Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Fingers


flxmanning

Recommended Posts

flxmanning Apprentice

So whenever I have gluten, I get the "normal" reaction of an extremely distended stomach, dizzyness, mind fog, and some other unpleasantness, but the weirdest symptom is my fingers, face, and pretty much everything swell up. I called in sick to work one day, but had to go in later to pick up my phone...no one even recognized me because I was so swollen all over! Does this happen to anyone else or was it maybe some other allergic reaction to something else that I don't know I'm allergic to?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I also get very swollen fingers when glutened. I can feel the resistance when I bend my fingers, it isn't necessarily so noticeable that others see it, though.

Guest Kathy Ann
:)
Nooner Newbie

For five years before I was diagnosed, I had serious water retention that raised my blood pressure and required heavy duty diuretics. The water retention and blood pressure was never quite under control, even when I followed a diet of less than 500 milligrams of sodium a day. The only time I felt better was when I ate plain, unseasoned rice.

Now that I know what's causing it, I recognize bloating as one of my symptoms of eating something I my body doesn't like. It can be gluten or any of my other intolerances. My entire body swells, but I notice it most in my fingers and feet, because my rings and shoes feel too tight.

jerseyangel Proficient

I get swelling (bloating) in my fingers and also my ankles and feet sometimes. It's actually worse when it's hot outside. My fingers will also swell if I'm out walking briskly.

This pattern hasn't changed at all for me since going gluten-free.

ravenwoodglass Mentor

This happens to me too and is extreme when I get glutened. I still have some of the finger swelling still in the mornings but it goes away soon. For me this is also kidney related, when it happens they bleed so I wonder if the filtering system just got a little messed up from all those years of trying to filter the reactionary products out of the bloodstream.

One thing though that has me concerned about your question is the facial swelling. This sounds more like an actual allergic reaction and you should bring it to the attention of your doctor. He may want to make some provision like an emergency med or epipen in case your throat should decide some day to swell also. Be sure to mention it to him or her on your next visit or in a phone call to the office monday morning.

Guest Kathy Ann
:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



anerissara Enthusiast

If I get a bad dose of gluten, I retain water like CRAZY! My face gets puffy (but not so bad that other people notice much) and I can feel it in my hands, where my fingers get stiff and don't bend like usual (that's a bad description, sorry...it's hard to describe!). My hands also itch and break out with little blisters, which doesn't help the not being able to bend my fingers right problem.

Definately I retain water when I'm glutened....I gain 3 pounds (and it's always right at 3!) and just feel like a blimp, like PMS only any time of month. This is not the same as "swelling" as in an allergic reaction, though...if you're swelling up so bad that your face isn't recognizable I think you should probalby consult an allergist...that sounds like it's more serious than retaining water. Although I know I for one *feel* like my face isn't recognizable...it just looks, well, not "me" when I'm retaining that much water!

zansu Rookie
I called in sick to work one day, but had to go in later to pick up my phone...no one even recognized me because I was so swollen all over!

At least they knew you weren't faking it! :rolleyes:

Felidae Enthusiast

I get swollen fingers too. But, I'm not sure if it from gluten or not. The strangest thing is that this only started happening in August and I'm still trying to find a reason why.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,081
    • Most Online (within 30 mins)
      7,748

    Jillyev
    Newest Member
    Jillyev
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.