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Need Help With This Please...

TiffTiff

By TiffTiff
in Coping with Celiac Disease

Recommended Posts

TiffTiff Rookie
TiffTiff
Posted

Im vegan, i have itp, i suffer from anorexia, and was just diagnosed with celiacs disease, im still eating vegan bagels nonstop though ughhh i cant help it, any advice on how to get off the bread? ty

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Mary Contrary Rookie
Mary Contrary
Posted
Im vegan, i have itp, i suffer from anorexia, and was just diagnosed with celiacs disease, im still eating vegan bagels nonstop though ughhh i cant help it, any advice on how to get off the bread? ty
Well good heavens, just stop eating them, you are just harming yourself. You poor dear.

I'm sure we all loved pizzas and garlic bread and English muffins..I sure did, but I'd never even think of eating any now, not for any reason.

Ann1231 Enthusiast
Ann1231
Posted
Im vegan, i have itp, i suffer from anorexia, and was just diagnosed with celiacs disease, im still eating vegan bagels nonstop though ughhh i cant help it, any advice on how to get off the bread? ty

the only way I could stop is to stop. If I ate them, I wanted more, no matter if I ate a little or a lot. The cravings and the inability to feel full or satisfied never goes away if I have gluten. Quit cold turkey, that's the only way.

Nooner Newbie
Nooner
Posted

Hi Tiff,

Something that has helped me cope with giving up some of my favorite foods is keeping a supply of gluten free favorites around. Then I just substitute. I don't try to substitute exactly, but instead just eat something else I love. I eat a lot of Fritos, olives, and homemade fudge to replace any bread cravings.

Have you tried making a list of the things you like to eat that are naturally gluten free? You might find some good substitutes that way.

Hope this helps!

Gamecreature Rookie
Gamecreature
Posted

You're going to need to decontaminate. Go through your kitchen and collect and dispose of anything containing Wheat, Rye or Barley (that includes Rice Krispies cereal, sorry) and then do a thorough cleaning to get rid of any crumbs, etc. in your cabinets and pantry. I think there's a list around here someplace of what cooking tools you'll need to replace, but I do recall that wooden spoons, plastic colanders and upright toasters will need to be replaced.

If you must have bagels, go to your health-food store and pick up some gluten free bagels (not wheat-free - many wheat free products contain barley). Don't buy out the store. Just try a few and see how you react to them.

Whenever I need a snack, I get some Lundberg Rice cakes with peanut butter (for protein) spread on them. They really help quell my cravings!

TiffTiff Rookie
TiffTiff
Posted
  • Author

i thought the first post didnt go through sorry bout posting twice, i have a 2 year old, so i buy her frozen or cold stuff i cant stand so i wont touch it meat basically since i dont eat any meat at all or anything, i updated my med alert with celiac information on it, i get honey wheat bread now i wont touch honey since im vegan so i wont touch the bread, its hard, but i did buy these gluten vegan crackers at store today and they were pretty good and i ate half of them lol, i have bought more fruits, i didnt know a little bit of gluten could hurt intestines, ackkk, i def wont miss pizza then i barely have it anyway, ty all for the helpful info im glad to have found this board!!!

tiff

CarlaB Enthusiast
CarlaB
Posted

This suggestion may be "out there", but since you feed your child meat, I am guessing you are vegan for reasons other than ethical. Maybe if you added back in animal products you would have such an assortment of new foods that you wouldn't miss your old vegan favorites. Do this carefully, however, as you probably lack the enzymes to digest the animal products ... for this reason you would want to take digestive enzymes.

It is VERY important for you to get off the gluten, 100% off it!!!!! You have the willpower, how else would you have been able to be a vegan???? Even a little gluten is putting you at risk for developing more health issues.

The gluten free diet can be restrictive as it is ... even more so if you're vegan. If you are vegan because of health issues, that is not unusual ... you should feel better when you get to be gluten-free. Poor health is hard on your adrenals, and people with low adrenal function are known to avoid animal products ... so as you get better, perhaps they will be more appealing to you.

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TiffTiff Rookie
TiffTiff
Posted
  • Author

ty carla i love soy burgers but hence the WHEAT HAHA, ill try to do your suggestion ty so much: ) im gonna do it, cold turkey!!! its not worth my health at all, i did find a cool site that sells gluten free vegan stuff i ordered some food from it and candy n cookies lol

Nantzie Collaborator
Nantzie
Posted

While you're still eating gluten, you also probably have no idea how sick you actually are. Once you detox, you'll get to the point where you wouldn't eat gluten if someone paid you to.

The first step is always the hardest. Why not break it down more? It can get overwhelming to get your brain around the "no gluten for the rest of your life" concept. It seems like too much and too long. Why not tell yourself that you will be 100% gluten free for a month and look at it that way. You'll probably be feeling 10x better within a couple of weeks. After you see how much better you feel off gluten, you probably won't be quite so overwhelmed with it.

I hope you start feeling better soon.

Nancy

TiffTiff Rookie
TiffTiff
Posted
  • Author

ty nancy what ive done since i loved cereal is buy small boxes not the big ones anymore and labeled them for days for my kid and thats been working i think ill be fine after getting used to it a lil longer: )

SchnauzerMom Rookie
SchnauzerMom
Posted

I love baked things, bread, bagels, etc. Whenever I crave something that I can't have I just remind myself how sick the gluten makes me and that pretty much takes care of the craving. I'm also learning to bake with gluten free flours. The taste is different but still good.

tarnalberry Community Regular
tarnalberry
Posted

No tricks to it, you just don't. Well, some people might have tricks that work for them, but it'll vary from person to person. Get rid of the stuff and don't look back - and remember that it's a choice to eat it, every time you do. And doing so (eating it) will just make you sicker!

Instead, find other things that you enjoy to eat instead. You may find that part of the reason you're eating it is a blood sugar issue, in which case you may need to increase your protein and fat intake at each meal, to balance out your blood sugar.

Ursa Major Collaborator
Ursa Major
Posted
ty nancy what ive done since i loved cereal is buy small boxes not the big ones anymore and labeled them for days for my kid and thats been working i think ill be fine after getting used to it a lil longer: )

Are you saying you are feeding your child gluten cereal? Why not just make your house gluten-free, and buy him gluten-free cereal, that will remove all of the temptation. If the stuff isn't in your house, you won't be able to eat it. And your child won't even miss it.

TiffTiff Rookie
TiffTiff
Posted
  • Author

ty all for the replies ill go to health store today and buy the gluten free cereal, i got my new med alert bracelet yesterday: ) i have willpower and oh am i using it now

Guest nini
Guest nini
Posted

my mental trick is that I tell myself that gluten equals poison and since I would never willingly ingest poison, I won't willingly ingest gluten. I just repeat over and over if I'm tempted, that gluten is poison and is very bad, gluten is poison!

kbtoyssni Contributor
kbtoyssni
Posted

I agree with everyone about just having to stop eating gluten. It's very likely that your body is addicted to gluten so it will be hard to cut it out at first. Hang in there, though, it will get easier and you will start feeling better.

I think there is one kind of Morningstar veggie burger that is gluten-free. I can't remember which one off the top, but you could do a search on this site. Or you could try making your own. I did manage to find one brand of veggie hot dogs that are gluten-free, but I didn't like the taste as much.

TiffTiff Rookie
TiffTiff
Posted
  • Author

ty everyone i went to health food store today and bought some vegan gluten free crackers and gluten free vegan lollipops they had(28 calories a piece) got like 20 of em lol so when i have that gluten craving ill get one of those instead they are pretty good actually: )

Guest nini
Guest nini
Posted

Sunburgers are gluten-free and pretty darn tasty too... and really easy, you can simply toast a frozen burger in your toaster and viola!

chrissy Collaborator
chrissy
Posted

just to clarify things for us----why have you chosen to be vegan? you don't have to answer if this is too personal of a question. if bagels are a real love for your----you don't have to give them up!! kinnikinnick makes a pretty good bagel----my girls like them.

oh yeah, one more question-----why won't a vegan eat honey? i have never hear this before----educate me! LOL!!

tarnalberry Community Regular
tarnalberry
Posted
just to clarify things for us----why have you chosen to be vegan? you don't have to answer if this is too personal of a question. if bagels are a real love for your----you don't have to give them up!! kinnikinnick makes a pretty good bagel----my girls like them.

oh yeah, one more question-----why won't a vegan eat honey? i have never hear this before----educate me! LOL!!

vegans don't eat honey because it comes from a living creature - bees. no jello either, as the majority of gelatin comes from beef. (strict vegetarians also avoid gelatin.)

loraleena Contributor
loraleena
Posted

My concern is that you said you are anorexic. You are already extremely restricted due to being a vegan and now no gluten. You have to stop the gluten or you will only get sicker. It seems you are consuming lots of grains especially if you are vegan. Why are you vegan? Is it for weight control? I am just asking since I originally became vegetarian for weight control and ended up anorexic. I now eat meat and feel better for it. It did not cause me to be heavier. You need to make sure you are getting enough protein and veggies in your diet. I know for me lots of grains even gluten free ones make me feel bad. Good luck.

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      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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