Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Everyone Gluten Sensitive?


sareli

Recommended Posts

sareli Newbie

I'd like some thoughts on this (my first post). I took myself and my children off of gluten on Thursday and I feel wonderful. Initially I looked into it because my daughter is 4 and has some symptoms and someone clued me in on gluten. She is often tired, red around her eyes, doesn't poop daily, yet eats a ton of fiber (she used to LIVE on whole wheat pasta), she has had a bad rash on her upper butt cheeks since last February that wouldn't go away with 2 different scripts. I really didn't want to take her in for blood tests (a bit too intrusive to me right now) so I'm going the elimination diet technique.

I decided to do it with her so she didn't feel like she was getting screwed in family meals and such. My son is almost exlusively breastfed, so he doesn't get a choice. I had been very frustrated with the fact that I was only pooping every 2-3 days. This has been going on for months (I've NEVER been a frequent pooper, but has never been this bad. Since day 2 of gluten free I have been going 2-3 times a day (which is what my doctor told me a healthy functioning intestinal track would make you do) AND my son, who only pooped 1 time a day (sometimes very dry) also started pooping 2-3 times a day and with good quality.

ok..enough about the poop. I also can't believe how clearly my mind is working...My head feels lighter. So WTH? Is it really possible that we all have gluten sensitivity? How do I convince the grandparents to take gluten sensitivity seriously if I don't get daughter blood tested, but she shows great improvements? Should I just tell them she was tested and came back positive? (and by the way, the rest of us are allergic too? yeah, that'll go over well....)

sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Sarah, and welcome to this board.

It sounds like you have found the answer to your family's health problems. Celiac disease/gluten intolerance is genetic. It is not unusual for one, or even both parents, and all or most of the kids to have inherited the genes for gluten intolerance.

All of you are feeling better, your bodies are functioning properly without gluten. These are your kids, you make their choices for them while they're little. What the rest of the family thinks is their problem.

If you really want a paper that shows you are truly gluten intolerant, and you have the money, testing with Open Original Shared Link is always an option. They test the stool of people (much more sensitive and accurate than blood testing), and you don't have to eat gluten for the results to be accurate (they'll still be accurate for up to a year after eliminating gluten).

Other doctors may or may not believe in Enterolab. Read through their site to see what you think. I believe they're incredible and way ahead of the rest of the medical community.

CMCM Rising Star

Well, I just read in my newest celiac related book, "The Gluten Connection" by Shari Liebermanm, published 2007, the following information:

"The gluten problem touches FAR MORE of the U.S. population than the 1 out of 133 who have celiac disease. Some researchers now speculate that as many as 29% ....almost 3 out of 10 people....are gluten sensitive. And approximately 81% of Americans have a genetic disposition toward gluten sensitivity."

I guess this means that 80% may have the genetic disposition, although not necessarily any symptoms.

She goes on to say: "If you are gluten sensitive you can have a low level of intolerance and function for years--perhaps your entire life--without any identifiable symptoms or with symptoms so mild that you pay no attention to them. Feeling less than 100% is so normal that you don't know you can feel better."

This is a very informative book....I recommend reading it. See Amazon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac disease symptoms

    2. - Churro posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac disease symptoms

    3. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      4

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,051
    • Most Online (within 30 mins)
      7,748

    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @Churro! Several things need to be said here: 1. Your physician neglected to order a "total IGA" test to check for IGA deficiency. If a person is IGA deficient, the results of other IGA antibody tests specific to celiac disease will not be valid. A total IGA test should always be ordered when checking for celiac disease with blood IGA antibody test. You should ask your physician to order a total IGA test. 2. Iron deficiency anemia can also give distorted IGA celiac disease blood antibody tests. 3. If you were already on a gluten-free diet or had been restricting gluten consumption for weeks/months prior to the antibody testing blood draw, then the test results would not be valid. Accurate celiac disease blood antibody testing requires you to have been consuming significant amounts of gluten for a significant time period leading up to the blood draw. It takes time for the antibody levels in the blood to build up to detectable levels. 4. Your low iron levels and other symptoms could be due to celiac disease but could also be caused by lots of other medical issues.
    • Churro
      Last month I got blood tests done. My iron level was at 205 ug/dL and 141 ug/dL iron binding capacity unsaturated, 346 ug/dl total iron binding capacity, 59 transferrin % saturation. My ferritin level was at 13 so I got tested for celiac disease last week. My tTG-IgA is <.05, DGP IgA is 4.9 and ferritin level is 9. My doctor didn't order other celiac disease tests. In 2021 I was dealing with severe constipation and hemorrhoids. I'm no longer dealing with constipation. I still deal with hemorrhoids but only about once a week. Also, I've been dealing with very pale skin for at least 5 years. Do you think I have celiac disease? 
    • tiffanygosci
      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.