Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Everyone Gluten Sensitive?


sareli

Recommended Posts

sareli Newbie

I'd like some thoughts on this (my first post). I took myself and my children off of gluten on Thursday and I feel wonderful. Initially I looked into it because my daughter is 4 and has some symptoms and someone clued me in on gluten. She is often tired, red around her eyes, doesn't poop daily, yet eats a ton of fiber (she used to LIVE on whole wheat pasta), she has had a bad rash on her upper butt cheeks since last February that wouldn't go away with 2 different scripts. I really didn't want to take her in for blood tests (a bit too intrusive to me right now) so I'm going the elimination diet technique.

I decided to do it with her so she didn't feel like she was getting screwed in family meals and such. My son is almost exlusively breastfed, so he doesn't get a choice. I had been very frustrated with the fact that I was only pooping every 2-3 days. This has been going on for months (I've NEVER been a frequent pooper, but has never been this bad. Since day 2 of gluten free I have been going 2-3 times a day (which is what my doctor told me a healthy functioning intestinal track would make you do) AND my son, who only pooped 1 time a day (sometimes very dry) also started pooping 2-3 times a day and with good quality.

ok..enough about the poop. I also can't believe how clearly my mind is working...My head feels lighter. So WTH? Is it really possible that we all have gluten sensitivity? How do I convince the grandparents to take gluten sensitivity seriously if I don't get daughter blood tested, but she shows great improvements? Should I just tell them she was tested and came back positive? (and by the way, the rest of us are allergic too? yeah, that'll go over well....)

sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Sarah, and welcome to this board.

It sounds like you have found the answer to your family's health problems. Celiac disease/gluten intolerance is genetic. It is not unusual for one, or even both parents, and all or most of the kids to have inherited the genes for gluten intolerance.

All of you are feeling better, your bodies are functioning properly without gluten. These are your kids, you make their choices for them while they're little. What the rest of the family thinks is their problem.

If you really want a paper that shows you are truly gluten intolerant, and you have the money, testing with Open Original Shared Link is always an option. They test the stool of people (much more sensitive and accurate than blood testing), and you don't have to eat gluten for the results to be accurate (they'll still be accurate for up to a year after eliminating gluten).

Other doctors may or may not believe in Enterolab. Read through their site to see what you think. I believe they're incredible and way ahead of the rest of the medical community.

CMCM Rising Star

Well, I just read in my newest celiac related book, "The Gluten Connection" by Shari Liebermanm, published 2007, the following information:

"The gluten problem touches FAR MORE of the U.S. population than the 1 out of 133 who have celiac disease. Some researchers now speculate that as many as 29% ....almost 3 out of 10 people....are gluten sensitive. And approximately 81% of Americans have a genetic disposition toward gluten sensitivity."

I guess this means that 80% may have the genetic disposition, although not necessarily any symptoms.

She goes on to say: "If you are gluten sensitive you can have a low level of intolerance and function for years--perhaps your entire life--without any identifiable symptoms or with symptoms so mild that you pay no attention to them. Feeling less than 100% is so normal that you don't know you can feel better."

This is a very informative book....I recommend reading it. See Amazon.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,228
    • Most Online (within 30 mins)
      7,748

    CindyNR
    Newest Member
    CindyNR
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.