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Triangle Support?

SouthernCeliacGirl

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SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted

Is there a support group in the triangle (Raleigh/Durham area)?

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phakephur Apprentice
phakephur
Posted

There is, but I don't think it's very active.

Here's a link

Open Original Shared Link

If you don't get a reply when you contact them, try this e-mail instead warli001@duke.edu

Sarah

  • 3 weeks later...
SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted
  • Author

Still trying to find people in Raleigh? Anyone out there??

SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted
  • Author

Anyone from the Raleigh area? The support group here isn't very active, so I'd love to meet some new people.

olalisa Contributor
olalisa
Posted

Welcome!!

I'm from the Raleigh area and tried to contact the TGIG group numerous times. I finally emailed their webmaster after the other contact person never replied and he did write back. He basically said that the group isn't active (lack of attendance/interest) and that the leaders were just burned out. I'm trying to decide if I have enough time/energy to try to breathe life into an official support group or if some of us should just maybe meet informally from time to time. Whaddya think?

ladydi Newbie
ladydi
Posted

Hi

I am from Apex and would like to get to know some fellow celiacs also. Would be glad to be a part of an official or unofficial group.

Diane

olalisa Contributor
olalisa
Posted

Welcome, Diane! and check your email :)

Hey...we have three. that's enough for a group, right?

Let's do this thing!

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  • 3 weeks later...
SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted
  • Author

I haven't been on here in a while b/c I was frustrated with getting no replies, but I would love to meet you two! I'm not sure yet how to send an e-mail through this, but once I figure it out I'll send you one. Hope to talk to you soon!

Lisa Mentor
Lisa
Posted

Hey, don't forget about me.

I am in Edenton (about two hours east of Raleigh).

SouthernCeliacGirl, I am sorry that you did not feel welcome here or ignored. But that is not the first time that I have heard that. :( Try it again, perhaps it will be different. Tarheels are growing in numbers!

Lisa

  • 1 month later...
MrsWufie Newbie
MrsWufie
Posted

I'm in Cary and would LOVE a suppport group or even just a group to bounce ideas and food finds with (like some yummy NO GLUTEN cheese puffs I found at Kroger).

I'm so new to this and feel (minus the two books I got at Borders and a supportive husband and family) kind of alone with this.

Thanks!

~B

Lisa Mentor
Lisa
Posted

B:

This is the best support group that you can find. Everyone here on this site is wonderfully informative and the rule here is that there are no stupid questions. Everything that you could possible want/need to know is here.

The recipe section is boundless.

Welcome and always feel free to ask away.

Lisa

ladydi Newbie
ladydi
Posted
I'm in Cary and would LOVE a suppport group or even just a group to bounce ideas and food finds with (like some yummy NO GLUTEN cheese puffs I found at Kroger).

I'm so new to this and feel (minus the two books I got at Borders and a supportive husband and family) kind of alone with this.

Thanks!

~B

You're not alone! I have been gluten free for about 2 1/2 years now and it gets to be a lot easier.

We are very lucky to have Whole Foods and Trader Joe's as you said, but I have found that buying my bread mixes etc from Amazon is even easier. I also get a lot of flours from the Asian Market at South Hills. Of course, this all depends on how much baking you like to do. Lowes foods on Kildaire Farms Road carries a small selection in their frozen foods, waffles, Amy's frozen meals and breads.

There are a few of us locally that have said we'd like to get together, but have not done it yet. Busy lives of course. Ask any questions you have and I will be pleased to help.

  • 4 weeks later...
UNCHeel Rookie
UNCHeel
Posted

I'm here in N.Raleigh so if you all get together please let me know.:)

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    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

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    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
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