Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reflux?

Poohbeck

Recommended Posts

Poohbeck Newbie
Poohbeck
Posted

Hi Everyone! I hope you all can give me some more insight.

Here's my recent strory...

Around Thanksgiving I ended up at the Dr. because I woke up one day with the feeling that something was stuck in my throat and at the top of my stomach. I was put on reflux medicine and tested for gallblader and Pylori (sp??). Both came back negative.

After Christmas I was sent for an upper GI which showed MILD reflux. I practically laughed at my doctor, because to me this was not mild. He switched my medicine to Zantac and referred me to a GI specialist. The Zantac helped to the point I took myself off of it last week. The feeling has not come back, but, I have had some mild indigestion with sauce and such.

OK, well I went to the GI yesterday. She asked a lot of questions. I did tell her I self-diagonsed myself with IBS a few years ago because I have recurrent episodes of constipation, gas, and diaherra. I also have periods of normalcy.

I was also told her I was at the Hospital this past Monday with pain in my side. They thought it could have been my appendix or ovarian cysts. Both negative. They said maybe it was gas. I was very embarresed. Anyway, the GI asked if I've ever been tested for Cyliac and I said no. She wants to run an endoscopy on me to rule out an ulcer, pylori, and maybe cyliac.

Anyway, I came home and called my Mom and talked to her about it. She called me an hour later, she had just opened her new magazine and there was an article about cyliac disease. She read me the sysmtoms which lead me here.

I seem to have a lot of the symtoms, including headaches. But, I do have times when I'm fine.

Anyway, have any thoughts???

I'm not sure if any of the blood tests I've had have checked for cyliac. Also, I was going to cancel my endoscopy because I am tired and embarrassed of testing for nothing. But, after reading all about this, I'm not so sure.

Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

All of your symptoms could be celiac disease. You should have the celiac disease blood panel, as well as the endoscopy. And then, even if they come back negative, it would be good to give the gluten-free diet a try. Because there are many people who don't have celiac disease, but gluten intolerance, which can be just as bad.

Anyway, one step at a time. You're moving in the right direction by starting with testing for celiac disease. Unfortunately, it still takes an average of 11 years to be properly diagnosed with celiac disease if you have it. You'll get 'diagnoses' of IBS, depression, reflux, GERD, fibromyalgia and many others, before most doctors even think of gluten as the cause for all your troubles.

Good for your GI to mention celiac disease right away, she sounds like a good doctor. Stick with her, and please do yourself a favour and do the tests. You may have found your answer, and might finally be on your way to getting well.

Poohbeck Newbie
Poohbeck
Posted
  • Author
You should have the celiac disease blood panel, as well as the endoscopy.

I have an un-educated question - Is the celiac disease blood panel different than a standard blood panel. I know Iv'e had two blood test recently that checked a whole battery of levels, like white blood count, but, I'm not sure about celiac... I will call my Dr. on Monday if need be.

Thanks for your quick response.

Also, the endoscopy will be able to test for celiac by seeing the duodenum?

plantime Contributor
plantime
Posted

The celiac blood panel is different from other panels. It has to be ordered specifically. The endoscopy will allow the doc to see any ulcers or unusualness in your small intestine. Hopefully, the doc will look at the lining and take samples from inflamed/unusual-looking areas. Your symptoms are similar to what mine were, except I did not have reflux. After being glutenfree for 7 months, I still had enough damage that my doc could see it before he took samples. Follow through with the endoscopy. If it is determined that you just have painful gas, you can at least rest assured knowing that it will pass.

Rebecca47 Contributor
Rebecca47
Posted

Welcome poohbeck

I hope you get the answers you need. You for sure should have the celiac blood panel done and remember to not change your diet untill testing is done or you could get the wrong results. My doctor told me to eat like I always have eaten, no fasting or anything.

My doctor said that my numbers were so high that she was sure I had celiacs disease. She never did an endoscopy. After being gluten free and blood panel again three months better my numbers were great.

I haven't had a migraine since Aug of 2006 and gluten free. It's all related somehow.

I'm glad you have a doctor that knows about celiac. Hope you feel better. ;)

You will learn alot on this board. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      What the College Dining Hall Experience Means for Students with Celiac Disease (+Video)

    2. sc'Que?
      - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      1

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

      @Daura Damm: Can we get a gluten-free Imperial Oatmeal Stout, please? Please?!?
    3. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    5. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,551
    • Most Online (within 30 mins)
      7,748
    spencercoleadams
    Newest Member
    spencercoleadams
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.