Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Test--should I Do It?


Ksmith

Recommended Posts

Ksmith Contributor

Hey everyone! So my mother really wants me to "get tested" for celiac...I already know that i have it and have been gluten free for a couple years now. However, she must think that I am either not well enough educated on it and should talk with a specialist about my diet and she thinks that I need to "be tested." I think she's afraid that I'll end up with cancer, etc... That said, I am UNWILLING to start eating gluten again for the sake of getting tested. How do you guys think I should appease her...get the enterolab? Go talk to a specialist? What do you think? Thanks so much!

~K


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I'd just tell her that the cancer risk is only raised for a celiac who is not gluten-free. Find something in writing that says it, so it's not just you, but a reputable source. If you don't need more proof, I'd just leave it at that. I don't believe Enterolab will be effective after two years of gluten-free eating.

If you're healthy, I'd leave well-enough alone!

Guhlia Rising Star

I totally agree with Carla. The amount of damage that you would do to your intestines in the 2-6 months you would need to consume gluten to have a test show up positive just isn't worth it. If you already know you have Celiac then there's no need to further push the issue. Are you still having symptoms? If so, perhaps that's why she wants you to get tested. Us mothers are programmed to be kind of a pain when it comes to our kids' health. We always want what's best for them.

Ksmith Contributor
I totally agree with Carla. The amount of damage that you would do to your intestines in the 2-6 months you would need to consume gluten to have a test show up positive just isn't worth it. If you already know you have Celiac then there's no need to further push the issue. Are you still having symptoms? If so, perhaps that's why she wants you to get tested. Us mothers are programmed to be kind of a pain when it comes to our kids' health. We always want what's best for them.

Yes...I still am having some health problems, but nothing like how it was when I was eating gluten. I think I may have to quit the dairy...also I have kinda bad hypoglycemia that I'm trying to get under control. Thanks for the advice you guys!

AndreaB Contributor

Enterolab says their tests are good for about 1 year gluten free, so that would do you no good.

You may want to try an elimination diet or get IgG intolerance testing done just to give you something to go by. They are always accurate but would give you a starting point.

sunshinen Apprentice

Wow, so great to see someone who wants you to be tested to know more about it rather than to be tested because they don't believe you need to be on the diet.

It is recommended that celiacs have follow up tests to make sure that you are successfully healing. In this sense it might be smart to either go to a GI specialist or Enterolab. Since Enterolab seems to be the more sensitive test and many doctors will want you to do a challenge, Enterolab may be the way to go. If talking to a specialist is important, then try to find a celiac specialist who won't insist you do the challenge and is willing to just make sure that you are healthy now.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.