on here to find that answer, but again, so much to look through with so many topics. Someone I know has been experiencing this 'brain fog,' and dizziness, a feeling of bloating with dairy products. How common is this? Yet she never has mentioned being check for this disease. I would like to learn more about it, and plan on reading more here. Everytime she eats anything she gets very bloated and she is a very thin person. From some of the symptoms people write about here, it sounds like some symptoms that I have even experienced, as well as others. How does one differientiate between this disease and another condition? I guess what I am asking is how are you tested for it, and what is the key that the medical field is looking for in order to diagnose one with Celiac disease.

Thank you for your patience, as I said I am new and am interested in learning more about Celiac disease.

JackieM

You can do a blood test or an intestinal biopsy. The problem is that there are a lot of false negatives with testing. A positive biopsy is still considered the "gold standard" but by that point you'll have to have a lot of intestinal damage. If you have celiac but a negative biopsy, I'd say you're lucky that you haven't gotten much damage yet. Enterolab is another way to go (enterolab.com). They do a stool test and most people around here have had very good results from them. You can always do a dietary test - eliminate gluten and see how you feel. I diagnosed myself from dietary response.

Brain fog is very common - I get it myself. Bloating with dairy is also not uncommon. Many celiacs are temporarily intolerant to dairy (celiac wears away the tips of your intestinal villi which is what you need to digest dairy).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.