Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone With Celiac And Crohn's Disease?

Bri's mom

By Bri's mom
in Coping with Celiac Disease

Recommended Posts

Bri's mom Apprentice
Bri's mom
Posted

My 21 year old daughter was diagnosed with Crohn's 6/06 and Celiac 12/06. Just wanted to know if anyone else has both these diseases. She is not coping well at all. There seems to be very few foods she can eat with both these diseases. Sure could use some help! I have already learned so much from you guys. My daughter said she felt like a freak and I guess I was feeling like a freak myself trying to help her.

Thanks,

Bri's Mom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NicoleAJ Enthusiast
NicoleAJ
Posted

Well, I have ulcerative colitis, which is very similar to Crohn's, instead of occuring anywhere in the GI tract, however, UC confines itself to the colon and rectum. I'm having a lot of trouble because I've been having a flare-up for months now, and i just can't seem to get into remission. My doctor decided to give me a new med today to see if it works any better than the old one, but it's an aweful experience to have both celiac and an inflammatory bowel disease at the same time. I really feel for your daughter. I'm 27 now, but when I was 21, I had an unbelievable bout of bad health for a few years. I hope that she gets the help she needs. I find plenty of low-fiber gluten free options, but I cook or prepare most of my own food--I don't know if she's living at home or in a dorm, but that will have a huge impact on her ability to find food. If you'd like suggestions, I can provide some.

runnerjen Apprentice
runnerjen
Posted

Yes, I do, sort of. I haven't been officially diacgnosed with celiac, we're still working on that, but I am gluten free. Blood tests for celiac are positive, but my endosopy came back negative. Since being gluten-free I haven't had any migraines or hot flashes and I'm sleeping better. BUT, stomach issues are still there. I have ileitis, which is Crohn's disease. I've been on Pentasa for a while, which I have to take 8 times a day. I'm still working with my gastro to figure out what works best for me, but I still have major IBS-like symptoms. Foods for me are pretty bland - rice, rice pasta, potatoes, chicken, homemade soups, canned fruits (per suggestion from my nutritionist, they are easier to digest) and I try to eat veggies, though they seem to hurt more than help. It's more a less a touch a go situation. Has she seen a nutritionist? I went to one that specializes in Celiac, she has it herself, and she was extremely helpful and suggested a lot of foods.

jen

babygirl1234 Rookie
babygirl1234
Posted

im not being noisy or anything but i just had a scope down the throth and a clonscopy yesterday because ive been having lower stomach pains in the lower part of my stomach and they did biposes during both and i need to wait 1-2 weeks what im wondering is how did they found out that your daughter had corns dis? i had dyarry blood in my stool and inflamed bowl did they out by doing a bypis as of right now they are treating me for my acid reflex and can you have both celiac disease and cron's dis?

runnerjen Apprentice
runnerjen
Posted
im not being noisy or anything but i just had a scope down the throth and a clonscopy yesterday because ive been having lower stomach pains in the lower part of my stomach and they did biposes during both and i need to wait 1-2 weeks what im wondering is how did they found out that your daughter had corns dis? i had dyarry blood in my stool and inflamed bowl did they out by doing a bypis as of right now they are treating me for my acid reflex and can you have both celiac disease and cron's dis?

I had an lower GI series and crohn's was found from that. I've never had a colonoscopy. There are also some blood tests they can do to confirm diagnosis.

NicoleAJ Enthusiast
NicoleAJ
Posted

I've had three colonscopies over the course of five years--they didn't find anything on the first two, but on the third one, they could easily see bloody ulcers in the colon--the biopsies confirmed it, but they knew that they would because it was so obvious. Biopsies of the colon can also confirm microscopic colitis which Dr. Green discusses in his book, Celiac Disease: A Hidden Epidemic. Babygirl1234, did they tell you that they could see anything visually? That might give you a little bit of insight. Good luck waiting for your results--I think we can all sympathize since so many of us have been there before.

babygirl1234 Rookie
babygirl1234
Posted

my aunt told me that they found a plopy when they did the upper scope and they are doing a byopice to see what kind of polpy is was/is and some byupse too but im hoping they find something and they the polpy wasnt anything serious

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bri's mom Apprentice
Bri's mom
Posted
  • Author

Hey everyone who wrote back about having crhon's and celiac. My daughter went to the ER with chronic, bloody diahrreah on 6/06...they admitted her that night and couldn't get things under control. They did a colonoscopy the 3rd day and she was diagnosed with crohn's. The 5th day a stool culture came back positive for Salmonella (KFC). She has been in remission since July. Then started throwing up everything she ate about two months ago and her GI dr. took a biopsy on 12/27/06 and it came back postive for celiac. She is a full time college student majoring in accounting. So you can see how stressful her life is right now. My husband transferred to Savannah where she lives so I can cook and learn so much from all you wonderful guys. She doesn't live with me, but when are only minutes ago. I appreciate you so much for writing me back and please, please send any recipes you have available. Bri's nutritionist is more geared for diabetic's and heart patients, but has been helpful (one visit so far).

Thanks again everyone for your help and I hope I have been helpful answering your questions. Please stay intouch.

Bri's Mom

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.