Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Twin Brother


JerryK

Recommended Posts

JerryK Community Regular

I've been talking to my brother about Celiac/Gluten Intolerance for a few weeks now. At first he was quite skeptical. He does admit that the symptom list describes him perfectly, but he's sold on the depression diagnosis. I'm telling him....go without gluten for a few days....then eat some.....

He's asking the right questions....what's got gluten in it...what should I eat...etc...

I finally got him to go a day or two without eating gluten...

This morning he's bragging he ate a sub sandwhich last night...feels fine.....

A little while later he e-mails me back...."Hmmm, I don't feel as good as yesterday.

I'm more tired, achey...I have a headache. Yesterday was a 7, today is a 4."

What do you think of that?...Identical twins...identical tooth enamel defects...identical symptoms

after eating gluten...

Oh, just a comment, I am the good looking one. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Viola 1 Rookie
I've been talking to my brother about Celiac/Gluten Intolerance for a few weeks now. At first he was quite skeptical. He does admit that the symptom list describes him perfectly, but he's sold on the depression diagnosis. I'm telling him....go without gluten for a few days....then eat some.....

He's asking the right questions....what's got gluten in it...what should I eat...etc...

I finally got him to go a day or two without eating gluten...

This morning he's bragging he ate a sub sandwhich last night...feels fine.....

A little while later he e-mails me back...."Hmmm, I don't feel as good as yesterday.

I'm more tired, achey...I have a headache. Yesterday was a 7, today is a 4."

What do you think of that?...Identical twins...identical tooth enamel defects...identical symptoms

after eating gluten...

Oh, just a comment, I am the good looking one. ;)

Sounds like it should be an identical diagnosis.

:lol: to the good looking one :rolleyes:

angel-jd1 Community Regular
I've been talking to my brother about Celiac/Gluten Intolerance for a few weeks now. At first he was quite skeptical. He does admit that the symptom list describes him perfectly, but he's sold on the depression diagnosis. I'm telling him....go without gluten for a few days....then eat some.....

He's asking the right questions....what's got gluten in it...what should I eat...etc...

I finally got him to go a day or two without eating gluten...

This morning he's bragging he ate a sub sandwhich last night...feels fine.....

A little while later he e-mails me back...."Hmmm, I don't feel as good as yesterday.

I'm more tired, achey...I have a headache. Yesterday was a 7, today is a 4."

What do you think of that?...Identical twins...identical tooth enamel defects...identical symptoms

after eating gluten...

Oh, just a comment, I am the good looking one. ;)

If you are identical twins, you have identical genes. Therefore, he has the celiac gene (not sure how you were diagnosed, but if you have the gene so does he).

The only difference would be the "trigger". Or what flips the switch to turn your symptoms on. However, sounds to me like his switch has been flipped and he has it also. Just my 2 cents :)

-Jessica :rolleyes:

JerryK Community Regular
If you are identical twins, you have identical genes. Therefore, he has the celiac gene (not sure how you were diagnosed, but if you have the gene so does he).

The only difference would be the "trigger". Or what flips the switch to turn your symptoms on. However, sounds to me like his switch has been flipped and he has it also. Just my 2 cents :)

-Jessica :rolleyes:

I'm guessing just plain stress to be the trigger. When we built a house 10 years ago, I suspect that might have been the trigger for me. Other than an Enterolab test, I have no official diagnosis, just

circumstantial evidence, like getting the runs for a week after eating bread.

Lisa Mentor

Jerry:

I do believe that stress can be a trigger. I had "IBS - I Be Stumped" for as long as I can remember.

During some HIGH stress business, celiac kicked in ONE day and I could not leave the house for two months. Sometimes I needed to get to the bathroom in ten seconds and it was eleven seconds away. :blink:

Yup, stress is a very bad thing in many ways.

Lisa

Nancym Enthusiast

I heard something really interesting last Saturday, I heard a doctor speak who treats autoimmune diseases and he was speaking about the one I had, they know it is something environmental that causes the disease, like a bacteria or virus because they breed rats with the gene who will get the disease. However they don't get the disease if they're placed in a germ-free sterile environment. I wonder if celiac acts like that? Perhaps it is just some common virus that can kick it off.

happygirl Collaborator

Nancy:

Thanks for sharing that. Its interesting to hear that, as for years, "autoimmune" theories have included bacterial or viral "triggers" as part of their hypotheses. Although it is just anecdotal stories, there are many of us on here that never got better after having mono. So I definitely think that some (it could be many---makes sense) viruses/bacterial infections, under the right conditions, can "trigger" something.

Thank you so much for posting!

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Identical twins were at a 70% chance if one had it? Something like that.

Given his response, I think he probably has it. Good luck on that one. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.