Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else Have Achne Problems?


Electra

Recommended Posts

Mango04 Enthusiast
I am wondering if I should try Acutane. I don't think it's severe enough that he'll allow it, but maybe begging him will help. I have no plans of becoming pregnant, at this age.

Oh gosh Susan don't do Acutane. I did two rounds of it when I was in high school and it was the worst experience ever. It causes depression and horrible muscle pain and it messes with your white blood cells and it basically like...dries out your brain :blink: Oh and it didn't make my acne go away <_<

  • 1 year later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dancer29 Newbie

Hey everyone!

I'm new here but I thought I'd resurrect this thread with my story and a note of thanks...

When I was a teenager, I didn't have acne. My friends use to ask what I did to keep my skin so clear! Then... Five years ago I started to suffer with cystic acne. At the time of my first, extremely painful breakout, I was in my third year of university. I was convinced that the breakout was triggered by an extremely stressful event, and so, when my stress levels had calmed (and my acne hadn't) I went to my family doctor and got meds... not Accutane, but a milder one that worked!

But the acne never really went away... it was always lurking and would flare up every once and awhile.

My mom has been gluten-free for 4 years and, knowing it is a hereditary condition, she'd advised both myself and my sister to be careful. So I'd been gluten light for 4 years (because I was living at home). This year I went back to school and became really lazy with being gluten-free... one weekend I noticed that after every meal I had experienced nauseousness and indigestion and a general bloating.

That very Monday morning I woke up to 6 of the largest cystic acne spots I've ever had, clustered together on my chin. They were huge (the largest was the size of a quarter, the others were dime size), painful and horrid looking.

I was ready to take accutane, but thank goodness for this forum! I had already begun to wonder if my weekend symptoms had been gluten related - after some googling I found these posts and realized that the acne might be gluten related.... I went gluten free right then.

And since, my acne has cleared. Its not perfect yet - I had what I believe was a 'detox' breakout, but the gluten was definitely related to the acne... I was glutened a few weeks ago and experienced immediate funny tummy and the next day? Boom! A new cyst.

So THANK YOU to everyone who shared their experiences here ... I probably would have been put on accutane, and it wouldn't have worked. THANK YOU a thousand times!

samcarter Contributor

I never had acne as a teenager. My brother had horrible cystic acne (he was put on antibiotics all the time, had to get one lanced). Apparently our maternal aunt had bad acne as well.

But then after college, I started to get a rash that looked like acne on my forehead. I was put on Differin gel, which helped some, but i didn't like the dryness. It was never cystic, but just bumpy (very small, hard bumps) and red. Sometimes it will crust over. And i can run little white hard grains out of it. I tried cutting out sodium lauryl sulfate containing cleansers and shampoos and that helped for a while, but not any more.

Now I'm wondering if it's a reaction to wheat in shampoo. So i went out and got Suave shampoos and Neutrogena face cleanser....as well as eating as gluten free as possible. It's only on my forehead, I rarely have a breakout anywhere else. Weird.

  • 2 weeks later...
DeerGirl Apprentice
It was never cystic, but just bumpy (very small, hard bumps) and red. Sometimes it will crust over. And i can run little white hard grains out of it.

Can't offer any info about gluten reaction - just a thought but could it be milia? Beyond Differin, salicylic acid containing products may help with that, or Retin-A.

DeerGirl Apprentice

Wish I could say that going gluten free has cleared up my acne, but alas dietary changes have provided no response whatsoever in the past 10 months. If anything it has gotten worse!

Then again, I'm one of those people that diet never affected my skin anyway.

Nancym Enthusiast

I've heard a lot of positive things about this book: Open Original Shared Link

MyMississippi Enthusiast

You might want to get checked for Rosacea--- it can cause "adult acne".

I always wondered why I continued to have flare up of zits into my 40's --- weird----

Went to dermatologist for a bump on my nose that came and went--- thought I might have skin cancer- he said I had rosacea---- Duh ! ! I should have known---- I had a red face for a couple of years ( thought it was hormones)----

He gave me a VERY EXSPENSIVE Rx that didn't really help that much, and felt greasy!

So, I started treating the flare ups by rubbing with plain old cheap alcohol on a cotton ball and cleaning my entire face with it --- GASP ! ! And my skin cleared up.

My skin is clear now--- some days it's downright nice looking :D ----- I don't use make-up except eye makeup. I wash with Ivory soap, and put a cheap moisturizer around my eyes and mouth. I no longer have periods and I guess that probably helped some too.

I went gluten free 2 years ago---- perhaps that helped a lot ! ! ! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

I know this is old, but wanted to add my experience as well. I am 26, have one child, and my face broke out in the 4th grade... I'm thinking that would put me around 8/9 yrs old. People said it would clear up when I had my child, nothing. Thought maybe it would clear up when I found out about celiac disease and cut out gluten. Nothing. I DO know that dairy will make me break out and make me itch... Oh yeah, did I mention, my skin is DRY.

A woman where I work came in about 2 weeks ago and said I know what you can use on your face.

To which I said, thank you... but you and EVERYONE else have already told me that. But, what do you suggest, so that I may add it to my list of things?

She told me to try Cetaphil and I did and my face is clearing up! And it not red anymore and it doesn't itch either. I put it on my face dry and just wipe it off. Seems that the water/cleanser combo dried out my face more. So, I've been using it for about a week or so and my complexion is more even. I'm starting to clear up, which is the first time in what.... 18 yrs.

So, if you're up for something new, give it a try. I found it at CVS or whatever local drugstore you have.

Hope that helps someone!!!

DeerGirl Apprentice
She told me to try Cetaphil and I did and my face is clearing up!

Cetaphil is great stuff isn't it?

I had hoped that going gluten-free would clear up my skin at least a little, as I had heard from several people that it could.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,960
    • Most Online (within 30 mins)
      7,748

    PMcCauley
    Newest Member
    PMcCauley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
    • cameo674
      So those rs numbers tell researchers where the dbSNP is located in a Genome so that other reasearchers or an AI system can look in that specific spot for that Snip of information.  You can look those rs # s by pasting the numbers after rs into the lookup on this page https://www.ncbi.nlm.nih.gov/snp/ right under the Blue header bar at the top of the webpage.  Since you are not a researcher, I do not know how this will help you though.
    • cameo674
      So I posted here once before, and everyone advocated that I get into a GI doc.  I finally got into my functional health appointment on 6/16 to get my blood results evaluated and get the Gastro referral. I was told that I would be fortunate to see a gastro doctor by December, because of the number of people waiting to get in, but they did believe that I needed to see a GI doc among others.  Well, the stars aligned. I got home. I looked at MyChart and it showed an appointment available for later that same day. I never clicked so fast on an appointment time. The gastro doc ran some additional blood work based off the December values that had confirmed my daughter's suspicion that I have undiagnosed stomach issues.  Gastro has also scheduled me to get an upper endoscopy as well as a colonoscopy since it has been 8 years since my last one. She said it would rule out other concerns if I did not show Celiac per the biopsies.  Those biopsies will not occur until August 29th and like everyone here stated, Gastro wants me to keep gluten in my diet exactly as everyone suggested. To be honest, I was barely eating any gluten since I figured I would have plenty of time to do so before testing.  Doc is also looking for the cause of the low level heartburn that I have had for 30 years.  I have mentioned the heartburn to PCPs in the past and they always said take a tums or other OTC drug.  The upper endoscopy is for ruling out eosinphilic esophagitis, h. pylori, and to biopsy the duodenal bulb and second portion to confirm or exclude celiac. The colonoscopy will have random biopsies to rule out microscopic colitis. I didn't really catch her reasoning for the bloodwork.  Doc looked at the December numbers and said they were definitely concerning for Celiac.  She also said, “Hmm that’s odd; usually it’s the reverse”, but I did not catch which result made her say that. She seems very through.  She also asked why I had never bothered to see a GI before.  To be honest, I told her I just assumed that the heartburn and loose stool were a part of aging.  I have been gassy since I was born and thought constantly passing gas was normal?  Everyone I know with Celiac have horrible symptoms that cannot be attributed to other things.  They are in a lot of stomach pain.  I do not go through that.  I attribute my issues to the lactose intolerance that comes with aging, but have slowly been eliminating foods from my diet due to the heartburn or due my assumption that they did not agree with a medication that I was prescribed. I have already eliminated milk products especially high fat ones like ice cream; fats like peanut butter; acids like citrus and tomatoes; chocolate in all forms; and breads more because it is so hard to get in 100 grams of protein if I eat any foods that are not a protein.  I would not have even done the testing if my daughter had not brought up the fact that she thought I might have an undiagnosed condition since she has issues with bloating and another sibling has periodic undiagnosed stomach pain that GI docs throw pills at instead of helping.  Who knew that Bristol scale 5 and 6 were not considered normal especially multiple times a day? I watched my MIL go through basically the same bowel changes starting at 50 so to be honest, I really did think it was normal before this week's appointment.   December 2024's blood tests ran through Quest Labs were:  Deamidated Gliadin (IgA) 53.8 U/mL Above range >15.0 U/mL; Deamidated Gliadin (IgG) >250.0 U/mL Above Range >15.0 U/mL; Tissue Transglutaminase (IgA) 44.0 U/mL Above range >15.0 U/mL; Tissue Transglutaminase (IgG) <1.0 In range <15.0; Immunoglobulin A (IgA) 274 mg/dL In range 47-310 mg/dL 6/16/25 bloodwork:  Until today, I did not really know what all the four tubes of blood were for and since I did not understand the results, I got into the clinical notes to see what was ordered, but it did not exactly explain why for everything. Immunoglobulins IGG, IGA, IGM all came back in range:  IGG 1,010 mg/dL In range 600-1,714; IgA 261 mg/dL In range 66-433 mg/dL; IGM 189 mg/dL In range 45-281.  How do these numbers help with diagnosis? Google says she checked these to see if I have an ongoing infection? I do have Hashimoto's and she did say once you have one autoimmune disease others seem to follow. Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies? Comprehensive Metabolic Panel: Everything was in the middle of the normal range.  Google says this just says I am metabolically healthy. Tissue Transglutaminase ABS test results – Done by the Mayo Clinic’s Labs –  T-Transglutaminase IGA AB --Value: 3.1 U/mL – Normal Value is <4.0 (negative) U/mL; Tissue Transglutaminase, IgG -- Value: 15.3 U/mL High -- Normal Value is <6.0 (Negative) U/mL – Interpretation Positive (>9.0) – These are the only labs the GI did that have been labeled Abnormal.  I am confused at how/why these came back different than the December labs? Because these numbers seem to be the opposite of what the were in December and I know I have eaten less gluten.  They were definitely measured differently and had different ranges. This must be why she said they are usually opposite? Molecular Stool Parasite Panel said I was Negative for Giardia Lamblia by PCR; Entamoeba Histolytica by PCR and Cryptosporidium Parvum/Hominis by PCR.  So at least I do not need to do a parasite cleanse like everyone on TikTok seems to be doing. So I guess, I am just really asking why the Tissue Transglutaminase numbers are different.  Was it because they were truly different tests? Is it because I have not consumed the crazy amount of gluten one is suppose to eat prior to testing? To be honest, I thought that was only for the biopsy testing. I generally only eat twice a day, and the thought of eating the equivalent of 6 slices of bread is daunting. Even in my youth, I probably only consumed the equivalent of maybe 3 slices a day. Like I said before, now I usually focus on trying to eat 60 gram of protein.  I am suppose to consume 100 grams, but have failed to succeed. I will focus on eating gluten starting in July now that I know my procedure date.
    • Scott Adams
      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
    • Scott Adams
      This article might also be helpful, as you could have DH: https://www.celiac.com/celiac-disease/understanding-dermatitis-herpetiformis-the-skin-manifestation-of-celiac-disease-r6361/
×
×
  • Create New...