Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten And Dairy Free?


chocolatelover

Recommended Posts

chocolatelover Contributor

Hey all, I'm new at all this and still trying to figure it all out. I am currently trying to figure out if it's the gluten or the dairy that's giving me problems. Do they often go together? I'm still waiting for test results to see if anything comes back positive...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Yes.

Lactose (milk-sugar) intolerance *often* accompanies celiac disease in the first months of treatment, as the enzyme to break down lactose is produced at the tips of the villi that are damaged by the gluten intolerance.

Some celiacs also have trouble with casein (milk-protein) as well, which will not go away after a few months as the intestines heal. You can test this one with a low-lactose milk product and lactaid as a challenge, outside of blood testing.

StrongerToday Enthusiast

Yes they do. I gave up dairy for a year (a very long year!), and then slowly worked it back into my diet. I can tell when I've gone overboard (gas) but now i have it almost every day.

tiffjake Enthusiast

I just want to give you another point of view. I never gave up dairy when I went gluten free. I have had some constipation problems, and I wonder if that was why. But other than that, I am ok. I have read that when the "gut" heals from the gluten-damage, then people who have casien problems can handle it better, so I always thought I would be fine. And I feel ok. Just wanted to share that incase you are stressing over being "gluten-free/cf" like I was at first.

But if it bothers you, then don't have it. I just didn't feel like it bothered me.

chocolatelover Contributor

So far I haven't been very successful at staying both gluten-free and df...all the foods that I love seem to be one or the other! I am trying very hard to stay df for now and keep eating the gluten since I haven't had the full round of tests yet. I keep reading that you need to be consuming gluten for it to show up on the tests, so I am eating it and am waiting to schedule an endoscopy. The dr thinks that I have IBS, so I don't know when that will happen. Colonoscopy is this week. I was gluten and dairy free for about 2 weeks before Christmas, and felt like a new person. I can't decide if I'm feeling icky right now from eating gluten or just from the stress of it all...

BBadgero Newbie
So far I haven't been very successful at staying both gluten-free and df...all the foods that I love seem to be one or the other! I am trying very hard to stay df for now and keep eating the gluten since I haven't had the full round of tests yet. I keep reading that you need to be consuming gluten for it to show up on the tests, so I am eating it and am waiting to schedule an endoscopy. The dr thinks that I have IBS, so I don't know when that will happen. Colonoscopy is this week. I was gluten and dairy free for about 2 weeks before Christmas, and felt like a new person. I can't decide if I'm feeling icky right now from eating gluten or just from the stress of it all...

You know, until I went gluten-free and DF (well since I am a chocolate lover too, 85% DF :rolleyes: ) I didn't ever quite feel right. I now follow strictly (again, except for the occassional chocolate or Snickers bar) a Paleolithic Diet.... it is similar to protein diets, but made more sense to me. I follow Cordain's version, but I am going to switch to Protein Power by the Edes.... I just have all the energy in the world, and except for the rare times I get CC'd by some food, or don't read the label right, I haven't been sick like I use to since early 2006!!! Amazing with these results, but it isn't easy to follow. After about a good week on it you can fend off the carbs (dairy, etc) and feel good.... Good luck!

chocolatelover Contributor

You know there are dairy-free chocolates out there! They are more expensive, but they do exist. Also, I have made several dairy-free chocolate desserts in the past few weeks that are quite delicious. Happy to share if you need more info!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Dark chocolates are often dairy free (always check the label), and TerraCotta and TraderJoes both make milk chocolates with rice milk that are dairy and gluten free.

Drama-Queen Rookie

Since gluten can mess up your intestine sooo much it is hard to tolerate dairy right away on the gluten free diet. However, some people seem okay with it.

On the other hand some people have problems with dairy and not gluten. (lactose intolerant, casein intolerant, or just plain allergic) So what I would do is elliminate one or the other and see what happens with your symptoms, if they improve or not. Sometimes a diary helps to keep track of symptoms you are having so that you don't have to in your head. This is how I am figuring out my allergies. I am pretty sure it is that dastardly dairy that makes me break out in hives.

Try process of elimination and see what happens. What is there to lose? Not much, just symptoms.

Jestgar Rising Star

Just a comment. I was having food issues and just assumed it was dairy, since that's a likely culprit, and sometimes I'd have issues after eating cheese (but not always).

I finally determined that it's not dairy, it's garlic! It was hard for me to separate since I frequently ate them together.

So sometimes the most obvious solution isn't the solution....

mmaccartney Explorer

I gave up gluten and after about a month I ate a gluten-free cheese pizza that I made myself, and got very sick. I knew immediatly it was the cheese...gave up all dairy after that, and then had myself tested as I wasn't sure if it was lactose or casein that was my problem...unfortunatly for me it was casein so dairy's out for good...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,862
    • Most Online (within 30 mins)
      7,748

    ZoesDad
    Newest Member
    ZoesDad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.