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Narcotic Painkillers

GlutenWrangler

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GlutenWrangler Contributor
GlutenWrangler
Posted

Hey Everyone,

I have an extremely rare kidney disorder that causes chronic pain. It is called Loin Pain Hematuria Syndrome. I have bleeding in the microtubules of my right kidney, which then causes cramping and sometimes blood and blood clots in my urine. I have been taking narcotic painkillers for about 5 years for this disorder. I used to have to take MS Contin and Percocet daily to control it. I have cut down considerably to just one 7.5mg Vicodin tablet. I know that narcotic painkillers can cause gut permeability, possibly enhancing gluten's ability to get through. I was wondering if anyone else has had experience with celiac disease and taking narcotic painkillers. I just don't know if the Vicodin could slow my healing because if its gastrointestinal effects. Does anyone know? Thanks for your help.

-Brian

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tiffjake Enthusiast
tiffjake
Posted
Hey Everyone,

I have an extremely rare kidney disorder that causes chronic pain. It is called Loin Pain Hematuria Syndrome. I have bleeding in the microtubules of my right kidney, which then causes cramping and sometimes blood and blood clots in my urine. I have been taking narcotic painkillers for about 5 years for this disorder. I used to have to take MS Contin and Percocet daily to control it. I have cut down considerably to just one 7.5mg Vicodin tablet. I know that narcotic painkillers can cause gut permeability, possibly enhancing gluten's ability to get through. I was wondering if anyone else has had experience with celiac disease and taking narcotic painkillers. I just don't know if the Vicodin could slow my healing because if its gastrointestinal effects. Does anyone know? Thanks for your help.

-Brian

I have never heard of that (which doesn't mean anything!). I just didn't want you to think no one cared about your post. Sorry I can't be of help! Hope things turn around for you!

NicoleAJ Enthusiast
NicoleAJ
Posted

I'm really not sure about long term effects of pain killers. I'm on Vicodin currently for nerve pain in my face, but I've only been on it for five days, just to hold me over until my appointment with my neurologist on Friday. I have celiac and ulcerative colitis, but I haven't noticed any difference in my gut on the Vicodin.

DElizabethE Apprentice
DElizabethE
Posted
Hey Everyone,

I have an extremely rare kidney disorder that causes chronic pain. It is called Loin Pain Hematuria Syndrome. I have bleeding in the microtubules of my right kidney, which then causes cramping and sometimes blood and blood clots in my urine. I have been taking narcotic painkillers for about 5 years for this disorder. I used to have to take MS Contin and Percocet daily to control it. I have cut down considerably to just one 7.5mg Vicodin tablet. I know that narcotic painkillers can cause gut permeability, possibly enhancing gluten's ability to get through. I was wondering if anyone else has had experience with celiac disease and taking narcotic painkillers. I just don't know if the Vicodin could slow my healing because if its gastrointestinal effects. Does anyone know? Thanks for your help.

-Brian

Hi Brian,

I may not be much help either but I wanted to reply. I have been on vicodin (mostly 5mg but sometimes 7.5) for severe abdominal pain since last June. The pain started long before that but I suffered through it. After many procedures and 4 ER visits I was diagnosed with Celiac at the beginning of Nov. When I started being gluten free I was taking the vicodin almost everyday. I didn't like being on it but I couldn't function with the pain. And no...I wasn't addicted. Now after 2 1/2 months my bloodwork came back with much improvement. I now am only taking the vicodin a couple of times a week for the pain. So I just thought I'd let you know that it didn't slow my healing but really helped me through those days of pain. Maybe someone else would know a little more though. Hope everything goes well for you.

Diane

Mtndog Collaborator
Mtndog
Posted

I've never been on narcotic painkillers for extended periods of time but I have been on NSAIDS for arthritis forever and they supposedly do the same thing. It has taken me about two years to heal but I was VERY VERY VERY sick and symptomatic when I went gluten-free. Maybe I would have healed faster without them, but would have been miserable.

If you need them for a medical condition, and are worried about healing your gut, or keeping it well, you can look into taking L-glutamine and acidopholus. A lot of people here, myself included, have taken or do take them to help with gut permeability. Hope this helps!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Is percoset a narcotic? I was given it (well, actually, endocet, the generic equivalent) after shoulder surgery, and had a terrible reaction to it that landed me in the hospital for 12 hours of cardiac tests, which is not the greatest way to recover from surgery. It didn't touch the pain, and gave me chest pain, nausea, dizziness, sweating, and dry heaves. I took over-the-counter Advil one day, and Tylenol (also OTC) the next, and I was totally pain-free. I was thinking that some of these prescription painkillers are a total crock as far as real pain relief, but my experience was probably weird.

Honestly, I'd rather just deal with the pain than have to go through that again. Then again, because it was post-surgical pain, I knew that it would only last a few days. For something like severe stomach pain or facial nerve pain, I don't know--I sure hope you guys feel better very soon!

GlutenWrangler Contributor
GlutenWrangler
Posted
  • Author

Well it's good to hear that it probably won't slow my healing down. I'm currently taking L-Glutamine and HLC Intensive probiotics for gut permeability. I'm really not sure how much L-Glutamine I should be taking. The bottle says take one pill a day, each pill being 500mg. So that's what I've been taking, but I'm guessing its probably not enough. Does anyone know the recommended dose for people with celiac disease? Thanks,

-Brian

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