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Weakness After Eating


annacsmom

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annacsmom Apprentice

My daughter has been gluten free since late August. One of her most debilitaing symptoms of celiac was complete muscle weakness, especially after eating. She is now home from college on break, and after a full meal she still has to immediately lay down due to this incredible weakness. I was hopeful that this would have gotten better by now. She did say that when she only eats small bits at college, it is not as bad. Is this a problems with metabolizing carbs, sugars?? She had a glucose tolerance test in August, which was key in getting her celiac diagnosis, because her glucose levels remained flat, which meant malabsorption. Does anyone else have this problem?


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Katie618 Apprentice
My daughter has been gluten free since late August. One of her most debilitaing symptoms of celiac was complete muscle weakness, especially after eating. She is now home from college on break, and after a full meal she still has to immediately lay down due to this incredible weakness. I was hopeful that this would have gotten better by now. She did say that when she only eats small bits at college, it is not as bad. Is this a problems with metabolizing carbs, sugars?? She had a glucose tolerance test in August, which was key in getting her celiac diagnosis, because her glucose levels remained flat, which meant malabsorption. Does anyone else have this problem?

has your daughter been test for iron deficiency? i know before i was diagnosed all i wanted to do was sleep... after being dx and going on an iron supplement i started to regain some energy (but still do feel tired often) it takes a while to start feeling better.. i started to in the summer (i was sx in may 06) and started to relapse, celiacs sometimes can develop secondary lactose - i cut out milk, cheese, yogurt (anything that is made from milk) and felt a lot better (somtimes i cheat, and totally regret it afterwards!!!) maybe have your daughter cut out milk product for a week and see how she feels-- look for a gluten-free vitamin too.. may help boost her immune system make her feel better

i know where your daughter is coming from, i'm a college student too, got dx in may and had the whole summer to figure it out and still went to school feeling sick. my friends are really good about it -ask questions, try to help out with cooking and snacks- they want to make me feel apart of it all... but i definately miss going to parties and just drinking the beer there, going out for food (wings, pizza) i hope she feels better!!! ((good luck to you too!! i see through my mom that being a parent of kid with celiac is just as stressful and hard!)

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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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