Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help My Daughter Has Dh And I Need Her To Have A Reaction Now!

Electra

By Electra
in Dermatitis Herpetiformis

Recommended Posts

Electra Enthusiast
Electra
Posted

Usually she has at least one or two spots, but she hasn't been eating lately and when she does she only wants bananas or potatoes, but she's going to the dermatologist tomorrow and I need her to have some spots.

Is there any foods that can initiate an "almost" immediates response. She's only 2 so I can't force her to eat anything, but I gave her a few ritz crackers and a some gold fish a few times last week and she only got one spot. She had a few goldfish crackers today and still has no spots. She's itching her hairline, so I think she's getting one there, but I really want one of her spots to be on her body somewhere and I'd really prefer a pretty big outbreak. Man why can you never get symptoms when you want them UG!!

Any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

I've heard that iodine can cause a reaction if you put it on her skin. If you decide to try that I'd start with a very very small section. Like the tip of a q-tip. Just in case you get a big reaction.

Electra Enthusiast
Electra
Posted
  • Author

Wow thanks for the info. It's worth a try right. I don't actually have any iodine, but I'll run to the store later and grab some!! I'll let you know what happens!!

chrissy Collaborator
chrissy
Posted

why do you want to induce a reaction? has she not been officially diagnosed yet?

Electra Enthusiast
Electra
Posted
  • Author
why do you want to induce a reaction? has she not been officially diagnosed yet?

Yes that's why because she has not been officially diagnosed yet. I tested positive and she tested negative with the blood test. My daughter has a rash that I'm sure is DH but it comes and goes, and I need the dermatologist to see this rash so that they will do a skin biopsy!!

marciab Enthusiast
marciab
Posted

You've probably already thought of this, but how about trying different gluten sources. Like a green drink with wheat grass, whole wheat pasta, rye crisp or bread, something with barley ...

marcia

Electra Enthusiast
Electra
Posted
  • Author
You've probably already thought of this, but how about trying different gluten sources. Like a green drink with wheat grass, whole wheat pasta, rye crisp or bread, something with barley ...

marcia

Thanks so much for the suggestion Marcia. I'm trying like mad to get my daughter to eat gluten, but she just doesn't eat much of it. She'll eat a cracker here and there, or a half a piece of toast, but she won't eat much else. She's figured out that if she eats bananas, potatoes and popcorn that she doesn't get sick so that's about all she'll eat. Pretty smart for a 2 yr. old to figure out what makes her feel bad :o. I'm just afraid we are going to go in there and they are going to think I'm just a nutcase that wants tests run for no reason!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

From what I understand, you don't need a current outbreak for biopsy. The dermatologist should be able to take a sample from beside an old lesion. But I'll look into that information to confirm...I'll post back when I find it.

Michelle :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748
    Rrenee2990
    Newest Member
    Rrenee2990
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.