Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elevated Lipase

malosp

By malosp
in Related Issues & Disorders

Recommended Posts

malosp Newbie
malosp
Posted

Hi there,

I am new to this forum but not to celiac disease. I have been pretty good with my diet for the last 13 years and was very healthy.

Just recently I have been experiencing some of my old gluten symptoms. Nausea, stinging in my intestinal track, weight loss, headaches, a hung over feeling etc.

The only lab that was elevated was a slightly elevated lipase.

Does anyone else have an elevated lipase with gluten intolerance. I think I may have inadvertently gotten gluten from some meds I was taking.

Any take?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

I did a the time of my diagnosis, I have not had it drawn since, but it was elevated. I don't have the labs on me now, but I can get them tomorrow and see because I think there was another lab which was elevated.

jesscarmel Enthusiast
jesscarmel
Posted

i had elevated lipase and amalayse when i had pancreatitis which the dr said was caused by the undiagnosed celiac.....

Jess

Guest cassidy
Guest cassidy
Posted

Someone posted about this a few months ago and several people responded but I don't remember much more about it. You might try searching here to see what you find.

When I had my celiac panel the only thing that came back high was lipase. I never got an explanation and I get gluten-free that very day so I didn't persue it. I'm pregnant and they have practically taken 1/2 my blood out in the last few months and all the tests have been normal, so I would think that my gluten-free diet got it under control because that is the only change I made.

malosp Newbie
malosp
Posted
  • Author

Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

  • 3 months later...
djf3 Newbie
djf3
Posted
Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

djf3 Newbie
djf3
Posted

Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
DVK Apprentice
DVK
Posted
Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

I think I was the origial person who inquired about this months ago, I was told I was having Pancreatis, However after months of being sick and having the same ranges as you with elevated lipse, once I found out I had Celiac Disease, and starte watching my diet, things went to normal.

From my understanding Lipase is produced in a fw places and us with celiacs can have problems with our pancreas if we dont watch our diet, however ours is coming from Leakage in the GUT, its standard to happen but more in celiac disease so Its not too worry about, I did have a CT scan and ultra sound and all was normal but my lipase was up and down for months,

  • 3 years later...
deezer Apprentice
deezer
Posted

I had elevated lipase around the time I was diagnosed

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.