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Trying To Do Diet Also! How To Get Others To Understand!


Sage'sMommy

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Sage'sMommy Newbie

Okay so after reading the Gluten-Free Bible I learned celiac's can lay dormant till you're thirty. Which is a few yrs away for me but some of the milder side effects fit. I won't go into detail but I'd started having problems a lil before become pregnant with Sage, my teeth turning yellow, low immune system, RA, and a few other things. So maybe I'm parinoid but I though hey there's a chance that I could have it, and I don't have the money to get tested. I decided to do the diet and stay strict about it for two weeks and see if it made a difference. This really is not easy, I'm fine when I'm at home with Sage but the other night I went out with my honey for the first time in forever and he picks Cracker Barrel. I don't know if I'm just so new to this that I couldn't find anything but I could not find anything on that menu gluten-free. I know he was just being sweet and I was crazy not to say anything but all I thought was, He won't take me out to eat again if I say anything because he'll think he can't. Sorry, mostly I'm just venting. I'm so new to this that sometimes I just feel really confused. Thanks to everyone for listening.


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AndreaB Contributor

Sounds like you very well could have celiac, or be at the beginning of it.

Glad you got a chance to go out with your sweetie. Sorry about the restaurant. :(

wifeandmomofceliac Newbie

Well, Cracker Barrel is certainly not the easiest place, but not the worst, either. Remember, they have breakfast all the time. Think eggs, fruit, grits (double check), bacon, (not the ham, I think). I also think they have a prime rib that may be okay. I am going from memory there. And green beans and corn. Try to focus on the CAN haves, instead of the can nots.

zachsmom Enthusiast

:o

Okay I am new to this too,,, my baby has this,,,

In this web site there is a resturaunt section ... You need to sit at home and look up and investigate resturaunts .. like you do the back of boxes when checking out ingredients.

There are resturaunts that will HELP YOU on your quest. You need to call these places and find out who is able to help you ( accomodate your food diet and prep) and who could ( rather care less if you ate someplace else) there are may places... that can help... you need to log into the section below tis one down a ways .. and see what everyone is saying where to go ... sadly like you have figured ,.,, staying gluten-free is hard work... but it can be done. /// FInding a list of resturaunts ... and say . ah I can go here .. here and here is a great way to start. Disney world can also help if that is a destination. Many places can offer you food .. that is gluten free .. sadly you are going to have to investigate them by probably calling and talking to them .. and then knowing they are safe. He can take you out and you arent home at 12midnight puking because you accidentaly were glutned. it can be doen but go to this websites section on menus and resturaunts... I think that is what it is called ... you will know what Imean when you see it..... good luck

mom2jpb Newbie
Okay so after reading the Gluten-Free Bible I learned celiac's can lay dormant till you're thirty. Which is a few yrs away for me but some of the milder side effects fit. I won't go into detail but I'd started having problems a lil before become pregnant with Sage, my teeth turning yellow, low immune system, RA, and a few other things. So maybe I'm parinoid but I though hey there's a chance that I could have it, and I don't have the money to get tested. I decided to do the diet and stay strict about it for two weeks and see if it made a difference. This really is not easy, I'm fine when I'm at home with Sage but the other night I went out with my honey for the first time in forever and he picks Cracker Barrel. I don't know if I'm just so new to this that I couldn't find anything but I could not find anything on that menu gluten-free. I know he was just being sweet and I was crazy not to say anything but all I thought was, He won't take me out to eat again if I say anything because he'll think he can't. Sorry, mostly I'm just venting. I'm so new to this that sometimes I just feel really confused. Thanks to everyone for listening.

Some of us have some strange stories as to how we came to know we are celiacs. I started the diet because of my autistic son - other parents recommended the diet for him. I did not feel that it was fair to put him on restrictions that I was not on myself. For years I had trouble with abdominal cramps, migraines, arthritis. Five days after stopping gluten, all the symptoms began to clear up. I had one biscuit with gluten (it was supposedly gluten-free) and lost a pint of blood from my colon. Got the blood tests - positive all around. Got the colon biopsy - positive. My son isn't gluten or casein free yet - he splits time between his dad and I. I am hopeful that, after the first of the year, I can get him on the diet. His favorite foods were macaroni and cheese, milk, Cheetos, oatmeal cookies, and pudding cups. Now he gets corn pasta with soy cheese, soy or almond milk, Tings, homemade oatmeal cookies using tapioca flour, and tapioca pudding made with almond or soy milk. As long as the food is in a familiar bag, cup or container, he is fine. He has recently developed a preference for Blue Diamond Almond crackers - he used to eat Ritz from time to time, now he won't touch them. One of my ancestors was a Cherokee medicine man. His method of treating/curing illness - try it, if it works stick with it. I think he would agree with avoidance of gluten. I don't eat it, I'm not sick. I eat it, I'm sick.

Sage'sMommy Newbie

Thank You Everyone For Your Suggestions. They've been really helpful. We recently tried Ihop with the little one in tow and they were amazing. They had no problems working with us, made us an omelite using skillet instead of grill and didn't add any pancake batter. Absolute sweethearts. And the more I'm on this diet the more I'm seeing results, even my faimly say they are seeing them as well. Accidently had some gluten last night and I thought I was going to have to hug a trash can all night. So, I think it's pretty safe to say that Sage got it from me. Once again, thank you everyone. It's always nice to know that your not alone in this. Love and Thanks, Becca

taweavmo3 Enthusiast

I'm in the same boat.....tried the diet before getting tested, and now I'm too scared to even attempt a gluten challenge. My symptoms weren't classic like my daughter's, but I've had various problems ever since I was little. The biggest one being that I have been very anemic for years and years despite taking a ton of iron. My brother is the one with all the gut issues, but he refuses to believe that he has a problem (despite the fact that he vomits and has D on a regular basis..argh). But I digress, lol.

I've been strictly gluten free for over 6 months now, and I don't think I'll ever get tested. I don't want to go back to gluten and risk causing more problems. Plus, I really don't want it on record anywhere due to health and life insurance......I don't know if it would cause any problems, but I'm sure it doesn't help. I get very sick now if I get glutened, so that's enough proof for me.

You can still go out to eat, it just takes some planning ahead of time on your part. Find your local Gluten Intolerance group (GIG.....someone correct me if I'm wrong about the abbreviations) and see if they provide a list of local restaraunts that are celiac friendly. I've also found that the more upscale the place is, the easier it is to eat gluten free, especially if you can talk to the chef. It's great that your IHOP was so easy to accomodate you....that is one place we haven't even attempted yet, I figured it would be impossible!

We have four kids, so going out to eat is really too much hassle these days anyway. But on nights I really don't want to cook, we do Chipotle (just ask them to change their gloves first) or Pei Wei. We also get roasted chickens from Costco which are awesome.

Good luck to you!


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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