Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 7

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Well I'm on to day 7. Feel pretty good. You should see my stools, picture perfect, I should post an image :lol:

Yesterday was shopping day and we went in highly motivated to find me gluten-free free stuff to eat.

I was actually quite surprised at the way my wife is jumping in there and looking at the labels and acting concerned. I think she's worried, that without some support, I won't stay gluten-free and she's

probably right.

It was quite stunning looking at labels and finding out just how much stuff contains gluten. Virtually all pre-packaged foods contain gluten. All those chicken strips that I like to put on my salad are a no no.

We were able, thru careful label reading, to find me a plethora of good things to eat. Cheese, unprocessed meat and vegetables. Fritos are a good snack as long as you don't pick the Chili Cheese ones. Cottage Cheese, Yogurt, Avacodos, Popcorn...It's all good.

So, it's all good. What typically contains gluten is the processed stuff that we shouldn't really be eating anyway.

One last comment, I have noticed a pick up in energy as well as (dare I say this) libido. Who would've guessed? J

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Glad to hear you're doing well. How are you feeling about the whole Celiac thing now? Is this still a trial period?

kbabe1968 Enthusiast
kbabe1968
Posted

Jerry - I'm on day 4! Newbie, twobie.

I think support is so crucial! My husband is 100% supportive, to the point of doing it with me. Of course, I'm the SAHM who takes care of all the grocery buying and cooking in the house, so they really don't have a choice!!! LOL :D

I can't believe how different I feel in just 4 days. It's astounding to me.

Keep up the good work! HOW COOL!

:D

JerryK Community Regular
JerryK
Posted
  • Author
Glad to hear you're doing well. How are you feeling about the whole Celiac thing now? Is this still a trial period?

I guess time will tell. I'm still not totally convinced that what I'm feeling isn't a placebo affect. Although I don't know how a placebo affect can make my poo better :ph34r:

I do think there is a lot of evidence out there that Gluten is bad for us. How much is hype and how much is reality, I can't even begin to say. In my mind, I want things to be black and white...it's either known bad or known good...I don't like it when there is a gray area....I want to see it, touch it, feel it and know it is real. I want a doctor to diagnose me and say cut and dried YOU HAVE CELIAC. I think for many of us, that's not going to happen. Unless you are starving to death and everything you eat is

running right thru you, medicine will likely just consider you a hypocondriac.

The bottom line is, I will listen to my body and do what makes me feel best. At worst, the gluten-free diet isn't going to hurt me, because I'll eat less of those bad processed foods. At best I'm avoiding something that could potentially cause me great harm.

I've committed to giving it six months. Am I likely to continue beyond that? Sure, especially if at the end of six months I eat gluten and start feeling bad again. Hope that was an o.k. answer. j

Electra Enthusiast
Electra
Posted

Man my hubby is so NOT supportive and it's killing me. He tries to be so he asks things like "Can you have that" but then when we were out the other day shopping for furniture for an hour I kept saying I'm so starved and then he pulls into McDonalds and says "You don't mind if I eat here do you" I was pissed just because he knows I'm the one with the problem, but how in the world am I suppose to be starved for hours and then he gets to eat in front of me UG!! I ended up getting fries and hoping they are safe, but he gave me the runaround and really didn't want me eating them BAHUMBUG!!! I have no idea how I'm going to get through this!!

CarlaB Enthusiast
CarlaB
Posted

Jerry, I saw all those changes, too ... including the increased libido ... didn't realize men needed an increase there!! ;)

You are right, the stuff we can't eat, we shouldn't be eating anyway!!

Ians makes gluten-free breaded chicken nuggets. I don't know if it's breaded ones you use on your salad, but these are good. I buy them at Wild Oats.

Angie, the McDonald fries are safe, except for the high probability of contamination (I personally wouldn't risk it). Most fast food fries ARE NOT safe though because they're cooked in the same fryer as the wheat coated items. You need to check.

Next time hubby does that, say, "Yes I mind, I'm as hungry as you are, let's go somewhere we can both eat." You need to stand up for yourself, then he'll start thinking ... when we're starving many of us get a little self-centered! Chick-fil-a waffle fries and grilled chicken salad (no croutons, no sunflower seeds, get the tortilla stips instead) are safe. So is Wendy's chili and Frosties. You have to ask at each Wendy's whether they have a dedicated fryer for their fries, and watch how they're preparing food to see if you need to worry about their fries being contaminated (if the nuggets are near them, I wouldn't risk it).

Guhlia Rising Star
Guhlia
Posted
Next time hubby does that, say, "Yes I mind, I'm as hungry as you are, let's go somewhere we can both eat." You need to stand up for yourself, then he'll start thinking ... when we're starving many of us get a little self-centered! Chick-fil-a waffle fries and grilled chicken salad (no croutons, no sunflower seeds, get the tortilla stips instead) are safe. So is Wendy's chili and Frosties. You have to ask at each Wendy's whether they have a dedicated fryer for their fries, and watch how they're preparing food to see if you need to worry about their fries being contaminated (if the nuggets are near them, I wouldn't risk it).

You need to check with each Chick-fil-a also as some do not use dedicated fryers. Ours doesn't.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
So, it's all good. What typically contains gluten is the processed stuff that we shouldn't really be eating anyway.

Heh. And people wonder why there's a small contingent of us who's anal retentive about the "eat whole, naturally gluten-free, unprocessed foods" approach. :P

Glad things are going so well for you, and that your wife is such a wonderful help!

Nancym Enthusiast
Nancym
Posted
All those chicken strips that I like to put on my salad are a no no.

I get some from Trader Joe's (frozen "Just grilled chicken") If you have one nearby.

One last comment, I have noticed a pick up in energy as well as (dare I say this) libido. Who would've guessed? J

Hey, that might explain why your wife is so supportive!

luvkin Newbie
luvkin
Posted

Yeah JerryK!

I have gone 7 months without gluten. At first it was hard. At some restaurants I wanted to cry. I feel soo much better now being gluten free is very easy. It just became a matter of retraining my shopping habits.

My husband is a big help. All dinners at home are completely gluten free, with no complaints. His life easier now that I feel better.

Stick with it it will become second nature.

zansu Rookie
zansu
Posted
Man my hubby is so NOT supportive and it's killing me. He tries to be so he asks things like "Can you have that" but then when we were out the other day shopping for furniture for an hour I kept saying I'm so starved and then he pulls into McDonalds and says "You don't mind if I eat here do you" I was pissed just because he knows I'm the one with the problem, but how in the world am I suppose to be starved for hours and then he gets to eat in front of me UG!! I ended up getting fries and hoping they are safe, but he gave me the runaround and really didn't want me eating them BAHUMBUG!!! I have no idea how I'm going to get through this!!

OK, mine isn't _that_ bad. But we still have fights about the breadcrumbs ALL over the kitchen (he likes the crusty breads that really fly!)

BTW, I ALWAYS have a LARA bar in my purse. They don't keep a long time, so you have to eat them and repace them B) . it isn't lunch, but it can give me a chance to get where I can eat.

happygirl Collaborator
happygirl
Posted

Jerry, happy to hear you are finding things that work for you! Let us know if you are looking for specific products or replacements for non-safe things that are in your house right now.

Having the support of your spouse, for many, is essential. Having the support of my husband and whole family eminds me that this really is a minor part of my life. They are rewarded by helpin me though---they have a healthy wife/family member. The benefits, for those of whom gluten is a problem for, are great.

kbabe1968 Enthusiast
kbabe1968
Posted

GEESH! I thought my hsuband was being supportive, then last night he says "oh, so you're not buying any bread anymore?" LOL! I wanted to strangle him!

I guess I can't make everyone gluten free like I'd like. And I know if my kids see bread in the house they'll want it.

I WILL NOT let this make me fail. I WILL do this.

:)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing...
    2. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    3. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    4. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    5. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748
    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.