Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Fingers


flxmanning

Recommended Posts

flxmanning Apprentice

So whenever I have gluten, I get the "normal" reaction of an extremely distended stomach, dizzyness, mind fog, and some other unpleasantness, but the weirdest symptom is my fingers, face, and pretty much everything swell up. I called in sick to work one day, but had to go in later to pick up my phone...no one even recognized me because I was so swollen all over! Does this happen to anyone else or was it maybe some other allergic reaction to something else that I don't know I'm allergic to?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I also get very swollen fingers when glutened. I can feel the resistance when I bend my fingers, it isn't necessarily so noticeable that others see it, though.

Guest Kathy Ann
:)
Nooner Newbie

For five years before I was diagnosed, I had serious water retention that raised my blood pressure and required heavy duty diuretics. The water retention and blood pressure was never quite under control, even when I followed a diet of less than 500 milligrams of sodium a day. The only time I felt better was when I ate plain, unseasoned rice.

Now that I know what's causing it, I recognize bloating as one of my symptoms of eating something I my body doesn't like. It can be gluten or any of my other intolerances. My entire body swells, but I notice it most in my fingers and feet, because my rings and shoes feel too tight.

jerseyangel Proficient

I get swelling (bloating) in my fingers and also my ankles and feet sometimes. It's actually worse when it's hot outside. My fingers will also swell if I'm out walking briskly.

This pattern hasn't changed at all for me since going gluten-free.

ravenwoodglass Mentor

This happens to me too and is extreme when I get glutened. I still have some of the finger swelling still in the mornings but it goes away soon. For me this is also kidney related, when it happens they bleed so I wonder if the filtering system just got a little messed up from all those years of trying to filter the reactionary products out of the bloodstream.

One thing though that has me concerned about your question is the facial swelling. This sounds more like an actual allergic reaction and you should bring it to the attention of your doctor. He may want to make some provision like an emergency med or epipen in case your throat should decide some day to swell also. Be sure to mention it to him or her on your next visit or in a phone call to the office monday morning.

Guest Kathy Ann
:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



anerissara Enthusiast

If I get a bad dose of gluten, I retain water like CRAZY! My face gets puffy (but not so bad that other people notice much) and I can feel it in my hands, where my fingers get stiff and don't bend like usual (that's a bad description, sorry...it's hard to describe!). My hands also itch and break out with little blisters, which doesn't help the not being able to bend my fingers right problem.

Definately I retain water when I'm glutened....I gain 3 pounds (and it's always right at 3!) and just feel like a blimp, like PMS only any time of month. This is not the same as "swelling" as in an allergic reaction, though...if you're swelling up so bad that your face isn't recognizable I think you should probalby consult an allergist...that sounds like it's more serious than retaining water. Although I know I for one *feel* like my face isn't recognizable...it just looks, well, not "me" when I'm retaining that much water!

zansu Rookie
I called in sick to work one day, but had to go in later to pick up my phone...no one even recognized me because I was so swollen all over!

At least they knew you weren't faking it! :rolleyes:

Felidae Enthusiast

I get swollen fingers too. But, I'm not sure if it from gluten or not. The strangest thing is that this only started happening in August and I'm still trying to find a reason why.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.