Body Pain

[CatandCanary]

Hi Everybody,

I would like to talk about pain, not just a little pain but all over the body pain.

I have pain all over. I have been taking pain releavers from the doctor.

What is causing this and is there something I can do to make it better. It wakes me up in the morning and in the middle of the night. Could I be eating something wrong. Can drinking milk cause this? If I switch to Soy milk, how much soy in the diet is safe?

Any help at all would be great.

Thanks

Cathy

[Ursa Major]

I used to have terrible all over body pain, requiring me to be on codeine 24 hours a day for five years. Yes, dairy could be a problem. So could soy, though. I don't think that soy milk is safe for anybody.

My joint pains and gastrointestinal problems were caused by lectins (of which gluten is one), and the allover body pain was caused by salicylates. If you want to find out more, just follow the links in my signature.

My pain would wake me in the night as well, and I'd wake up feeling like I had been run over by a truck. I tried to manage without pain killers for most of my life. But eventually that wasn't possible any more. All doctors can ever think of is to cover up symptoms with painkillers, rather than looking for the cause of the pain.

I found the cause. Ever since I've eliminated all the food I am intolerant to, I have not needed the pain killers (or only rarely).

[Guhlia]

Milk could possibly cause these symptoms, but it would be best to ensure that you eliminated all gluten from your life first. Have you checked all of your makeup, shampoo, soaps, lotions, hairspray, mousse, dishsoap, dishwasher soap, household glues, art/craft materials, etc? Do you have other family members in the house that aren't gluten free? Are you still using the same toaster that you used pre-gluten-free? Did you thoroughly scrub out your microwave, oven, and toaster oven since going gluten free? Are you eating any meals out? Do you share a computer/telephone/fax machine with others at work? Do you share a car with anyone who eats (gluten) on the run? I know it all seems overwhelming, but feeling better is so worth it.

If you've already covered all of those things and you're sure gluten isn't slipping in somewhere, I would consider eliminating other things. Many Celiacs also have other allergies/intolerances. It's not uncommon at all. I hope you figure it out quick. It's no fun feeling crummy.

[CatandCanary]

I used to have terrible all over body pain, requiring me to be on codeine 24 hours a day for five years. Yes, dairy could be a problem. So could soy, though. I don't think that soy milk is safe for anybody.

My joint pains and gastrointestinal problems were caused by lectins (of which gluten is one), and the allover body pain was caused by salicylates. If you want to find out more, just follow the links in my signature.

My pain would wake me in the night as well, and I'd wake up feeling like I had been run over by a truck. I tried to manage without pain killers for most of my life. But eventually that wasn't possible any more. All doctors can ever think of is to cover up symptoms with painkillers, rather than looking for the cause of the pain.

I found the cause. Ever since I've eliminated all the food I am intolerant to, I have not needed the pain killers (or only rarely).

Hi Ursa,

I looked at the information you gave me and I am going to start changing my diet as soon as possible. Please tell me what you eat because it looks like between the differant diets not much.

Could you please let me know what you eat at differant meals so I can get a jump start with this.

I can tell you I am unable to eat any mellons or avacodo and I have bad reactions to a lot of the things on the food list.

Thank you so much for your help.

Cathy

[CarlaB]

Cathy, the symptoms you listed could be gluten intolerance, but if you're not getting better, you should keep looking. I have both gluten intolerance and LYME DISEASE. Your symptoms are actually a fit for Lyme. I have a friend whose daughter was also just diagnosed with it, and she had seizures. Fibro symptoms are commonly caused by Lyme, too.

Go to Open Original Shared Link and Open Original Shared Link for information on testing and symptoms.

I ache all over most of the time like I have the flu ... I'll be seeing my Lyme specialist in January.

I have six kids, too!!

[CatandCanary]

Milk could possibly cause these symptoms, but it would be best to ensure that you eliminated all gluten from your life first. Have you checked all of your makeup, shampoo, soaps, lotions, hairspray, mousse, dishsoap, dishwasher soap, household glues, art/craft materials, etc? Do you have other family members in the house that aren't gluten free? Are you still using the same toaster that you used pre-gluten-free? Did you thoroughly scrub out your microwave, oven, and toaster oven since going gluten free? Are you eating any meals out? Do you share a computer/telephone/fax machine with others at work? Do you share a car with anyone who eats (gluten) on the run? I know it all seems overwhelming, but feeling better is so worth it.

If you've already covered all of those things and you're sure gluten isn't slipping in somewhere, I would consider eliminating other things. Many Celiacs also have other allergies/intolerances. It's not uncommon at all. I hope you figure it out quick. It's no fun feeling crummy.

Hi Guhlia,

I have been finding things as fast as possible and cleaned out the house of anything suspect. I do share my dest at work and wipe everything down when that happens, my husband is gluten free, my pets are gluten free. I can't eat out because it seems nothing works out. I always get a reaction of some kind and it feels like being in food jail. I am so tired of cooking but don't have any way out.

Can gluten realy make your body hurt this bad?

What do you do for the pain when this happens?

Thank you for your help.

Cathy

[CatandCanary]

Cathy, the symptoms you listed could be gluten intolerance, but if you're not getting better, you should keep looking. I have both gluten intolerance and LYME DISEASE. Your symptoms are actually a fit for Lyme. I have a friend whose daughter was also just diagnosed with it, and she had seizures. Fibro symptoms are commonly caused by Lyme, too.

Go to Open Original Shared Link and Open Original Shared Link for information on testing and symptoms.

I ache all over most of the time like I have the flu ... I'll be seeing my Lyme specialist in January.

I have six kids, too!!

Hi Carla,

I was wondering about that years ago when things got bad for me. I love horses and spent most of my childhood on trails in shorts and tank tops no sadles and no bug spray. I asked a doctor about it a long time ago but maybe it is time to ask again? It looks like there is no test, is that correct? How do you find out if you realy have it? I do feel much better after having antibiotics could this be a clue?

Please let me know how to talk to my doctor about this.

Thanks for your help. How old are your children, my youngest is 15.

Cathy

[CarlaB]

Hi Carla,

I was wondering about that years ago when things got bad for me. I love horses and spent most of my childhood on trails in shorts and tank tops no sadles and no bug spray. I asked a doctor about it a long time ago but maybe it is time to ask again? It looks like there is no test, is that correct? How do you find out if you realy have it? I do feel much better after having antibiotics could this be a clue?

Please let me know how to talk to my doctor about this.

Thanks for your help. How old are your children, my youngest is 15.

Cathy

Cathy,

My oldest is 18 and my youngest is 8. I am 43. It's great fun having a large family!!

Most docs will not diagnose Lyme. In fact, mine told me I didn't have it! I had Igenex (the reliable lab in California) send me a test kit and asked my doc to do it. She did the test for me but assured me I didn't have it. Well, my test came back very positive. I've likely had it for 30 years.

Now I'm going to NY to a Lyme specialist ... I have to go that far to get someone who knows how to treat it!! I'm in Ohio, so it's a trip by plane for me, but it's worth it if I'll be getting BETTER!!! There's a lot of info on Open Original Shared Link. I have found the site very useful, though I haven't yet posted there.

Carla

[georgie]

Cathy, Another thing that can cause all over pain is Hypothyroid and I notice you have been dx with that. Do you take Synthroid ? Its just that Fibromyalgia is a symptom of Hypo often, and I am reading all the time that people that switch from Synthroid to Armour and check their adrenal function, and take meds for that if necssary .... get so much better and free of all Hypo symptoms.

I had Fibro and cured it with lots of acupuncture. But now I realise it was my untreated Hypo and Adrenal Fatigue all along.

www.stopthethyroidmadness.com has lots of info if you want to do some reading. Is your Dr testing your Free T3, and Free T4 ?

[Rachel--24]

Ditto about the Lyme and getting tested through Igenix.

I have problems with salicylates and just about everything else. I've eliminated all the problematic foods and eat organic. Its helped with the pain in that I havent taken any meds in almost 2 years. Prior to that I was taking Norco up to three times a day for a year straight.

The dietary changes helped alot but it didnt make sense to me that I should have to live on only 5 safe foods and still not be healthy. I kept searching and got diagnosed with Lyme when I finally saw a Dr. who is knowledgeable about the disease and recognized it as a possibility right away.

I had suspected it in the past but Dr.'s dismissed the idea and would not test me so I gave up on it. I just lucked out in that I ended up being referred to a Dr. who happens to also treat alot of Lyme patients.

Studies have shown that nearly all cases of Fibromyalgia and Chronic Fatigue are actually undiagnosed Lyme Disease. These are not diseases but rather "syndromes" for which the cause is unknown. They are clusters of symptoms that happen to also be the same symptoms caused by Lyme Disease.

I would recommend finding a Dr. who is very knowledgeable about Lyme to get an answer as to whether you might have this or not.

The Dr. I see now specializes in treating Lyme but prior to seeing him NONE of the Dr.'s I saw took this seriously....especially the Infectious Disease Specialist. I was also told that Lyme is rare in CA....which is FAR from the truth. Lyme is actually ALL OVER the state of Ca. and there are many many people here with Lyme Disease.

[CatandCanary]

Cathy, Another thing that can cause all over pain is Hypothyroid and I notice you have been dx with that. Do you take Synthroid ? Its just that Fibromyalgia is a symptom of Hypo often, and I am reading all the time that people that switch from Synthroid to Armour and check their adrenal function, and take meds for that if necssary .... get so much better and free of all Hypo symptoms.

I had Fibro and cured it with lots of acupuncture. But now I realise it was my untreated Hypo and Adrenal Fatigue all along.

www.stopthethyroidmadness.com has lots of info if you want to do some reading. Is your Dr testing your Free T3, and Free T4 ?

Hi Georgie,

I am taking something called Levothroid for Synthroid/L-Thyroxin. I have been told before about Armour and I am going to ask my doctor to put me on that instead. Does Armour cause adrenal function problems? And what kind of meds help with adrenal function? How do they check for Adrenal function? Because I am also tired a lot. I have noticed that my big toenails have bits of black on them that look like brusing and it is not at the part of the nail at the end or edges, do you know if this is from a thyroid problem?

Thank you for your help

Cathy

[CatandCanary]

Ditto about the Lyme and getting tested through Igenix.

I have problems with salicylates and just about everything else. I've eliminated all the problematic foods and eat organic. Its helped with the pain in that I havent taken any meds in almost 2 years. Prior to that I was taking Norco up to three times a day for a year straight.

The dietary changes helped alot but it didnt make sense to me that I should have to live on only 5 safe foods and still not be healthy. I kept searching and got diagnosed with Lyme when I finally saw a Dr. who is knowledgeable about the disease and recognized it as a possibility right away.

I had suspected it in the past but Dr.'s dismissed the idea and would not test me so I gave up on it. I just lucked out in that I ended up being referred to a Dr. who happens to also treat alot of Lyme patients.

Studies have shown that nearly all cases of Fibromyalgia and Chronic Fatigue are actually undiagnosed Lyme Disease. These are not diseases but rather "syndromes" for which the cause is unknown. They are clusters of symptoms that happen to also be the same symptoms caused by Lyme Disease.

I would recommend finding a Dr. who is very knowledgeable about Lyme to get an answer as to whether you might have this or not.

The Dr. I see now specializes in treating Lyme but prior to seeing him NONE of the Dr.'s I saw took this seriously....especially the Infectious Disease Specialist. I was also told that Lyme is rare in CA....which is FAR from the truth. Lyme is actually ALL OVER the state of Ca. and there are many many people here with Lyme Disease.

Hi Rachel,

Great info on all of this, how do you go about getting tested by Igenix?

As I remember one of the people on my street when I was about 13 years old got Lyme from firewood he had in is back yard, I used to feed thier dog and water the lawn for them when he got sick.

Thanks

Cathy

[CarlaB]

www.igenex.com

You can have them send you the kit for testing, then just take it to your doctor to have it done. It has to be "ordered" by the doc, but you can send away for the kit. That's how I did it.

I believe Rachel just went to Igenex as it's close to where she is.

[CatandCanary]

www.igenex.com

You can have them send you the kit for testing, then just take it to your doctor to have it done. It has to be "ordered" by the doc, but you can send away for the kit. That's how I did it.

I believe Rachel just went to Igenex as it's close to where she is.

Hi Carla,

Thanks, I called them and they are closed for the holiday, I will call them asap and order the kit.

Sorry, I missed the info on your first post, just feeling real bad and not thinking real good.

I have one more thing, did having Lyme have something to do with being gluten free for you?

Is it part of having Lyme?

Happy new year!

Cathy

[georgie]

I am taking something called Levothroid for Synthroid/L-Thyroxin. I have been told before about Armour and I am going to ask my doctor to put me on that instead. Does Armour cause adrenal function problems? And what kind of meds help with adrenal function? How do they check for Adrenal function? Because I am also tired a lot. I have noticed that my big toenails have bits of black on them that look like brusing and it is not at the part of the nail at the end or edges, do you know if this is from a thyroid problem?

Cathy, I suspected so. Many of the symptoms you describe are very common for people that take Synthroid ( or the Levothyroid). Armour is so much better for treating every Hypo symptom but you do need adrenal function checked and treated if necessary. Saliva testing is good - as it gives 4 readings over the day. www.canaryclub.com has the tests and you can order them yourself ? Armour doesn't cause adrenal problems but as Armour is a better med - you can feel it working more. So if it pools in your blood without reaching your cells ( which happens if you have low adrenals) you get false hyper feelings and never reach your correct Armour dose.

You need a Dr that knows how to adjust and increase the dose everytime symptoms return and takes temp graphs. You can't dose Armour by blood tests. You dose by symptoms and the blood tests look different.

Isocort can be used for low adrenals. But I take regular hydrocortisone like Dr Jeffries book 'Safe Uses of Cortisol' . That is all my Dr uses. She has low Thyroid herself and her clinic doesn't even USE T4 meds like Synthroid !

Not sure about the toenail. Do you smoke ? My Dad got that from smoking.

[CatandCanary]

Cathy, I suspected so. Many of the symptoms you describe are very common for people that take Synthroid ( or the Levothyroid). Armour is so much better for treating every Hypo symptom but you do need adrenal function checked and treated if necessary. Saliva testing is good - as it gives 4 readings over the day. www.canaryclub.com has the tests and you can order them yourself ? Armour doesn't cause adrenal problems but as Armour is a better med - you can feel it working more. So if it pools in your blood without reaching your cells ( which happens if you have low adrenals) you get false hyper feelings and never reach your correct Armour dose.

You need a Dr that knows how to adjust and increase the dose everytime symptoms return and takes temp graphs. You can't dose Armour by blood tests. You dose by symptoms and the blood tests look different.

Isocort can be used for low adrenals. But I take regular hydrocortisone like Dr Jeffries book 'Safe Uses of Cortisol' . That is all my Dr uses. She has low Thyroid herself and her clinic doesn't even USE T4 meds like Synthroid !

Not sure about the toenail. Do you smoke ? My Dad got that from smoking.

Hi Georgie,

No, I don't smoke.

Thanks for the info on the test I think I will order it asap.

Happy new year!

Cathy

[CarlaB]

Hi Carla,

Thanks, I called them and they are closed for the holiday, I will call them asap and order the kit.

Sorry, I missed the info on your first post, just feeling real bad and not thinking real good.

I have one more thing, did having Lyme have something to do with being gluten free for you?

Is it part of having Lyme?

Happy new year!

Cathy

I suspect that it does. My mom, her brother, and her father all have/had stomach problems, so I think I do have the predisposition to gluten intolerance, though none of them will try a gluten-free diet, so I don't know for sure that they have a gluten problem ... I do suspect it though.

I had a Lyme flare-up that was caused by a stressful situation we had four years ago (much more than normal stress), this is when I got really sick and found not eating gluten made me feel a lot better. I'm still ill, but I know that gluten makes it worse. I think for me it's like the chicken and the egg, I'll never know the whole story. I think it's all interconnected.

Happy New Year!

[CatandCanary]

I suspect that it does. My mom, her brother, and her father all have/had stomach problems, so I think I do have the predisposition to gluten intolerance, though none of them will try a gluten-free diet, so I don't know for sure that they have a gluten problem ... I do suspect it though.

I had a Lyme flare-up that was caused by a stressful situation we had four years ago (much more than normal stress), this is when I got really sick and found not eating gluten made me feel a lot better. I'm still ill, but I know that gluten makes it worse. I think for me it's like the chicken and the egg, I'll never know the whole story. I think it's all interconnected.

Happy New Year!

Hi Carla,

If you feel anything like what I feel, I hope you never have another stressful time again, it just is not worth the pain. I know having a big family and all the things that go with that can be stressful. You do seem to have a great additude about things and are trying to help others. I think that is what keeps me going most of the time, and I'm not to sure what keeps me going the rest of the time.

Take care

Cathy

[CarlaB]

Hi Carla,

If you feel anything like what I feel, I hope you never have another stressful time again, it just is not worth the pain. I know having a big family and all the things that go with that can be stressful. You do seem to have a great additude about things and are trying to help others. I think that is what keeps me going most of the time, and I'm not to sure what keeps me going the rest of the time.

Take care

Cathy

Yes, I will definately avoid stress where I can!! We had a situation where we moved and our house in another state didn't sell. It strapped us financially, we finally ended up moving back! It took another three years for our house to sell. Then I stayed back in an apt. with our oldest for four months until she graduated, while hubby moved here with the other five kids. This was over a 5 year period ...

I generally keep a good attitude about it all, though I occassionally have a meltdown. This must just be God's plan for me ... why fight it? I mean, do what I can to get healthy, but a bad attitude just keeps you sick longer!!

What keeps me going? I wasn't given a choice, this is it! If a big stress comes up again, I will start treating the Lyme again as if it's active! Why wait for the pain?

[loraleena]

Georgie is right on. Also check out Dr.Lowe.com. They specialize in treating fibromyalgia through thyroid treatment.

[michelle marriott]

hi, tes i have pains all the time, i have been on a gluten free for 2 years, but still ill, its very hard to work, but can not get signed off,, i now am gonig on a dairy free diet to see if that helps

[RiceGuy]

Two major things I've found to help relieve the pains were avoiding all nightshade foods, and taking a sublingual B12 supplement. However, it took so long for me to figure out what it was, that there seems to be some nerve damage Slowly it appears to be getting better as I try different things though. I'm about to try a magnesium supplement - in powder form, so I can mix it into my meals just before I eat. This way there won't be any pills for my digestive system to have trouble breaking down.