Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Everyone Gluten Sensitive?


sareli

Recommended Posts

sareli Newbie

I'd like some thoughts on this (my first post). I took myself and my children off of gluten on Thursday and I feel wonderful. Initially I looked into it because my daughter is 4 and has some symptoms and someone clued me in on gluten. She is often tired, red around her eyes, doesn't poop daily, yet eats a ton of fiber (she used to LIVE on whole wheat pasta), she has had a bad rash on her upper butt cheeks since last February that wouldn't go away with 2 different scripts. I really didn't want to take her in for blood tests (a bit too intrusive to me right now) so I'm going the elimination diet technique.

I decided to do it with her so she didn't feel like she was getting screwed in family meals and such. My son is almost exlusively breastfed, so he doesn't get a choice. I had been very frustrated with the fact that I was only pooping every 2-3 days. This has been going on for months (I've NEVER been a frequent pooper, but has never been this bad. Since day 2 of gluten free I have been going 2-3 times a day (which is what my doctor told me a healthy functioning intestinal track would make you do) AND my son, who only pooped 1 time a day (sometimes very dry) also started pooping 2-3 times a day and with good quality.

ok..enough about the poop. I also can't believe how clearly my mind is working...My head feels lighter. So WTH? Is it really possible that we all have gluten sensitivity? How do I convince the grandparents to take gluten sensitivity seriously if I don't get daughter blood tested, but she shows great improvements? Should I just tell them she was tested and came back positive? (and by the way, the rest of us are allergic too? yeah, that'll go over well....)

sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Sarah, and welcome to this board.

It sounds like you have found the answer to your family's health problems. Celiac disease/gluten intolerance is genetic. It is not unusual for one, or even both parents, and all or most of the kids to have inherited the genes for gluten intolerance.

All of you are feeling better, your bodies are functioning properly without gluten. These are your kids, you make their choices for them while they're little. What the rest of the family thinks is their problem.

If you really want a paper that shows you are truly gluten intolerant, and you have the money, testing with Open Original Shared Link is always an option. They test the stool of people (much more sensitive and accurate than blood testing), and you don't have to eat gluten for the results to be accurate (they'll still be accurate for up to a year after eliminating gluten).

Other doctors may or may not believe in Enterolab. Read through their site to see what you think. I believe they're incredible and way ahead of the rest of the medical community.

CMCM Rising Star

Well, I just read in my newest celiac related book, "The Gluten Connection" by Shari Liebermanm, published 2007, the following information:

"The gluten problem touches FAR MORE of the U.S. population than the 1 out of 133 who have celiac disease. Some researchers now speculate that as many as 29% ....almost 3 out of 10 people....are gluten sensitive. And approximately 81% of Americans have a genetic disposition toward gluten sensitivity."

I guess this means that 80% may have the genetic disposition, although not necessarily any symptoms.

She goes on to say: "If you are gluten sensitive you can have a low level of intolerance and function for years--perhaps your entire life--without any identifiable symptoms or with symptoms so mild that you pay no attention to them. Feeling less than 100% is so normal that you don't know you can feel better."

This is a very informative book....I recommend reading it. See Amazon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.