Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sodium Levels Very Low


SusanK

Recommended Posts

SusanK Newbie

Please help,

I was very sick, ended up in the hospital. They said it was because my sodium level was dangerously low. After many, many test they can not find any reason. I don't want to feel that bad again. Has anyone had this problem? Do you know if it is linked to Celiac? Doctors just ask if you are staying on the diet and that the end to that.

Susan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sunshinen Apprentice

I don't know if it is connected. But my sodium levels were always low before I went gluten free. I have not had any tests since to see if they are normal now.

loomis Rookie

bad diarhea can cause low sodium levels because you lose electrolytes and water during bowel movements. When i tried to induce labor using castor oil i had horrible diarhea and my sodium levels were very low.

georgie Enthusiast

Low Sodium, or a Sodium / Potassium imbalance can be caused by a few things. Did your Dr run some tests ? Thyroid people can get low sodium, and it can be a sign of Hypopituitarism and Hypoaldosteronism. Some of your tests should have been for low alderosterone ,and adrenal fatigue.

Aldosterone is a steroid secreted by the cortex of the adrenal gland. It is

the most potent hormone regulating the body's electrolyte balance.

Aldosterone acts directly on the kidney to decrease the rate of sodium-ion excretion (with accompanying retention of water), and to increase the rate of potassium-ion excretion.

Deficiencies of aldosterone include low to very low blood pressure and high pulse due to lower blood volume from lack of sodium, excessive urination, desire to eat salt, dizziness or lightheadedness on standing, and palpitations, a pale, hollow face, a drowsy, absent-minded look, Severe cases may lead to high potassium and low sodium in blood tests. When the adrenals are not making aldosterone, renin, (a kidney enzyme), increases, but low aldosterone can also be caused by lack of renin enzyme. Without enough renin, angiotensin I and II can't be broken down into enough aldosterone and this is called hyporeninemic hypoaldosteronism.

TestyTommy Rookie

The same thing happened to me about 2 years before I was diagnosed with celiac. Eating gluten made me very thirsty, and I drank so much water that I ended up in the hospital with hyponaetremia (low sodium). It is a very serious condition, and the ER doctor who figured it out (only after I returned to the ER twice and refused to leave) told me I was a few hours away from going into a coma and probably suffering brain damage.

Eat plenty of salt. Drink Gatorade instead of water. I make an electrolyte drink with 1/3 cup fresh lemon or lime juice mixed with a quart of water and a little stevia for sweetness (to avoid all the sugar in Gatorade). There are also electrolyte capsules that you can get. They contain mostly salt, but also other minerals (potassium, magnesium, calcium) that mirror the electrolytes in your blood. Long distance runners use them when they drink lots of water on long runs. They're cheaper, healthier and lighter than Gatorade.

Mtndog Collaborator

My sodium tends to run a bit low. I'm sorry you got so sick.

If you drink a lot (and pee a lot) that can contribute too.

allison Rookie

I have low blood pressure and was told to eat a high salt diet--

I found canned soups/powdered soups (like Cup O'Soup) to be very helpful. Campbells is chock full of salt.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest AutumnE

My aunt had this from anorexia but I imagine it would happen to a celiac too since we dont absorb either. Unfortunately her's wasnt caught in time. It caused her kidneys to fail and her body shut down.

I would do as someone else suggested try to be sure your not drinking too much although its easy to get dehydrated when you have diarrhea and follow a very salty diet.

  • 9 years later...
LukeDaniel Newbie
On 12/18/2006 at 1:05 PM, SusanK said:

Please help,

I was very sick, ended up in the hospital. They said it was because my sodium level was dangerously low. After many, many test they can not find any reason. I don't want to feel that bad again. Has anyone had this problem? Do you know if it is linked to Celiac? Doctors just ask if you are staying on the diet and that the end to that.

Susan

I had night sweats and my heart pounded very hard for many years, going back to my high school years. The other day my blood sugar dropped and I overheated. I ate some sweets and my blood sugar normalized, but my heart as per usual felt like it was going to leap out of my chest.

 

So the next day I decided to try some Ensure, or Boost, or Readycare,  to boost my elctrolytes and minerals. Sure enough within one half of an hour after drinking a large glass of the stuff, my heart felt better than it had felt in many many years.  Since that day, my heart is right as rain, I don't have night sweats, and people don't ask me anymore why I am so short of breath and they use to ask me why my breath is so labored. So now it has been a week of taking ReadyCare or Ensure and my heart is great, I can't even feel my heart beat in my chest anymore, or just a little. I am no longer short of breath, and my breathing is not labored. To anyone reading this post of mine, you have nothing to lose and everything to gain if you have these  symptoms you might as well try some Ensure, even if your blood tests don't indicate low electrolytes or low minerals, try it anyway, because my blood tests did not indicate I was low in my electrolytes, and yet the Ensure or Boost changed my life, and may have added decades to my life expectancy.

Oh and if you are diabetic like me, you should probably take Glucerna, rather than Ensure. It has

the same electrolytes and minerals, but it is formulated for a diabetic.

LukeDaniel

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.