Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis

barilla

Recommended Posts

barilla Explorer
barilla
Posted

Is it possible to get diagnosed without a positive biopsy? Back in May 06 I was tested for celiac disease. My levels were really high. So I went gluten free because the nurse on the phone said to eliminate gluten from my diet. I felt a lot better,, then my GI has me get a biopsy done knowing I've been gluten free. He asked if I could go back to eating gluten and I said No, that I feel much better without it. And the thoughts of going through all the pains and D.again,, forget it! He still wanted me to get the biopsy. So i did and my results came back negative. So my question is: Is there any other way to get a diagnose without have to go back to eating gluten?

I feel like I am stuck between a rock and a hard place!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Villanfam
Guest Villanfam
Posted

Just ask them to run the same blood tests and see if your levels are lower, now that you are gluten-free.

barilla Explorer
barilla
Posted
  • Author
Just ask them to run the same blood tests and see if your levels are lower, now that you are gluten-free.

I've asked my doctor the last two times I saw him if he could check my levels and he won't. He says he doesn't check them again.

I think I need a new doctor!

Guhlia Rising Star
Guhlia
Posted

If you had positive Celiac test results then you have Celiac. There aren't false positives, just false negatives. In addition, you stated that your health improved greatly. This is diagnostic proof in itself.

SillyBoo Newbie
SillyBoo
Posted

I was diagnosed based on the blood test (Gliadin IGA 106, normal is <25), my debilitating symptoms, and positive response to the gluten-free diet. My doctor didn't think the biopsy was necessary - she also knew that I didn't need biopsy results to convince me to stick with the diet. Yup, maybe a new doc is a good idea.

Guest Villanfam
Guest Villanfam
Posted

Yeah it sounds like you do need a new Doctor, but if you are telling him point blank "Run the tests again." he has to. If you went in there and said "I think I have leukemia/an ulcer/strep throat/GERD/whatever, test me for it." He doesn't have to agree with you, he just has to do it. It's not like you are making an unreasonable request. He is working for you, remember that. I'd still look into getting a new Doc though :P

emcmaster Collaborator
emcmaster
Posted

Why do you need a diagnosis? For many of us, being diagnosed with celiac can mean never getting life insurance, having trouble being covered when switching medical insurance companies, etc.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

You have two valid, positive tests (the dietary challenge is one of them), and one invalid negative test. IMHO, you should listen to your body. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,120
    • Most Online (within 30 mins)
      7,748
    SANDY WENMAN
    Newest Member
    SANDY WENMAN
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • captaincrab55
      Heat intolerant... Yikes

      By captaincrab55 · Posted

      Hi Colleen H,   I suffered with the pins and needles/burning feeling in my legs and feet for at least  6 years until my Nephrologist figured out that I had to go on a low salt diet.  He said my kidneys weren't strong enough to remove the salt.  The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option.  On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away.  Good Luck and hope this helps.  
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Yes this is very frustrating for me ... not sure what to think.  Feels like I'm having reactions to a lot of things  Now applesauce?? I don't understand 😞 
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Heat intolerant... Yikes

      By Colleen H · Posted

      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.