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Symptoms

draeko

By draeko
in Coping with Celiac Disease

Recommended Posts

draeko Apprentice
draeko
Posted

Hi Everyone I am also new to Celiac disease. I am trying hard to get on the gluten free diet but I still am doing a few mistakes. My main concern was symptoms. right now I feel weak all over like my body wants to shut down .is this normal?

Thanks for all your help,

Draeko

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sunshinen Apprentice
sunshinen
Posted

Yes. Absolutely normal. Your body was probably shutting down to begin with, and switching your diet so drastically can be a sort of shock. The good news is, you're going to feel great!! It may take some time, just stick with it. You'll get there.

Guest nini
Guest nini
Posted

most of us go through a period of "withdrawal" type symptoms and the feeling of your body shutting down is one of those. Hang in there, take care of yourself, make sure you are taking a good pro biotic with digestive enzymes, and a good gluten-free multi vitamin. Eat foods that are naturally gluten-free to start with, don't try anything fancy... give your body time to recover... if you haven't already seen my "newbie survival kit" click on the link below in my signature for my web page and scroll down to the link to download the "newbie survival kit" I hope it helps you!

jerseyangel Proficient
jerseyangel
Posted
Hi Everyone I am also new to Celiac disease. I am trying hard to get on the gluten free diet but I still am doing a few mistakes. My main concern was symptoms. right now I feel weak all over like my body wants to shut down .is this normal?

Thanks for all your help,

Draeko

Hi Draeko, and welcome to the board!

It's perfectly normal to feel weak and tired when first starting the diet. Your body is starting to heal, slowly, and this takes a lot of energy. You've probably been without the proper nutrients for a while now, and your system is kind of making up for lost time.

My suggestion for right now is to listen to what your body wants--eat good foods regularly and when you are hungry. Get as much rest as you can--even nap if your schedule allows. Drink plenty of good water.

To minimize the dietary mistakes, focus on naturally gluten-free foods like meats, poultry, fish (all fresh), rice, potatoes, fruit, veggies, eggs. It takes time to get familiar with the different processed foods. You should always check on the gluten status if you're not sure. Ask here--chances are, someone has experience with the product.

Did you check to make sure that all of you medicines, suppliments and personal care products are gluten-free? We can help you with those, too!

I felt weak--like a wet dishrag for the first couple of months. I felt like I just couldn't get enough sleep. This will slowly improve as your system heals. Good luck with everything--and don't hesitate to let us know how we can help! :D

draeko Apprentice
draeko
Posted
  • Author

Wow thank you both for answering my post. I truly appreciate it...I will take all your advice..And I will be leaning on this Forum for support. This is great.

Melanie (a.k.a. Draeko)

KaitiUSA Enthusiast
KaitiUSA
Posted

Yes it is normal and it takes time to really feel better so do not expect an overnight change. Hang in there it does get better:)

Creative-Soul Newbie
Creative-Soul
Posted

Welcome!

It will take a while for you to feel better, but you will, so just hang in there! Sometimes we feel worse as we are getting better as our bodies are adjusting to new habits while purging all the old stuff. Major change like this is also tiring on a mental/emotional level as well, so keep that in mind.

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  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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