Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any One With This Symptom?


Curt

Recommended Posts

Curt Newbie

Hi,

I'm new to this board but have been gluten, dairy and egg free for almost 10 months now. Like a lot of you I have been to many doctors with gobs of tests all showing no problem. Blood work showed no gluten problem but Entero Labs showed gluten, dairy and egg positive. My question is I have a symptom that never seems to go away or if it does for only a short time and then comes back over and over again. Besides bloating my symptom is a very quick spasm or cramp or hard pinch just below my navel to the right. It varies in intensity to where it is hardly felt or can be quite painful like a charley horse but it is always just a split second long. I can have a hundred a day or I can have a couple. When I first went on the gluten free diet I felt pretty good for 2 months and then it all came back. Now it comes and goes to where I can have a good week or two and then 3 weeks from h*ll. I eat simple whole foods and eat the same thing everyday so I don't get "glutened" at all. Anybody out there have anything close to this?

Thanks,

Curt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Felidae Enthusiast

Could it be to another food intolerance such as soy? Also, it could be related to gas. Before I went gluten free I had many pains in my colon. I would get them in the "corners" of the colon. Basically your colon has three corners, one of them is not so much a corner, but more of a curve.

Anyway, I don't know if that made any sense at all. But, maybe you could keep a food journal and see if the pain changes with things that you eat, time of day and so on.

Curt Newbie
Could it be to another food intolerance such as soy? Also, it could be related to gas. Before I went gluten free I had many pains in my colon. I would get them in the "corners" of the colon. Basically your colon has three corners, one of them is not so much a corner, but more of a curve.

Anyway, I don't know if that made any sense at all. But, maybe you could keep a food journal and see if the pain changes with things that you eat, time of day and so on.

Hi Felidae,

Thanks for the reply. I don't eat soy so that's not an issue. I've been on food elimination diets before and it never seemed to matter. I've been eating EXACTLY the same foods every day now for over 6 months as I wanted to remove all variables. There seems to be no pattern as I can feel fine for a week or two and then it gets bad again without changing my diet at all. I suppose it could be related to gas but the spasm is in the same location everytime. It's weird.

Felidae Enthusiast

Well, your appendix is located in the lower right hand quadrant. But, if you have been having spasms for years, it shouldn't be your appendix because that needs to be an acute response.

I don't know, maybe by one year of gluten-free it will go away. It took me one year of being gluten-free to feel normal again.

ArtGirl Enthusiast

I don't have your symptoms, but when I read the description of the location of the pain/spasm, it made me think immediately of the ileocecal valve - which can sometimes get stuck closed, or open.

Here's a link to general info about this. This is not mainstream medical stuff, so take it for what it's worth.

Open Original Shared Link

Curt Newbie
Well, your appendix is located in the lower right hand quadrant. But, if you have been having spasms for years, it shouldn't be your appendix because that needs to be an acute response.

I don't know, maybe by one year of gluten-free it will go away. It took me one year of being gluten-free to feel normal again.

Yea, I'm hoping that my gluten-free diet will help over long term. It is encouraging to hear people say that it took a year or longer, means I still have hope! Thanks again.

Curt Newbie
I don't have your symptoms, but when I read the description of the location of the pain/spasm, it made me think immediately of the ileocecal valve - which can sometimes get stuck closed, or open.

Here's a link to general info about this. This is not mainstream medical stuff, so take it for what it's worth.

Open Original Shared Link

Thanks, I will check out the link.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,017
    • Most Online (within 30 mins)
      7,748

    Kayy
    Newest Member
    Kayy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.