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Elevated Lipase

malosp

By malosp
in Related Issues & Disorders

Recommended Posts

malosp Newbie
malosp
Posted

Hi there,

I am new to this forum but not to celiac disease. I have been pretty good with my diet for the last 13 years and was very healthy.

Just recently I have been experiencing some of my old gluten symptoms. Nausea, stinging in my intestinal track, weight loss, headaches, a hung over feeling etc.

The only lab that was elevated was a slightly elevated lipase.

Does anyone else have an elevated lipase with gluten intolerance. I think I may have inadvertently gotten gluten from some meds I was taking.

Any take?

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blueeyedmanda Community Regular
blueeyedmanda
Posted

I did a the time of my diagnosis, I have not had it drawn since, but it was elevated. I don't have the labs on me now, but I can get them tomorrow and see because I think there was another lab which was elevated.

jesscarmel Enthusiast
jesscarmel
Posted

i had elevated lipase and amalayse when i had pancreatitis which the dr said was caused by the undiagnosed celiac.....

Jess

Guest cassidy
Guest cassidy
Posted

Someone posted about this a few months ago and several people responded but I don't remember much more about it. You might try searching here to see what you find.

When I had my celiac panel the only thing that came back high was lipase. I never got an explanation and I get gluten-free that very day so I didn't persue it. I'm pregnant and they have practically taken 1/2 my blood out in the last few months and all the tests have been normal, so I would think that my gluten-free diet got it under control because that is the only change I made.

malosp Newbie
malosp
Posted
  • Author

Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

  • 3 months later...
djf3 Newbie
djf3
Posted
Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

djf3 Newbie
djf3
Posted

Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

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  • 2 weeks later...
DVK Apprentice
DVK
Posted
Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

I think I was the origial person who inquired about this months ago, I was told I was having Pancreatis, However after months of being sick and having the same ranges as you with elevated lipse, once I found out I had Celiac Disease, and starte watching my diet, things went to normal.

From my understanding Lipase is produced in a fw places and us with celiacs can have problems with our pancreas if we dont watch our diet, however ours is coming from Leakage in the GUT, its standard to happen but more in celiac disease so Its not too worry about, I did have a CT scan and ultra sound and all was normal but my lipase was up and down for months,

  • 3 years later...
deezer Apprentice
deezer
Posted

I had elevated lipase around the time I was diagnosed

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      Small Bowel Resection 12 inches

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      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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      Small Bowel Resection 12 inches

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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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      Small Bowel Resection 12 inches

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