Diagnosis Question

[Riayn]

I got the results of my blood test today and they came back negative for Celiac Disease. However, my doctor is sending me off to a gastroendologist to have more tests done and for him to have a look at my GI tract. I was curious as to whether it is possible to test negative for Celiac on the blood test but have a positive biopsy.

I must admit I was upset that it came back negative as I was hoping that was the answer to all my health concerns, but it may be that I have to keep on looking.

[Guest nini]

yes it's entirely possible, a lot of people on here have had that happen. But the other thing to keep in mind is that even if your biopsy comes back negative, that doesn't really mean you don't have it either. As damage could be sporadic or in early stages. So, regardless of the results of your tests, after your biopsy is done, go ahead and try the diet and see if it helps. Positive dietary response is the most valid indicator anyway, and honestly it doesn't matter if it's Celiac, Gluten intolerance or whatever, if you feel better off gluten then stay off gluten. You don't need a Dr.s permission to eat gluten free.

If the results of your tests are positive then it's positive, but a negative just means "not positive" or we didn't find anything yet. Lots of people have had negative tests many times, been told they don't have Celiac and to continue eating wheat, only to continue to get sicker and then end up with full blown villous atrophy as well as multiple other autoimmune disorders that require medication or treatment for the rest of their lives.

If you feel better off gluten, then gluten is poison to your body and you need to eliminate it completely, it's that simple.

[kasia]

Hi,

Yes I did. Fortunately my biopsy results came back before the blood test (had blood on National Health & they lost them, but decided to go privately to see GI as I felt so rough).

So it's definitely possible - I posted the same question a while back & got some great replies.

Good luck

Kate