Here Is A Good One.. Baby Tests Negative So Dad Thinks Baby Is Fine.

[zachsmom]

Hahahha here is a good one....

My husband thinks I should just feed our baby "whatever" and see what makes him throw up... because according to him because the celaic test came back NEGATIVE ... he technically does not have this .. because of that negative out come... and I am a bad mom because I am not just giving him NEW VEGGIES and other foods... ( what ever my husband thinks looks okay to him???? I am Still feeding him some baby foods. ... to him I am being too obsessed with checking ingredients . I am according to my husband not trying enough new foods. and the baby probably doesnt even have this .. ( so throwing up when given wheat is my imagination... yeah what ever. )

I thought Someone here could understand what I am going through ... I swear I live with a alzheimers patient. I have explained this over and over... that due to the early age and suspicion of Celiacs ... he vomits when he eats wheat. hello .. that the test would be negative due to the fact I stopped feeding him wheat ...( the doctor did the celiac panel anyway) I f I cant tell whats in the food ... I do no feed it to the baby ... my husband is never the one any more who helps hold a vomiting baby for three hours. So The kid only has 6 front teeth... no chewing ones. ..so many foods are not appropriate . I feel that due to the circumsatances... if he is biopsyed .. it will come back negative for celiacs.. he is not getting wheat... but for something else... I can see getting it done. I wont feed him gluten... I might be a bad mom but sue me.. then .. you can get canser if you eat wheat after being intolerant to it... // My husband is something else. I have showed him a book of okay stuff for the baby to eat... the two sets of parents are supportive.. but my husband needs to go when I go to the doctors... and listen for him self that I am not crazy... some day... I swear... Calgon take me away... heck just give me the bottle ( lol) * drinking calgon will make you so sick .. Just kidding about drinking it )

[plantime]

You are right about the tests coming back negative. Since you have not been feeding the baby gluten, no damage has been done. Even with non-celiac babies, I didn't feed them anything without reading the labels first! Your husband does not have to take care of the baby when it's sick, nor does he go to the doctor with it, so he does not see, and therefore does not believe, what you are saying. You need to stick to your guns, your baby's health depends on it!

[tarnalberry]

keep a food/reaction log. don't expect him, or youself, to go off of memory. then you can *prove* the connection.

[zachsmom]

I know that there is a connection.... he isnt going to persuade me .. otherwise...

[CantEvenEatRice]

I know that there is a connection.... he isnt going to persuade me .. otherwise...

People think I am crazy too when I keep finding new things my son is reacting to. But you cannot ignore full body rashes after eating something. Some think it is just dry skin due to winter. For example, if he eats peas, he will breakout within minutes. I think children with Celiac are just more sensitive to other foods. I have Celiac and I can barely tolerate any foods at this point. You are a great mom and doing a great job! Just keep reminding yourself that you are keeping your child healthy. I went 25 years undiagnosed and have hypothyroidism, osteoporosis, chronic fatigue, chronic stomach issues.....

[mom2jpb]

Hahahha here is a good one....

My husband thinks I should just feed our baby "whatever" and see what makes him throw up... because according to him because the celaic test came back NEGATIVE ... he technically does not have this .. because of that negative out come... and I am a bad mom because I am not just giving him NEW VEGGIES and other foods... ( what ever my husband thinks looks okay to him???? I am Still feeding him some baby foods. ... to him I am being too obsessed with checking ingredients . I am according to my husband not trying enough new foods. and the baby probably doesnt even have this .. ( so throwing up when given wheat is my imagination... yeah what ever. )

I thought Someone here could understand what I am going through ... I swear I live with a alzheimers patient. I have explained this over and over... that due to the early age and suspicion of Celiacs ... he vomits when he eats wheat. hello .. that the test would be negative due to the fact I stopped feeding him wheat ...( the doctor did the celiac panel anyway) I f I cant tell whats in the food ... I do no feed it to the baby ... my husband is never the one any more who helps hold a vomiting baby for three hours. So The kid only has 6 front teeth... no chewing ones. ..so many foods are not appropriate . I feel that due to the circumsatances... if he is biopsyed .. it will come back negative for celiacs.. he is not getting wheat... but for something else... I can see getting it done. I wont feed him gluten... I might be a bad mom but sue me.. then .. you can get canser if you eat wheat after being intolerant to it... // My husband is something else. I have showed him a book of okay stuff for the baby to eat... the two sets of parents are supportive.. but my husband needs to go when I go to the doctors... and listen for him self that I am not crazy... some day... I swear... Calgon take me away... heck just give me the bottle ( lol) * drinking calgon will make you so sick .. Just kidding about drinking it )

Please, please do whatever YOU think is best for your baby. I hate to sound sexist, but a mother always knows best. Trust your gut. The most important thing you can do in your life is protect your kids. I have an autistic son who is non-verbal, and I have had to trust my gut time and time again - and it has literally saved his life. Your husband may not be supportive, but there are lots of other moms, including me, who are. Hang in there. Please email me if I can help in any way, shape or form, even if it's just to blow off steam. mom2jpb@juno.com

[Guest cassidy]

I'm glad you you are sticking up for your baby. You obviously shouldn't feed him anything that makes him sick and just because the test was negative it doesn't mean that you are crazy or imagining that this stuff is making him sick.

I also wanted to tell you that your picture is the cutest thing ever!

My blood test was negative and my husband didn't understand why I was keeping myself on this restrictive diet when I obviously didn't have celiac. He eventually came around but it is hard enough to have a doctor doubting you and everyone else doubting you and have your own husband not be supportive. I wish I could offer advice, but please keep doing what is best for your son and hopefully your husband will recognize that the baby is feeling better.

[happygirl]

zachsmom,

my favorite line that applies to this is:

Patient "Doctor, it hurts when I do X"

Doctor "Well, don't do X"

Good luck. Your baby is lucky to have a mother like you.

Just remember, just because they tested negative doesn't mean they don't have it, or that they aren't gluten sensitive (which would never show up on a traditional blood test).

[Guest nini]

if he doesn't want to believe you and he wants to feed the baby wheat, make HIM clean up the vomit. Seriously.

Mom's usually know best when it comes to their babies, you are an awesome mom and don't you forget it. My hubby gave me grief in the beginning of trying my daughter on the diet even though her blood test was negative too... But, once he saw the change in her and how sick she got when she snuck a bite of an oreo one day, he no longer doubts that she's gluten intolerant.

Tests in children are extremely unreliable. They are only for sure if they are positive, they can't ever rule it out, ESPECIALLY if you hadn't been feeding him gluten at the time of his testing.

I'm sorry he's being a butt, but hopefully he'll come around. If not, stick to your guns, you know what makes your baby sick, you are in control of the situation here and don't let him beat you down over it.

[Jellieh]

My firstborn was very very ill and we had no idea at the time what it was....we had never heard of this disease. But there was NO denying that he was ill and my husband could see for himself and even pushed me to take him to doctors. Then when my third came along it was not so obvious because she was so much younger. DH thought mabe I was looking for things that werent there. Then she had a biopsy come back negative and of coarse he thought he was right. Well she didnt improve at all and I was at aloss for what to do because I had no support from hubby or her ped. Thankfully ped retired and a new young ped took over and the first thing he said about my 1.5 yr old daughter was that she looked like a celiac child. I couldnt beleive it! Back to the specialist we went put, her on the diet and the improvements were amazing! She is now 8 yrs old and dh is in total agreement of her celiac.

I am a firm beleiver that a child needs BOTH of their parents but sometimes you have to stick to your gut instinct even when you have no support. Hoping he will come around. If he is interested try to get him information to educate him on what you know. Sometimes I find DH needs more than just hearing "my opinion". Just some thoughts.....

[wifeandmomofceliac]

No matter the reasons, it is not BAD to keep your child away from gluten. No one ever got sick from NOT eating gluten. Better safe than sorry, at the very minimum.

I also have a baby that does not tolerate gluten. We have not bothered with tests. We ran our own. He ate gluten, he got sick. He does not eat gluten, he is not sick. Okay by me. He is gluten-intolerant. Diagnosis by Mom. (Luckily in my case, confrimed by Dad, and supported by at least some supporting family members).

Good luck. Stick to your guns.

[zachsmom]

See I knew everyone would get a laugh at what I was going through. ( okay not a laugh just maybe a hug. )

I will not feed this kid any gluten no matter what.. If I dont know how THE FOOD was fixed ... what is in it... how it is prepared ... I WONT FEED IT TO HIM.. Plain and simple. I know why the TESTS came back the way they did.... ME .. I took him off cererals. Plain and simple. You know I have been ( like all of us here ... reading this ) through a lot... and I am not going to let anyone give or tell me differnt .. ( UNTILL NO DOUBT PROOF.. And I will know in my heart what that will be.( a new test that checks geneticaly .. or a new testing approach... BUt ( like when I call my sister long distance and we go over each food chemical inthe foods to give to the baby and she says yes or NO dont give it to him.( she is a food chemist.. ) But I am stuck in the mudd up to my waist on this ... and I am not moving about it . Tests come back Negative ... I think he has it .. and the vomiting after 4 cheerios COME ON ... one baby spoon of oatmeal peaches and apples .. vomiting for 3 hours.. YEAH what ever.. you cannot look into my eyes and say ... HE IS OKAY >>> or tell me ... hey I am bored and lets see what the baby can eat today ... and make him puke ... just so some one can see if he can eat that or get a diagnsis... it takes forever to clear up after being glutened... . Untill there is a better way ... its gluten free,,, and what is going to happen to the hubby is ... all the flour is going to "COME UP MISSING" and he is going to have to adapt to new foods. and I will do what ever it takes ... to make this kid "OKay .. whether its homemaking noodles for hours... or scrubbing toliets to EARN A DOLLAR take him to a specialist... I will do it .. .and with ever ones love here .. I will at least not be afraid and maybe have a smile on my face.while I am scrubbing those toliets... . knowing you guys are supporting me . thanks ... I have learned to be tough ... and not be talked down. My baby has something . untill I know what it is ,,, its gluten-free for him.

[mom2jpb]

See I knew everyone would get a laugh at what I was going through. ( okay not a laugh just maybe a hug. )

Stick to your guns. Your are his best advocate. If it makes you throw up, don't eat it. If you have any doubts about it, don't eat it. There are some terrific gluten-free foods and recipes so there is no reason in the world that the little guy can be happy and healthy AND well-fed. Kudos to you!

[taweavmo3]

I know everyone else has said this, but yes....stick to your guns! It would be ideal to have your husband's support, and hopefully he will come around. My husband is a great father, but even he admits that he doesn't know the kids as well as I do. They don't call it mother's intuition for nothing. I think it's the all nighters that we pull as new moms that sets our instinct firmly in place, lol. It's that instinct that wakes you up the second your baby breathes funny in the other room....and it's the same instinct that kicks in gear when you know something is not right even though everyone around you, even your spouse, is saying it's in your head.

My husband used to be skeptical too, but he has come around now, and is the biggest gluten free advocate you'll ever see! Just keep at it, and hopefully he'll get it. Good luck.

[Kibbie]

You may have to do some sole searching on this.... my husband resisted a gluten free diet with out having the Biopsy performed on my DD. Even though her ttg was at a 73 (CLEARLY Celiac) So we had it done to please him after all she is his kid too. And I religiously fed her 1 saltine cracker a day for 2 weeks knowing I was doomed for vomits ville.

In my world (with an engineer husband who needs clear cut answers to EVERYTHING) I would have to feed my DD gluten and have her tested again and hope for a positive. Or I would just have to listen to him complain about me being overly cautious. (in my house the former is the better choice, it may be different in your house)

Also what has your Dr. said about this... maybe you can get your Dr to "talk some sense" into your husband ;P

Don't get me wrong my husband isn't an overbearing person at all, just very scientific and skeptical. He likes to do WHAT the Dr.s tell him to do plane and simple. I just knew he needed to know what was wrong with our DD to calm him down (he is the worrier in the family not me!)

Kibbs