Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kind Of Gross But I'll Ask Anyway


ezrab12

Recommended Posts

ezrab12 Newbie

Hi All,

I have been having an oily discharge even when I'm not going to the bathroom. It seems to be more when I'm sleeping and it is gross, yuk. Is this or has it happened to anyone. Should I call the Gastro doc again and make an appointment.

I am diagnosed celiac as of March 2004 and gluten-free since then.

Thanks, Ezrab12


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alexolua Explorer

Is it oil or more like mucus?

How long has it been happening, since you went gluten-free or more recent? Could you be eating something new that's causing it? I know some of the "fat substitutes" like.. errmm.. no clue how to spell it, but began with O, could cause problems like that.

And don't worry about gross, pretty sure most of us have delt with gross. =)

ezrab12 Newbie

hello,

It seems to be a light yellowish color, sticky and that foul smell so maybe mucous but this is something that started after I have been on the diet but seems to be getting worse. I can't think of anything out of the ordinary I have been eating and I only use equal for sugar sub and no olesta or anything like that. I seem to be going through a bad phase here, I have been gluten-free since march and in the beginning felt much better but now seem to be on that constipated and then the runs cycle again so somethings acting up. I don't think I have ingested any gluten as of late. Guess I'll call the doc soon.

Thank you for reply,

Ezrab12

Alexolua Explorer

That does sound like mucus, at least to me. Though the foul smelling odor to it, isn't something I've encountered.

Maybe calling the doctor would be a good idea then. Another idea though, if no new foods, maybe you're using a new soap or hair care product, etc.. that contains gluten?

Oh well, good luck!

terri Contributor

I started with the same thing Sunday morning! Only no smell, but other than that, it seems the same. Wonder what it is?

Alexolua Explorer

Terri, I'd say mucus likely.. if it the same as mentioned? Our bowel normally does produce mucus, but when it's not happy.. or upset for a reason, it can make extra.. lots, ugh, lol. Though what was upsetting you.. no idea.

Jo Ann Apprentice

You mentioned using Equal for sugar. Our Gastro. said many Celiacs have problems with sugar substitutes, as well as dairy, etc. Don't know if this could have any bearing on your problem, but it is worth considering. Our grandson cannot use aspartame (is that in Equal?) and my husband cannot tolerate any type of cheese, because it causes cramping, diarrhea, etc. Seems like other food allergies or sensitivities often go hand-in-hand with Celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lesliewatts Newbie

Our daughter was having this also, I know it all too well, b/c even though she is potty trained, she still needs help. I narrowed hers down to the suntan lotion/sunscreen we were using. It has gotten better since we switched, now we use Banana Boat. Maybe this will help.

Littlewolf Newbie

I would suggest getting checked by a gyno. It could be a yeast infection or something unrelated directly to a gluten-free lifestyle.

burdee Enthusiast

OKay, back to the original 'rectal' discharge question ... I vote for mucous. ;) I've had steatorrhea (mucous covered 'floating' stools) off and on before I was diagnosed with celiac and began the gluten-free diet. I also passed some mucous when I passed gas occasionally. However both those symptoms disappeared after I abstained from BOTH gluten and casein. Nevertheless, with every major gluten OR casein accidental ingestion, the mucous came back. :o That's just part of my celiac symptoms. I suspect that's caused by either damaged villi not adequately digesting fats OR the same kind of mucous reaction I have with a sinus infection, but instead coming from my intestines. When you consider that celiac disease involves our antibodies attacking what our celiac bodies consider foreign substances (gluten and for me casein), that's similar to our antibodies attacking cold viruses. With colds, the healing process produces lots of mucous. Similarly mucous may be produced in our intestines as part of the celiac reaction to gluten. Perhaps, because I don't have diarrhea, I notice the mucous, in contrast to my normally firmer stools, more than someone with diarrhea would notice. :blink: Obviously, that's all just my speculation, but it seems logical.

BURDEE

ezrab12 Newbie

Hello All,

Thanks for all of your suggestions and I think the last one from Bergee sounds like

what's been happening. I also have massive post nasal drip and dry mucous in my sinuses, i just went to ear, nose, throat doc because I always feel that I am gongested in my sinuses but nothing ever comes out, etc. He said it was dry mucous. I am sure that is what's happening below and maybe I have been ingesting gluten by mistake, I must confess I still was using a shampoo from Kiels that had wheat protein in it but I guess I was being ignorant thinking that I wasn't and didn't ingest it so i will stop using that too, any idea's for a shampoo? Again, thank you all for your responses and I really am thankful for being able to share about the crazy things going on with my body. I am 36 and some days I feel much older but now I am a little bit wiser, thanks, Bill

ezrab12 Newbie

OOPS I meant Burdee, thanks Bill

burdee Enthusiast

Hey Bill: No problem ... it is a strange nickname/login name. :lol: Blame my husband. ;)

Have you tried eliminating dairy as well as gluten? That reduced my constant sinus mucous (post nasal drip and allergic sinus reactions) to almost zip! Still have occasional mucous from the other end, when I have any kind of cramping intestinal twinges, most likely from gluten/dairy/soy 'slips'. In fact after going dairy free for 36 hours to test my milk sensitivity, before receiving my enterolab results of casein antibodies, I drank a tiny bit of lactose free milk and experienced a HUGE instanteous sinus mucous reaction and, of course, the cramping abdominal pain. :o That convinced me that dairy was a problem even before I received my Enterolab test results that said cow's milk intolerance.

BURDEE

ezrab12 Newbie

Hello,

I am still eating dairy. I will eliminate for a few days and see what happens. I think

it may have been the shampoo because I stopped using it on Friday and the issue has somewhat subsided but I will try the non dairy for a few days about the the sinuses. If dairy has to go I will be a bit crazy then because I do not like the soy alternatives, yuk.

Thanks, Bill

burdee Enthusiast

Hey Bill:

I know about that craziness. :blink: I can't tolerate soy either--it gives me the same cramping/bloating as dairy does. Rice and almond milks are so low fat/low protein, it seems pointless to put them on high carb cereal. So I went from dairy all day long--cereal and milk, butter on anything, cheese sandwiches, cheese on salads and casseroles and yogurt or ice cream for dessert--to nothing that resembled any dairy products. :o It was was tricky at first, but relief from pain and other symptoms made it all worth it. :D Meanwhile I've discovered other favorites. Fortunately, I do well with peanut butter, eggs and many of the other usual 'allergens'. ;)

BURDEE

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,118
    • Most Online (within 30 mins)
      7,748

    Shiwaji
    Newest Member
    Shiwaji
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.