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Is It Normal?


GlutenWrangler

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Guest motherof6

I've never taken Probiotics, but my 7 yr old daughter is. Every morn we fight with her about going to school cause she says she doesn't feel well. Its hard to know what is for real and what is she just doesn't want to go. (she is having friend problems as well). Would making her take them before bed eliminate that? She seems fine when she first gets up.

Jodi


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GlutenWrangler Contributor

Try having her take it after a meal the day before. It does take the body a while to adjust, so how long has she been taking them?

NoGluGirl Contributor
I've never taken Probiotics, but my 7 yr old daughter is. Every morn we fight with her about going to school cause she says she doesn't feel well. Its hard to know what is for real and what is she just doesn't want to go. (she is having friend problems as well). Would making her take them before bed eliminate that? She seems fine when she first gets up.

Jodi

Dear motherof6,

My mother and I used to fight all of the time because of this. She just shoved me out the door and said "You'll be fine." She was not the one who was queasy and no one believed her. I take probiotics, and can tell you, they should do her no harm. The bacteria in your stomach multiplies every half hour. Some people notice a difference immediately, some do not for a while. It will also prevent her from getting food poisoning and stomach bugs. If she can have yogurt, make sure to find one that has live cultures. Those Yoplait Whips are really good and have them!

Sincerely,

NoGluGirl

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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