Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Have Dh


ptkds

Recommended Posts

ptkds Community Regular

I was recently diagnosed w/ celiac disease. Last week I was glutened by some ice cream that I thought was safe. Instead of getting diarrhea, I got a rash. It was mostly on my face at first. My nose, cheek, under my eye, on the back of my neck, and around my mouth were the worst. It wasn't symmetrical, though. But it is so itchy! And sweating makes it itch and burn, especially on my face. I went to the dr, and he diagnosed it as impetigo because the spot on my nose was oozing and very red. Now it is clearing up on my face, but my arms have gotten really bad. It is also on my stomach and legs, but not as bad. It isn't symmetrical, but some areas are slightly symmetrical. It looks like poison ivy according to a nurse and the dr., but I definetly have not been exposed to that.

So, could this be DH? I have requested a referral to a dermatologist, but I don't have an appt. set up yet. Someone please tell me if iths sounds like DH!

Thanks!

ptkds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Electra Enthusiast
I was recently diagnosed w/ celiac disease. Last week I was glutened by some ice cream that I thought was safe. Instead of getting diarrhea, I got a rash. It was mostly on my face at first. My nose, cheek, under my eye, on the back of my neck, and around my mouth were the worst. It wasn't symmetrical, though. But it is so itchy! And sweating makes it itch and burn, especially on my face. I went to the dr, and he diagnosed it as impetigo because the spot on my nose was oozing and very red. Now it is clearing up on my face, but my arms have gotten really bad. It is also on my stomach and legs, but not as bad. It isn't symmetrical, but some areas are slightly symmetrical. It looks like poison ivy according to a nurse and the dr., but I definetly have not been exposed to that.

So, could this be DH? I have requested a referral to a dermatologist, but I don't have an appt. set up yet. Someone please tell me if iths sounds like DH!

Thanks!

ptkds

My daughters DH looks exactly like poison ivy (just not as sever and it's spread out over certain parts of her body) She gets it mainly on the back of the neck and in the hairline, but also on her cheeks and nose, and on her legs. She gets a few spots on her back sometimes too. Hers is usually just a few bump in each area not all at the same time, but when she first started getting them we thought it was poison ivy, and then chicken pox, and now that I have Celiac I KNOW that it's DH!!

Good Luck and I hope it feels better soon!!

almostnrn Explorer

Sounds like it could be. I get spots right under my eye or on the lid by my lashes and man they hurt. The only time I would call mine symmetrical is when I have had a steady stream of gluten over a peroid of time and needless to say I don't do that anymore. Mine is usually one on an elbow, one on a knee. The best way I can think to describe what it feels like at first is almost like a rug burn, then comes the most fun....the ITCHING! LOL. Good luck I hope you find a solution.

Sophiekins Rookie

Two questions:

Has your doctor given you anything for your "impetigo"?

Have you tried it, and did it work?

Impetigo is highly contagious, and could easily spread to the rest of your body. . .and it looks quite a lot like really bad DH. If you actually have impetigo, you need to change your sheets and towels (wash the dirty ones seperately from those of the rest of your family in VERY hot water and detergent) as well as any clothing that came in contact with your "impetigo" (and any clothes that were in contact in your closet with clothes that were in contact with your impetigo. Yes, I'm serious.). You also need to fill the prescription your doctor gave you (or find a new doctor who will give you one if the first one didn't give you anything) and use it religiously (if it is a lotion) - make sure you understand the instructions (harass your doctor or pharmacist if you don't) - for at least a week. If your impetigo doesn't clear up from the lotion (you should see dramatic improvement within three days) or spreads to other parts of your body, you need to go back to the doctor and get an oral antibiotic suitable for treating staph and other bacterial causes of impetigo. Wash your hands thoroughly and frequently with antibacterial soap (the ONLY time you will hear me recommend antibacterial soap), do NOT share your towels with anyone, and keep any oozing blisters or lesions covered with bandaids or gauze - wash your hands every single time you scratch, before you touch anything else. As always, call your doctor if areas of your skin become HOT, tight, and very itchy - this can indicate a deeper skin infection.

The rash locations you describe are clinically significant for impetigo, and not so much for DH - by all means make an appointment with a dermatologist, but try treating for impetigo first.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.