Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sometimes I Just Can't Stand This Disease


NicoleAJ

Recommended Posts

NicoleAJ Enthusiast

Ok, so if you don't want to hear a rant, please read no further.

Today was my boyfriend's dissertation defense, so he is now officially a doctor! I'm so proud of him. I attended his defense and was very supportive--I also bought him a great gift that he absolutely loved and wrote him a great congratulatory card that he really appreciated--he bragged about this at dinner. We then proceeded to have a great day by doing things he wanted to do for the rest of the day and going out to dinner with two couples. After dinner we were supposed to meet several friends to play poker, and then we were supposed to go out for drinks after that. We specifically chose to go to the one restaurant in the area where I've never gotten sick. Though I think the food was fine, there were obviously some cross contamination issues because I spent 40 minutes in the restroom before the meal even finished. The owner of the restaurant has celiac, so they are always accomodating, but I think that we just had an inattentive waitress. Usually they are even careful to bring the salads out on a separate tray and then they bring bread for other members of the table in a basket, but this time around the bread basket was on the tray. I didn't fully notice that this happened at the time--I just remembered it in retrospect. Now my boyfriend was late to poker (not all my fault--partially because the waitress took so long with the check and then my next round of sickness kicked in), and I'm not there with him. This is such an important day for us, and now it hasn't gone off as planned. I'm just so sick of being sick. Since being diagnosed with celiac, I've also been diagnosed with pernicious anemia and proctitis--now I've found out that all of the bleeding from the proctits has made me badly anemic (iron rather than B12 deficiency). I'm just so sick of this disease--it truly sucks when it interferes with important life events. I know that my boyfriend understands, but I'm still humiliated to have been so sick in front of a large group.

Now I'm just going to try to take some imodium and see if I can rejoin the party briefly, but I wish I never got sick in the first place.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marciab Enthusiast

Wow .. What lousy timing for cross contamination. Not that there is ever a good time.... At least your boyfriend will understand ... Marcia

breann6 Contributor

Im so sorry for you getting sick. anytime stinks to get sick but in such an important time- is terrible. the same thing happened to me last week- at a dinner with a large group of friends, who are celiac stupid an still think its -just- a bread allergy- 50% of the time and the other 50% (glucose) diabetes. its embarrassing to me when im with them to say to the waitress the celiac spill and blah blah....actually its only embarrassing to me because it seems it is to her.

Sorry you got sick. Hope you feel better soon and that your evening continues more smoothly!! Congratulations to your boyfriend! HUGE accomplishment!

~breann

happygirl Collaborator

Nicole,

Hey sweetie-I am sorry to hear about your experience. My heart hurts for you :(.

Congratulations to your man! A PhD from the best place on earth....yes, we all know I'm biased ;)

Please send him my congratulations---that is something to be so proud of. I know you must be so happy too. And you will be next!!!!!!!!!

I hope you recover quickly. How is the end of your semester going? Anyone word on jobby jobs for bf? Any down south ;)?

xoxo,

Laura

jerseyangel Proficient

Nicole,

I just want to say I understand, and I'm sorry that this happened on such an important day. Just not fair--plain and simple :angry:

Congratulations to your boyfriend! He sounds great, and I'm glad that he's so understanding :)

eleep Enthusiast

Double-congratulations to your boyfriend on the defense! I'm also sorry you had to go through that and couldn't just celebrate in peace.

Erica

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...