Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tmj, Ear, Nose And Throat, And Thyroid?

Ksmith

By Ksmith
in Related Issues & Disorders

Recommended Posts

Ksmith Contributor
Ksmith
Posted

Hello,

I was wondering if any of you with thyroid problems also have TMJ or ear, nose and throat problems? I do not know if I have thyroid problems, but I do have sort of a constant chronic "head cold" that is supplemented with TMJ. Just curious if there is a relation between the three. Thanks!

~K

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

I've had all three of those but not at the same time. You might be getting chronic sinus infections and that can be caused by low thyroid (I think). Or it might be due to something else. TMJ might be a separate issue. My TMJ was caused by autoimmune arthritis. Getting treated for that, going on a good paleo diet really handled it. But I had a lot of pain from it.

georgie Enthusiast
georgie
Posted

I think they are linked. I have had TMJ problems as long as I remember, and Hypothyroid. I often used to get sinus infections beore Hypo was treated this year. Have you tried a Google search ?

Ksmith Contributor
Ksmith
Posted
  • Author
I think they are linked. I have had TMJ problems as long as I remember, and Hypothyroid. I often used to get sinus infections beore Hypo was treated this year. Have you tried a Google search ?

I just did a google...seemingly, they're linked! Anyone else had all three issues?

CarlaB Enthusiast
CarlaB
Posted

I have, in fact, my TMJ treatment has been covered by my medical (not dental) insurance. I wore a splint to move my jaw, now I have braces. It's definately been worth the orthodontics as my jaw gives me no more problems.

I have Lyme Disease, so I think those issues are more a result of that than of my gluten intolerance.

dlp252 Apprentice
dlp252
Posted

I have the TMJ and ear/nose/throat issue, but not technically the thyroid although I suspect I DO have an issue with it. No doctor has ever run more than the standard TSH test for thyroid, and I know enough to know that that is not always the best test to run. When I was getting my frequent sinus infections, I did have one ENT doctor that did a clinical trial with thyroid meds, which seemed to help a little, but not much, and he never did any bloodwork, so I doubt I was taking the right dosage. I have recently been tested for adrenal fatigue, which I DO have a problem with and that often goes hand in hand with thyroid issues too.

jerseyangel Proficient
jerseyangel
Posted

I have TMJ--which was diagnosed by an ENT doctor in 2004. He said at the time I was a "classic case". I also had issues with sinus infections, but since I've been gluten-free, I have not had any. Not even a head cold!

I get pain along the left side of my jaw, and some popping of the joint. I suspect this began with some dental work that I had on an upper tooth on that side. Not sure about that, though.

I also suspect thyroid problems, and when I asked my GP and told her about which symptoms made me suspicious, she agreed. I was tested for TSH, T3 and T4 (unfortunately, not Free T3 and Free T4--which I found out about after I was tested). My tests all came back within the normal range. I wish my doctor had thought (or knew) to test for the "Free's". :angry:

I also have a history of thyroid problems in my family.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


georgie Enthusiast
georgie
Posted

Jerseyangel, Donna, You both need the correct testing for Thyroid. Particularly Thyroid Antibodies which show if you have an Autoimmune Thyroiditis - Hashimotos. Once you have one autoimmune disease ( eg celiac) you are at risk of having others. Testing TSH alone won't show that problem all the time. And FREE T4 and FREE T3 show a lot too.Both results should be mid range or high range ..... not sitting at low normal. Autoimmune diseases are genetic - so often show up in familes.

If you go to stopthethyroidmadness you will get a lot of info. And they have good Docs too - so can help you. Mary Shoman has a good site too and a list of ways to get tested and treated. It may take a bit of shopping to find an answer but its worth it.

I have adrenal fatigue too. It goes with low Thyroid a lot. We burn ourselves out - trying to manage. Mr Dr is treating me with low dose cortisone to rest and heal. The evidence from 'Safe Uses of Cortsil' Dr Jeffries is well researched and over 40 years of research he has developed a plan that appears safe and seems to work. But you need a Dr that has read the book or has low Thyroid herself ! :lol: www.drrind.com has developed a temperature chart that dx hypo and /or adrenal fatigue. I have been dosing to that and getting good results.

dlp252 Apprentice
dlp252
Posted
Jerseyangel, Donna, You both need the correct testing for Thyroid. Particularly Thyroid Antibodies which show if you have an Autoimmune Thyroiditis - Hashimotos. Once you have one autoimmune disease ( eg celiac) you are at risk of having others. Testing TSH alone won't show that problem all the time. And FREE T4 and FREE T3 show a lot too.Both results should be mid range or high range ..... not sitting at low normal. Autoimmune diseases are genetic - so often show up in familes.

If you go to stopthethyroidmadness you will get a lot of info. And they have good Docs too - so can help you. Mary Shoman has a good site too and a list of ways to get tested and treated. It may take a bit of shopping to find an answer but its worth it.

I have adrenal fatigue too. It goes with low Thyroid a lot. We burn ourselves out - trying to manage. Mr Dr is treating me with low dose cortisone to rest and heal. The evidence from 'Safe Uses of Cortsil' Dr Jeffries is well researched and over 40 years of research he has developed a plan that appears safe and seems to work. But you need a Dr that has read the book or has low Thyroid herself ! :lol: www.drrind.com has developed a temperature chart that dx hypo and /or adrenal fatigue. I have been dosing to that and getting good results.

Thanks Georgie - I've actually looked around at www.stopthemadness.com a bit...it's a great site. I think I even printed the temperature chart, but not sure where I put it, lol. I do know that I haven't been feeling well for several days and have been taking my temperature at home with both a basal thermometer and one of those digital ones, and both have registered me between 96 and 97.7 at any time I've taken it. Yesterday at the doctor's office I registered 98.2 (on a diigtal) though.

georgie Enthusiast
georgie
Posted
Thanks Georgie - I've actually looked around at www.stopthemadness.com a bit...it's a great site. I think I even printed the temperature chart, but not sure where I put it, lol. I do know that I haven't been feeling well for several days and have been taking my temperature at home with both a basal thermometer and one of those digital ones, and both have registered me between 96 and 97.7 at any time I've taken it. Yesterday at the doctor's office I registered 98.2 (on a diigtal) though.

Those temps are not good. They warrant some further testing. Hopefully you can convince your Dr on this :lol: Is this the site for temps that you were looking for ? www.drrind.com

Basal temp = thyroid. take that each day and graph it.

Take 3 x temps through the day. Get an ave from those 3 figures and graph that one reading.

Graph has 2 lines. One is thyroid. One is adrenal but also thyroid. Thyroid is good when PM temp is 98.6. Adenal is good when it doesn't fluctuate more than 0.2 from day to day. This is info I learned from STTM and have been using to get well this year. You simply keep slowly adding Armour until that graph stabilises. If adrenal - add adrenal meds. Its so simple that most Drs get scared :lol:

dlp252 Apprentice
dlp252
Posted
Those temps are not good. They warrant some further testing. Hopefully you can convince your Dr on this :lol: Is this the site for temps that you were looking for ? www.drrind.com

Basal temp = thyroid. take that each day and graph it.

Take 3 x temps through the day. Get an ave from those 3 figures and graph that one reading.

Graph has 2 lines. One is thyroid. One is adrenal but also thyroid. Thyroid is good when PM temp is 98.6. Adenal is good when it doesn't fluctuate more than 0.2 from day to day. This is info I learned from STTM and have been using to get well this year. You simply keep slowly adding Armour until that graph stabilises. If adrenal - add adrenal meds. Its so simple that most Drs get scared :lol:

Thanks Georgie - yep, I think that was the site...I found a link on the stopthemadness site I think, or maybe it was from another thread here in which you posted. I forgot to ask the doctor today if they even test for thyroid (it's sort of an alternative clinic)...I'll ask Friday for sure.

Ksmith Contributor
Ksmith
Posted
  • Author

I have yet to see my temp. go above 97.8--but that is right one the border, right? Sometimes lower--like 97.3. I'll have to talk about doing a temperature graph with my ND...although, is 97.8 even really worth worrying about?

georgie Enthusiast
georgie
Posted
I have yet to see my temp. go above 97.8--but that is right one the border, right? Sometimes lower--like 97.3. I'll have to talk about doing a temperature graph with my ND...although, is 97.8 even really worth worrying about?
Is that basal temp or anytime through the day temp ? Its a bit low. May still be worth checking. It should be 98.6 during the day.

Thanks Georgie - yep, I think that was the site...I found a link on the stopthemadness site I think, or maybe it was from another thread here in which you posted. I forgot to ask the doctor today if they even test for thyroid (it's sort of an alternative clinic)...I'll ask Friday for sure.

Make sure they do all the thyroid tests. And get your results as paperwork so you can 2x check !

Ksmith Contributor
Ksmith
Posted
  • Author
Is that basal temp or anytime through the day temp ? Its a bit low. May still be worth checking. It should be 98.6 during the day.

That is during the day...but it usually is lower during the day than in the morning which is really weird...Thanks!

jerseyangel Proficient
jerseyangel
Posted
Jerseyangel, Donna, You both need the correct testing for Thyroid. Particularly Thyroid Antibodies which show if you have an Autoimmune Thyroiditis - Hashimotos. Once you have one autoimmune disease ( eg celiac) you are at risk of having others. Testing TSH alone won't show that problem all the time. And FREE T4 and FREE T3 show a lot too.Both results should be mid range or high range ..... not sitting at low normal. Autoimmune diseases are genetic - so often show up in familes.

If you go to stopthethyroidmadness you will get a lot of info. And they have good Docs too - so can help you. Mary Shoman has a good site too and a list of ways to get tested and treated. It may take a bit of shopping to find an answer but its worth it.

I have adrenal fatigue too. It goes with low Thyroid a lot. We burn ourselves out - trying to manage. Mr Dr is treating me with low dose cortisone to rest and heal. The evidence from 'Safe Uses of Cortsil' Dr Jeffries is well researched and over 40 years of research he has developed a plan that appears safe and seems to work. But you need a Dr that has read the book or has low Thyroid herself ! :lol: www.drrind.com has developed a temperature chart that dx hypo and /or adrenal fatigue. I have been dosing to that and getting good results.

Georgie,

I wanted to thank you for this information.

I'm having surgery (unrelated) in 2 weeks. After that is all over and done with, I plan to persue this further. I have checked out the website you suggested. It's very interesting and informative.

Thanks again!

georgie Enthusiast
georgie
Posted
That is during the day...but it usually is lower during the day than in the morning which is really weird...Thanks!
Does that mean more adrenal than thyroid ? Have you tried asking the STTM forums ? They have an adrenal section that helped me a bit.

I wanted to thank you for this information.

I'm having surgery (unrelated) in 2 weeks. After that is all over and done with, I plan to persue this further. I have checked out the website you suggested. It's very interesting and informative.

Good luck with your surgery! I am happy to try and help a bit. Would hate to stand by and say nothing when I can see so many are not being tested or are being treated like I was. 30 years of CFS when all I needed was thyroid meds !

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later. The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied...
    2. knitty kitty
      - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too. I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy). Niacin has been used since the 1950's to improve dermatitis herpetiformis. I try to balance my iodine intake (which will cause flairs...
    3. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt. I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,258
    • Most Online (within 30 mins)
      7,748
    Tdodge
    Newest Member
    Tdodge
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By knitty kitty · Posted

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.