Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie


homicidalknitter

Recommended Posts

homicidalknitter Newbie

Hello all! As the subject stated, I am new to Celiac/Gluten-free living. I've had intestinal troubles my whole life and can't remember not feeling terrible after eating a meal. I'd previously been diagnosed with IBS, but my family and I continued to research thankfully. When we came upon this, things started to make sense, from the fact that bowl of cereal would hurt my stomach (a seemingly benign food) to the fact that I am the shortest person in my family.

Like I said, I am very new to this, I've only been gluten-free for 3 days now and I have some questions that hopefully can be answered here.

First: I've noticed that in these three days, my stomach as definitly been better than I can ever remember, but still doesn't seem "normal." Does it usually take a while for your system to regulate and if so, on average how long?

Secondly: I woke up with a yeast infection this morning. I am just about to start my period (I know it's normal for women to sometimes get yeast infections right before their period), but also read somewhere about a link with Candida and Celiac, but I am a little confused on the subject. Should I be especially concerned? I'm used to dealing with them on my own, I don't have health insurance and have been getting yeast infections periodically since I was 12 years old (I'm 24 now).

Thirdly: Can anyone direct me to a FREE comprehensive list of ingredients that commonly have hidden gluten? I've been researching non stop in the last week or so, but I still haven't found a good list to help me recognize all the ingredients I should be watching out for. This is a confusing and daunting task, changing my diet, but one that I already can tell is well worth it. I've felt great the last three days and am excited that I am on the way to feeling better and better!

Please, any help is muchly appreciated and needed!

Thank you,

Joni


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SchnauzerMom Rookie

Hi! I'm glad you joined us! I'm new at this too so I don't have a lot of advice that I can give you. Did you check out the Celiac.com site? There are a lot of articles there and I think some of your questions will be answered there.

Lisa Mentor

Joni:

Welcome. You have found a wonderful site and all you question will be answered. I can offer a few.

Some here have felt better after just a few day and on the flip side, some have taken months to feel better. I believe it depends on the amount of damage to your intestines.

Being gluten free is very complex and complicated. You need to check your shampoo, toothpaste, lotions, lipstick, ie everything that can get into you mouth. To start with Dove shampoo is gluten free, as is Crest, Dove lotion and Burt's Bee's lip glosses and neutrogena glosses are gluten free.

Others here are more advanced on yeast issues, so I will defer to them.

On this site, in the opening page, as said, you can scroll down and get many articles as well as a safe and forbidden list.

It is so very overwhelming in the beginning. But soon you will be able to read labels. The folks here have more knowledge than you will find in the general medical community.

If you have questions regarding any general product, please feel free to PM me.

The board gets a little show during the weekend......but you will get you answers.

Welcome to Celiacland.

Lisa

Creative-Soul Newbie

Just wanted to say welcome aboard!

Viola 1 Rookie
Hello all! As the subject stated, I am new to Celiac/Gluten-free living. I've had intestinal troubles my whole life and can't remember not feeling terrible after eating a meal. I'd previously been diagnosed with IBS, but my family and I continued to research thankfully. When we came upon this, things started to make sense, from the fact that bowl of cereal would hurt my stomach (a seemingly benign food) to the fact that I am the shortest person in my family.

Like I said, I am very new to this, I've only been gluten-free for 3 days now and I have some questions that hopefully can be answered here.

First: I've noticed that in these three days, my stomach as definitly been better than I can ever remember, but still doesn't seem "normal." Does it usually take a while for your system to regulate and if so, on average how long?

Secondly: I woke up with a yeast infection this morning. I am just about to start my period (I know it's normal for women to sometimes get yeast infections right before their period), but also read somewhere about a link with Candida and Celiac, but I am a little confused on the subject. Should I be especially concerned? I'm used to dealing with them on my own, I don't have health insurance and have been getting yeast infections periodically since I was 12 years old (I'm 24 now).

Thirdly: Can anyone direct me to a FREE comprehensive list of ingredients that commonly have hidden gluten? I've been researching non stop in the last week or so, but I still haven't found a good list to help me recognize all the ingredients I should be watching out for. This is a confusing and daunting task, changing my diet, but one that I already can tell is well worth it. I've felt great the last three days and am excited that I am on the way to feeling better and better!

Please, any help is muchly appreciated and needed!

Thank you,

Joni

Welcome aboard! I love your forum name, it would be interesting to hear how you decided on it :lol:

Nini has a list out for newbies on what you can and what you can't have. Do a search of her name...Nini..click on that and you will find away into her newbie kit. It's very helpful.

wowzer Community Regular

If you buy an over the counter yeast infection cure, make sure you call the number on the box and make sure it is gluten free. I can't remember the name of the company now, but when I called she said that you should call and check every time, because it could contain gluten. I had bought a Target brand one. Of course called after the fact.

Lizzz88 Rookie

Hey Joni! I am also new to celiac so I can't give you tons of advice but I can tell you what has helped me.

The gluten free diet seems so overwhelming. What I did was I made a notebook of all the information and recipes I found online. That way I could just flip through to find what I needed. I also googled ingredients in things to put my mind at ease about what I was about to eat. This forum has really helped me and I think you will find that it is a great support system!

I've been on the diet for 6 weeks now and I still feel pretty bad, but then again, I had some other things wrong with my stomach(h pilori, ulcers, gastritis, reflux, and hietal hiernia). I have wondered how long it takes, but from the research I've done it seems like it depends on the person.

I hope you start feeling better! If you ever need anything you can message me because I'm going through the learning process also.

Liz


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



homicidalknitter Newbie
Welcome aboard! I love your forum name, it would be interesting to hear how you decided on it :lol:

Nini has a list out for newbies on what you can and what you can't have. Do a search of her name...Nini..click on that and you will find away into her newbie kit. It's very helpful.

Thank you so much for your help. I did go to her website and found some very useful information as well as some tasty sounding recipes.

You know, the way I got my name is kind of funny, or at least interesting. I was going through an especially rough time with someone I was dating and was complaining to my friend while knitting furiously. I started getting pretty heated and made a stabbing motion with one of my needles. The next day, she had drawn up a little comic about Natasha, homicidal knittress. In the comic, I would find and destroy men by stabbing them with my knitting needles, then knit a body bag and throw them into the ocean to rot. It made me feel empowered, even though I was only destroying men on paper, so the name has stuck even 4 years later.

Thank you again!

Joni

Canadian Karen Community Regular

Joni, that's hilarious!

I can tell already you are going to fit right in here! LOL! :lol:

Karen

Aerin328 Apprentice

Joni, welcome!

Just a response on the "how long does it take to regulate" question. As our Celiac veteran Lisa stated, it can take any varied amount of time. I have found, and read about others who have similarly experienced, that gastrointestinal issues should subside within a few weeks. However, the anti-gliadin antibodies which can trigger certain system autoimmune responses can linger in the blood for 1-2 years ; thus, other symptoms such as fatigue and brain-fog can take much longer to abate.

It takes an incredible amount of patience to navigate the waters of the Celiac Sea- but stick with it, and all things will mend. It's hard to remember this sometimes b/c when the symptoms set in, it can feel like they will never ever go away! But as my loving fiance (who is also a celiac, and has recovered fully) tells me daily, "You WILL get better." This forum will be available for support every step of the way.

Good luck!

Christian

babygirl1234 Rookie

welcome to the borad :)

Viola 1 Rookie
Thank you so much for your help. I did go to her website and found some very useful information as well as some tasty sounding recipes.

You know, the way I got my name is kind of funny, or at least interesting. I was going through an especially rough time with someone I was dating and was complaining to my friend while knitting furiously. I started getting pretty heated and made a stabbing motion with one of my needles. The next day, she had drawn up a little comic about Natasha, homicidal knittress. In the comic, I would find and destroy men by stabbing them with my knitting needles, then knit a body bag and throw them into the ocean to rot. It made me feel empowered, even though I was only destroying men on paper, so the name has stuck even 4 years later.

Thank you again!

Joni

Joni, that is so funny! :lol: Thanks for sharing! Watch that sense of humour from Canadian Karen, it can be dangerous ... You'll want to make sure you have a pee before you start reading some of her stuff :lol:

homicidalknitter Newbie
Joni, that's hilarious!

I can tell already you are going to fit right in here! LOL! :lol:

Karen

I love your bottom quote. Sometimes I felt like people thought I was making all this up for attention. Sigh...

homicidalknitter Newbie
Joni:

Welcome. You have found a wonderful site and all you question will be answered. I can offer a few.

Some here have felt better after just a few day and on the flip side, some have taken months to feel better. I believe it depends on the amount of damage to your intestines.

Being gluten free is very complex and complicated. You need to check your shampoo, toothpaste, lotions, lipstick, ie everything that can get into you mouth. To start with Dove shampoo is gluten free, as is Crest, Dove lotion and Burt's Bee's lip glosses and neutrogena glosses are gluten free.

Others here are more advanced on yeast issues, so I will defer to them.

On this site, in the opening page, as said, you can scroll down and get many articles as well as a safe and forbidden list.

It is so very overwhelming in the beginning. But soon you will be able to read labels. The folks here have more knowledge than you will find in the general medical community.

If you have questions regarding any general product, please feel free to PM me.

The board gets a little show during the weekend......but you will get you answers.

Welcome to Celiacland.

Lisa

Thank you so much Lisa! Your response has really helped me! I went to Trader Joe's with my mother today, armed with a gluten-free foods list and we went to town. It's been hard so far, but I know the rewards will be well worth it. Thank you!

Joni

Guest happynwgal
Thank you so much Lisa! Your response has really helped me! I went to Trader Joe's with my mother today, armed with a gluten-free foods list and we went to town. It's been hard so far, but I know the rewards will be well worth it. Thank you!

Joni

I LOVE to knit!!! Welcome to the board - I have found much comfort and help here...

I am also pretty new to gluton free - just over two months, and I am starting to feel better. It does take a while to find foods that I can safely eat - I sat down to eat some ice cream that we have had in the freezer pre-gluten diagnoses, and suddenly realized that when I ate some of it a few weeks ago, I got sick. So I looked at the ingredients, and the second one was something called WHEAT SYRUP. Whoever had heard of wheat syrup before?! I sure had not...

So far every day is a new learning experience. I sometimes look at the food my daughter (17, and no gluten problems) is eating, and I miss my Little Debbie Boston cremes.... sigh.... Thank goodness we have not had any of them around here since I was diagnosed...

In regard to shopping: I have also discovered that the health food stores are better that the regular super markets. But even there, I have learned that I need to read all the labels - and understand all the ingredients on the list. If I am not sure, I ask. If I don't get the right answers, I do without.

Good luck!

PS I have not yet been to Trader Joe's, but somebody else told me that they thought that store has more gluten free than any other store. Anybody have any input for me about this? <_<

Susanna Newbie

Trader Joes has lots of great food that is naturally gluten free and just healthy in general. However, they don't have specific gluten-free specialty products, and they don't have a separate gluten-free section. I still love them, because they have lots of great rices and sauces and fresh produce, etc., plus they are comparable in price to the regular grocery store.

But for more specialty gluten-free stuff, I like Whole Foods--they have an actual gluten-free aisle, which is very cool. Pricey, though.

When you're a newbie--always carry snacks with you, because it SUCKS to be hungry while others around you are eating food you can't have--it's very isolating feeling. Here are some portable, gluten-free snacks:

trail mix

hard boiled eggs

dried fruit, fresh fruit

Peanut butter on celery

Baby Ruth Bars (and Snickers, and Reeses peanut butter cups, and Hershey Kisses

Cheetos, Fritos, plain potato chips, tortilla chips (carful of added flavorings, tho)

Peanut butter and rice cakes

Cottage cheese and rice cakes

Cottage cheese mixed with equal parts of your favorite yogurt

Some beef jerkies--read labels

Nuts

Lara Bars, Bumble Bars

Some flavors of Zone Bars (Fudge Graham, Coconut Chocolate Crunch, Chocolate Almond Raisin)

As to how soon you will feel better--depends on how damaged your gut was when you went gluten-free. Know that it may take a while (maybe even months)--stick with the diet. It gets easier over about the first 6 months as you figure out what to eat. It's so worth it. Some foods may be hard to digest, even if they are gluten-free, so while your gut recovers from gluten poisoning, you might want to avoid them: dairy, caffeine, alcohol, very spicey foods, and sadly, chocolate. Foods that are easy on the gut are: bananas, rice apple sauce and ginger ale.

Good luck!

Susanna

homicidalknitter Newbie
I LOVE to knit!!! Welcome to the board - I have found much comfort and help here...

I am also pretty new to gluton free - just over two months, and I am starting to feel better. It does take a while to find foods that I can safely eat - I sat down to eat some ice cream that we have had in the freezer pre-gluten diagnoses, and suddenly realized that when I ate some of it a few weeks ago, I got sick. So I looked at the ingredients, and the second one was something called WHEAT SYRUP. Whoever had heard of wheat syrup before?! I sure had not...

So far every day is a new learning experience. I sometimes look at the food my daughter (17, and no gluten problems) is eating, and I miss my Little Debbie Boston cremes.... sigh.... Thank goodness we have not had any of them around here since I was diagnosed...

In regard to shopping: I have also discovered that the health food stores are better that the regular super markets. But even there, I have learned that I need to read all the labels - and understand all the ingredients on the list. If I am not sure, I ask. If I don't get the right answers, I do without.

Good luck!

PS I have not yet been to Trader Joe's, but somebody else told me that they thought that store has more gluten free than any other store. Anybody have any input for me about this? <_<

So far, I have found Trader Joe's to be the most helpful. It's cheaper than places like Whole Foods (which does have a great gluten-free isle...at a heafty price) and you can get a great list online of all their gluten-free foods.

Wheat syrup? Never heard of it! I am amazed at what foods have wheat in it and even more amazed at how many other PRODUCTS have wheat in it too. Shampoo? Toothpaste? Cosmetics? Is that really nessessary? So far some friends have rolled their eyes, others (especially any friend I've lived with in the past) are pleased not to see me running to the bathroom after every meal and not in pain but all have been more than accomodating. One friend is making dinner tonight and has made sure that I can eat whatever they're making so I can eat with them. Another made me a seperate dish last minute so I could stay and eat. I will be missing cheese fries from Steak and Shake, but I'll survive.

Thanks for the well wishes, I'll be sure to keep everyone updated on my progress (I'm still trying to figure out this website, so until then my posts might be a little sporatic)

Joni

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,188
    • Most Online (within 30 mins)
      7,748

    Leeila
    Newest Member
    Leeila
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...