Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here With A Few Questions :)


mykdsmomy

Recommended Posts

mykdsmomy Newbie

Hi there. I'm so glad I found this forum and I have a few questions if you dont mind :)

I have dealt with IBS and some undiagnosed autoimmune issues for some time now. I've had autoimmune stuff since I was little but when I turned 18, I began to have IBS symptoms as well as depression.

I asked the dr. to run a celiac test a few months back and it came back normal but I'm not convinced. Is it possible to have a gluten intolerance but not have it show up in a blood test? I'm really thinking of going gluten free (i've been doing a lot of research). I CRAVE bread products constantly and tend to have a dairy intolerance and an oat intolerance but I dont notice huge problems after eating say a cracker or piece of bread.

Is it worth it to go gluten free for a while and see how I feel? Is it truly possible to have gluten problems regardless of what blood tests say? Thanks so much for any help. I'm just at the end of my rope right now :(

I also had my gallbladder out last year and since then have developed a fatty liver and borderline pre diabetes along with "liver sontes" it's just getting out of control and the dr's dont know what to do anymore :( TIA

Judy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Yes, it is possible to be gluten intolerant and not have it show up in the blood tests. Since you've already had the testing, you may want to give the diet a try for a few months. My doctor did my blood tests and endoscope AFTER I went gluten-free, so we both figured it wouldn't show anything, but he did say that diet is a valid indication. (But without the positive test results, he would not diagnose me with Celiac.) I ended up having my testing done at Enterolabs, who uses stool testing to find antibodies for gluten and a handful of other things.

Guest cassidy

Yes, it is very possible to have celiac or gluten intolerance and have a negative blood test. The blood test is only about 50% accurate. You can certainly try the diet and see how you feel. You probably need to give it a good month of being very strict. If you have a problem with gluten you should feel better by then.

There is great info here and I hope that you find the answers that you need.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,627
    • Most Online (within 30 mins)
      7,748

    Phyl4546
    Newest Member
    Phyl4546
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.