Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Girl Scout Campout


kschell

Recommended Posts

kschell Newbie

I'm new to this forum, but not new to Celiac disease. My daughter and I both are Celiac. She is 9 we are going on our first G.S. campout with the service unit. There will be limited access to the kitchen where food is prepared and then served cafeteria style. If anyone has ever been in this situation I would appreciate any responses to how you handled it. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast

I have not been in this situation, but would love to read the responses from those who have. My son is a Cub Scout and is supposed to go to Webelo Camp this summer. Both of us are gluten free - and I have no idea how that is going to work. I hope you get a lot of responses!

Phyllis28 Apprentice

kschell,

Will you have access to keep food cold, like a refrigerator or a cooler (ice replenished each day)? Are there limitations on how much you can bring to camp? Will you have access to a microwave?

angel-jd1 Community Regular

Chelsea (Penguin) who belongs to this board used to (not sure if she still does) help out with girlscouts. I think she was a troop leader and of course Celiac to boot. I'm sure she would be able to help you. You might try PMing her for more info.

-Jessica :rolleyes:

FeedIndy Contributor

I am a scout leader. The first thing you need to do is contact whoever is running the event and get the menu. Let them know of your daughter's restrictions. Often, if you tell them before hand they can make different choices. For example, we didn't find out about a peanut allergy until the day she arrived-we would have chosen a snack other than ants on a log!

If your troop is planning their own food, I would talk to the leader about making plans for everyone. There are many, many camp friendly foods that are naturally gluten free. Walking tacos are a good one! Girl Scouts love hot dogs & s'mores. If there is an event like that, make arrangements for your DD to go first so her dog & marshmallow are not contaminated with the gluteny buns & graham crackers. Bring substitutes for this part if your DD is not keen on eating them solo. Mine will just eat a hot dog with no bun & roasted marshmallow's with a side of chocolate.

Breakfast is trickiest as the easiest things to serve for a crowd tend to be pasty based. Again, find out what they are serving and if there are comparable items to bring or if you can suggest a gluten-free recipe that wouldn't cost extra (budget is always a concern with scouts, but I have volunteered to supply my own gluten-free mixes for everyone just to make it easier to cook).

I can provide many campfire recipes if you need them. Just let me know!

angel-jd1 Community Regular

Here is another thread on Girl Scout Camp out/camps. It might give you some good ideas

Open Original Shared Link

Viola 1 Rookie

I led Brownies and Guides years ago, before gluten free. As I remember our camps, most of the things we made would have been easily changed. And it would have been no problem to set up a small portable card table close by to prepare gluten free foods without contamination.

Hot dogs, hamburgers, bring your own buns of course, and check to see what is added to the burger meat. We never added anything as we had a girl allergic to wheat. You'll also need to bring a small tub of margarine well marked gluten free etc. But yes, the best thing to do is sit down with the people figuring out the menu.

Breakfast was for the most part, bacon and scrambled eggs and fruit. We didn't bother with toast or pancakes or anything like that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceAddict Rookie

I was a Boy Scout as a youth and had a life-changing experience in the program. I now serve on the board for the local scout council. Shortly after being diagnosed last November, I made the offer to volunteer to handle ANY food alergy or special needs campers at either of our two council camps. I deal with more than just gluten so I understand how things are. Our scouts and leaders pay money to attend our camps and that covers food. I do not want to have a scout bring his own hot dog buns or rice pasta, or whatever. It will take some effort and a little money, but all of the scouts at our camps will be able to eat every meal with his unit, granted special items or substitutions may be needed for the individual scout.

Like others have said, contact the people in charge, if they are not willing to work with you 100% call the Council Executive (I believe Girl Scouts have CEs too). Contact someone on their board, or tell me, I certainly know howo to get things done in a scout council and I will make it happen. If anyone needs a break from food planning and cooking, it's people with food alergies and special needs.

Good luck to you and let us know how it turns out.

2kids4me Contributor

My son, Matt is celiac and diabetic, attended cubs for 3 yrs and is now in scouts. As others have said - talk to the leader. I was camp cook for the cub camps and we prepared lots of meals gluten free or I provided substitutes. the group was more than willing to work with me...for scouts, they are in patrols and plan their own menu - all members are keen on cooking gluten free for the weekends and making it fit his diabetes plan. The scout group paid for the gluten free pancake mix that I provided - I felt that it was important to do ALL pancakes gluten free so no risk of cross contamination - the kids all thgouht they were better than the pancakes they had at home.They made trail mix with chocolate chips or M & M's (gluten free in Canada).

All menus were worked out with me in attendance, I provided gluten free cereal for my son, we had ham and potatoes with fresh veges at one cub camp - leader had separate butter container set aside for Matt. Tin foil dinners are always a hit - gluten free meat (Grimms or Freybes are good) potatoes and carrot or other vege, onions - wrap it in tin foil and throw it on the fire.

Ask to be part of the menu planning, if pasta is on the menu - let them know you can provide rice pasta as long as it is cooked separately. The group should not have an issue with compensating you for costs of providing substitutes.

For smores - I made gluten free crispy rice squares - made them flat like a wafer and cut them into squares - they substitute for the graham cracker! So Matt didnt have to just stick with a marshmallow! He could eat a smore right along with everyone.

As a note : it is an excellent learning situation for all the members of the troup - learning about celiac, helping a fellow scout by making safe meals - the kids in our group have embraced the knowledge and it educates them about celiac (and diabetes).

Sandy

RiceAddict Rookie

Sandy,

Are M&Ms, chocolate chips, and smores on the diabetes food list in Canada? lol. Just kidding, I have type I also, no need to explain, I understand what you meant.

I think that is SO COOL that the troop/patrol has taken such an interest in your son's dietary needs. I can see how it becomes a learning experience for all. Thanks fo sharing.

2kids4me Contributor
Are M&Ms, chocolate chips, and smores on the diabetes food list in Canada? lol. Just kidding, I have type I also, no need to explain, I understand what you meant.

LOL :lol:

I think that's why he likes scouts - they go on long hikes and go, go , go all day - Matt says scout camp is where he can have smores and not have to take extra insulin, then he beams a big smile! After one long day hike, they ended with a campfire and smores - he did his blood sugar when he got home and , I hear this whoop and a holler - MOM! I'm ONLY 6.6!!! All those diabetics understand moments like that, kinda like you "got away with it"

We have a special diabetes food list for scouts :D

Sandy

kbtoyssni Contributor

I went on an overnight with my girl scout troop last year and I brought all my own food. I was an assistant leader and there was no way I was going to trust a bunch of nine-year-olds not to cross contaminate my salad! We did have access to a kitchen. I tried to bring similar food (like a sandwich for lunch rather than a sub). Didn't want to make the girls jealous that I had "better" food.

  • 2 weeks later...
kschell Newbie

Thank you for all the great responses about G.S. camping gluten-free. I have spoken with the person from our service unit in charge of planning the trip. She was very cooperative and gave me the full menu. I found that many items could easily be substituted and Sat. dinner is baked chicken and rice!! Totally gluten-free. She also gave me the name and phone of the cook at the camp, so my next step is to call her and discuss access to the kitchen to prevent cross-contamination. Thanks for all the support!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.