Anyone Heard From Lynne Tiredofdoctors?

[Eliza13]

Eliza -- I had an entire page responding to you, and I am so discoordinated tonight that I deleted it. Am not typing well at all, either. I will give you my answer in the morning, if that's O.K. Thanks . . . . Lynne xxxooo

Haha Lynn....the suspense is killing me. LOL.

You're a sweety and I look forward to your response.

[Fiddle-Faddle]

Lynne has the best sense of humor of anyone here!!!!

Eliza, I know nothing about ataxia or rheumatoid arthritis, so I apologize for posting in ignorance here. I just wanted to mention that the first thing that popped into my head after reading your post about when you were 7 was--polio???

But that's impossible, isn't it? Or is it? I was told by our pediatrician that the old, "live" oral polio vaccine did cause some cases of polio, and that was why it was replaced with the "inactive" vaccine.

[Mtndog]

It's not that I'm actually FUNNY. It's that my life is just that screwed up!!!!!!!!!!!!!

BULL-Oh-Ney!!!!!!!!!!!!!!!!!!!!!!!!!!!!

You are darn funny!

[VegasCeliacBuckeye]

Lynne,

Mouse and I met up for pizza at Picazzo's again. I had the pepperoni, sausage and jalapeno pizza (and gluten free garlic bread for an appetizer

Mouse had a "white" pizza with spinach, sausage, mushrooms and cheese. They were both awesome, but the garlic bread was especially yummy - especially dipping into the pizza sauce the waiter brought over.

The best part was the end of the meal - the waiter told me they are looking to build a Picazzo's in Vegas in 2007. HOW WONDERFUL!!! I was so excited....this might be bad for the belt-line, but it makes for a happy Chris!

Mouse' husband is a riot as well. We talked about college football. He actually mentioned that OSU would lose to Florida. I was cautiously optimistic - oh well, I guess he was right...

Hope you are feeling better.

chris

[Lisa]

Chris:

Your Pizza description should be banned from this site. I drooled all over this keyboard.

But most of all, I am glad that you were able to meet with Mouse and Pete. This is good.

I am glad that you were able to get together.

Lisa

[VegasCeliacBuckeye]

I have to admit, I had never tried a "white" pizza. I mean, who doesn't put sauce on a pizza?

Boy was I wrong - that sucker was good!

Sorry about the description Judy - it is really a Celiac's dream. The pizza actually tastes like real pizza. They recently told Mouse that they are going to start carrying Bard's Ale as well. A place where we can get pizza and a beer!

[tiredofdoctors]

OKAY THAT'S IT!!!!! WHERE'S MY PLANE TICKET??????????????!!!!!! Pizza and a beer? Chris, don't toy with my affections!!

Eliza -- what you explained sounds remarkably like Guillanne Barre Syndrome. Kids CAN get Rheumatoid Arthritis at age 7 -- I know of an infant that developed it at 8 months. With RA, you would have had an elevated sedamentation rate, which is indicative of inflammation, a positive Rheumatoid factor, and other tests for autoimmune diseases. Guillanne Barre is a virus --which would DEFINITELY explain the elevated white count. It would depend upon the differential in the CBC -- if there is a viral vs. a bacterial shift. Guillanne Barre has exactly the symptoms which you described. It is a virus which causes demylination of the peripheral nerves. Myelin is what makes nerve signals moves smoothly and consistently. If there are places in it that have lapses or scars (as in Multiple Sclerosis), the signals have to "jump" down the nerves -- and it makes the nerves have either decreased or no ability to contract. It can be EXTREMELY painful, but just as importantly, causes the MARKED decreased muscle function. In some instances, it can even cause the respiratory muscles to shut down and patients have to go on ventilators. In some instances, it can take quite some time for this virus to resolve. Sometimes it is faster -- especially if the patient goes on something like Prednisone -- or is in the hospital receiving treatment. Even then, though, it can take a fairly long time to resolve.

Obviously, I can't diagnose anything over the internet, but I'm just giving you a speculation of what first came to my mind when I read what happened to you. Hope this helps . . . . and hope it was worth the suspense!!!

Hugs to you,

Lynne

[Fiddle-Faddle]

I found this on a site about polio--there must be a lot of similarities with Guillain-Barre:

History

The effects of a polio infection have been known since prehistory. Egyptian paintings and carvings depict otherwise healthy people with withered limbs, walking with canes at a young age, etc. It has been theorized that the Roman Emperor Claudius was stricken as a child, and this caused him to walk with a limp for the rest of his life. The first medical report on poliomyelitis was by Jakob van Heine in 1840. Karl Oskar Medin was the first to empirically study a poliomyelitis epidemic in 1890. The work of these two physicians has led to the disease being known as the Heine-Medin disease.

Franklin D. Roosevelt may have contracted polio in 1921Franklin D. Roosevelt may have contracted polio in 1921. The unquestioned diagnosis at the time and thereafter in countless references was paralytic poliomyelitis. Yet his age (39 years) and many features of his illness are more consistent with a diagnosis of Guillain-Barr

[Eliza13]

OKAY THAT'S IT!!!!! WHERE'S MY PLANE TICKET??????????????!!!!!! Pizza and a beer? Chris, don't toy with my affections!!

Eliza -- what you explained sounds remarkably like Guillanne Barre Syndrome. Kids CAN get Rheumatoid Arthritis at age 7 -- I know of an infant that developed it at 8 months. With RA, you would have had an elevated sedamentation rate, which is indicative of inflammation, a positive Rheumatoid factor, and other tests for autoimmune diseases. Guillanne Barre is a virus --which would DEFINITELY explain the elevated white count. It would depend upon the differential in the CBC -- if there is a viral vs. a bacterial shift. Guillanne Barre has exactly the symptoms which you described. It is a virus which causes demylination of the peripheral nerves. Myelin is what makes nerve signals moves smoothly and consistently. If there are places in it that have lapses or scars (as in Multiple Sclerosis), the signals have to "jump" down the nerves -- and it makes the nerves have either decreased or no ability to contract. It can be EXTREMELY painful, but just as importantly, causes the MARKED decreased muscle function. In some instances, it can even cause the respiratory muscles to shut down and patients have to go on ventilators. In some instances, it can take quite some time for this virus to resolve. Sometimes it is faster -- especially if the patient goes on something like Prednisone -- or is in the hospital receiving treatment. Even then, though, it can take a fairly long time to resolve.

Obviously, I can't diagnose anything over the internet, but I'm just giving you a speculation of what first came to my mind when I read what happened to you. Hope this helps . . . . and hope it was worth the suspense!!!

Hugs to you,

Lynne

Thanks a million Lynne! Very interesting. I did some reading on the Guillane Barre Syndrome...this is the first time I've read about it. Interesting that you mention the pain....I remember it hurting soooooooo bad.

These auto-immune illnesses are nothing to joke about. My b/f thinks that Celiac is no big deal and that I should not worry about eating gluten once in a while. He actually thinks that I should just eat the stuff, cause it's "just" an intolerance and "lots of people have diarrhea". My response was that I WILL take it seriously because the stuff makes me cease menstruating, and that alone is enough for me (there's a long list of other crap that happens to me as a result of eating gluten).

I have to schedule an MRI. I missed my appointment back in 2006. Doc is gonna check for pituitary tumour. I'll definitely share those results. Guess I'm lucky to have the opportunity to have the MRI.

The transition between these paragraphs is poor, but I"m getting really tired. LOL.

I'll make sense of it tomorrow. I have a point somewhere in here.

[Mtndog]

Pizza Pizza Pizza! Why is it that all these good places (like In 'n Out Burger) are West of the Great Divide?

Eliza- My friend's mom had Guillian barre Syndrome about ten years back. It was incredibly painful and I believe they thought she was going to die. She ended up recovering and ironically hydrotherapy was part of her PT.

Lynne- You are so knowledgeable in addition to being riidiculously funny!

Lisa- You must stop drooling! We must unite and get this place to come out East!

[tiredofdoctors]

Bev -- thank you VERY much for the compliment. It's funny, when I was growing up, I lived with such a dichotomy of messages about my intelligence. My father's side of the family continually made me feel as though I was not very intelligent, clumsy, gawky, inept, etc. . . . I heard this every Wednesday when I took dancing lessons from my aunt, every Thursday when I took piano lessons from another aunt, then it was further enhanced by my grandmother who said much the same and would then talk about my two cousins who were "brilliant". Even when, at age 15, when I entered the University of Louisville's Music Program, I didn't understand that it meant that I was smart and/or talented!! On the OTHER hand, on my mother's side of the family, my grandmother and grandfather called me "the smart one" -- they had 19 grandchildren, and each sort of had their own "description" . . . one cousin was the "pretty one", one was the "wild one", one was the "funny one" . . . things like that. I thought that being the smart one meant that I wasn't anything else . . . . It's no wonder I grew up such a screwed up individual! Now, though, being told that I'm knowledgeable is the greatest compliment I can get . . . I guess it's because I worked so hard to keep my GPA high and those cords I got to wear around my neck were PROOF that my dad's family was WRONG. Weird, huh?

I guess that's what is so frustrating about the word retrieval problem that I have developed as a result of the damage that was done to my brain by gluten. It makes me feel as though people don't realize that I'm knowledgeable. That's really hard for me to deal with. I feel like I'm back at my grandmother's, stifled and unable to come up with the words to tell her that she was wrong. I'm in front of people, and when the words are RIGHT IN MY BRAIN, but just can't get to my lips, it is beyond frustrating. I would love to give lectures, about Physical Therapy, about Patient / Practitioner Interaction, and about Celiac -- but I am frozen by fear. My biggest fear is that I would have the word retrieval "thing" kick in, and I would look like an idiot in front of a LOT of people. I don't know that my self-esteem could take that. It's pretty frightening, particularly given that it is what I really want to do. Hmmmmm.......

Well, enough whining from what was meant to be a big THANK YOU!!!!!

You are the Pimp Poop -- change that last word, if you know what I mean . . . evidently, according to my kids' friends, it's a HUGE compliment!!!!

Love you,

Lynne