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Restricted Diet

hez

By hez
in Coping with Celiac Disease

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hez Enthusiast
hez
Posted

I am pretty sure I was glutened around Christmas. I have had the "D" ever since. Usually, when I get glutened the "D" lasts for about three weeks and eases up in the fourth. I am now six weeks into this and still feeling horrible.

So I decided to cut out all processed foods to see if I could get myself better. Started the "diet" yesterday. I am trying to eat chicken/meat, vegies, fruits and eggs. Any other ideas on things I could eat that are dairy free and unprocessed?

For those that have done something similar how quickly did the "d" disappear?

For those with intolerences, is "d" a symptom of an intolerence? Once feeling better how quickly did you react when a food was reintroduced? I am wondering if I am intolerent to dairy. Can intolerences be tested for?

The gluten-free diet is a breeze compared to this one. I miss my junk food. I am trying hard not to cheat and indulge in a gluten-free goodie.

Thanks for your help. I just am in a bad spot. I got used to feeling good!

Hez

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jlynn Rookie
jlynn
Posted
I am pretty sure I was glutened around Christmas. I have had the "D" ever since. Usually, when I get glutened the "D" lasts for about three weeks and eases up in the fourth. I am now six weeks into this and still feeling horrible.

So I decided to cut out all processed foods to see if I could get myself better. Started the "diet" yesterday. I am trying to eat chicken/meat, vegies, fruits and eggs. Any other ideas on things I could eat that are dairy free and unprocessed?

For those that have done something similar how quickly did the "d" disappear?

For those with intolerences, is "d" a symptom of an intolerence? Once feeling better how quickly did you react when a food was reintroduced? I am wondering if I am intolerent to dairy. Can intolerences be tested for?

The gluten-free diet is a breeze compared to this one. I miss my junk food. I am trying hard not to cheat and indulge in a gluten-free goodie.

Thanks for your help. I just am in a bad spot. I got used to feeling good!

Hez

I am VERY New to this myself and am on a strict diet. I would suggest eating brown rice with garlic everyday. Also start taking(if youare not already) a probiotic, this will help settled down an inflamed stomach mucosa. I also have "d" as a symptom of intolerance. My nutritionist has suggested drinking carrot juice as it helps to soak up the extra water in the gut. I am starting to feel better. I have had a few days of solid stool and I have been doing this for about a month. I also eat chicken, fish, sweet potatos and eat yogurt (plain)!!!! Hope this helps, and hope you get feeling better soon!!

lorka150 Collaborator
lorka150
Posted

This happened to me last year, and I could only down about 8 foods for about 8 months. Finally, I started to feel a little better. Have you tried an elimination diet? I was in a tough situation. Like you, I am casein free, but I am also allergic to buckwheat and rice, and some other foods.

Regarding the last poster's response, I would not recommend garlic. A lot of people get digestive trouble from it.

icmarmots Newbie
icmarmots
Posted

:o My Nutritionist would say to take gluten free digestive enzymes and high dose "live" probiotics.

Now when I get glutened I do both for several days.

Nancym Enthusiast
Nancym
Posted

You might want to check out paleofood.com, lots of eating ideas there.

hathor Contributor
hathor
Posted

...So I decided to cut out all processed foods to see if I could get myself better. Started the "diet" yesterday. I am trying to eat chicken/meat, vegies, fruits and eggs. Any other ideas on things I could eat that are dairy free and unprocessed?

...

I am wondering if I am intolerent to dairy. Can intolerences be tested for? ...

You can also eat legumes, nuts, seeds, and gluten-free grains.

One test for intolerance is simply to eliminate the food and see how you do. Enterolab has testing for dairy, egg, soy, and yeast intolerances, also. Some places test your blood (they may say it is for "sensitivities" or "allergies," rather than "intolerances"), but I'm not sure they are completely accurate. You might have to confirm any findings with personal experience.

hez Enthusiast
hez
Posted
  • Author

I think I am going to have to see the doc. It seems to be getting worse not better. It is just so frustrating! I have been gluten-free for almost two years and have been feeling great. I think this is really getting me depressed as well. Thanks everyone for your ideas!

Hez

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kbabe1968 Enthusiast
kbabe1968
Posted

Is it even possible you're continuing to be glutened by something and not realizing?

I just had a glutening because - before going gluten free, I spilled flour in my kitchen. I vacuumed it up. Well, when I went to change the bag (since going gluten free in on Jan1), I had a SERIOUS reaction because I actually breathed in the wheat flour. OH MY...I was sick for at least 4 days so far. And I just can't shake it. I think it's in the AC now....having hubby change the filter just in case.

Anyway....is it possible?

hez Enthusiast
hez
Posted
  • Author

Yes it is possible. I have been slowing going through the list of things I do. I have especially been looking at my shampoo and chapstick. I am the only one who is gluten-free in the household. So dh and I are going back through the routines to make sure I am not getting cc. It is just so hard to be this sick again. I hate it.

Thanks,

Hez

gfpaperdoll Rookie
gfpaperdoll
Posted

cross contamination is so awful...

I get sick from just touching something that someone else touched with wheaty hands - unless I remember to wash my hands before touching my food.

Maybe get your own little refrigerator to keep your food in.

Are you cooking in teflon pans or cast iron? cutting board - new? Only you use it?

Is there any flour in the house? If so, I would think that is the cause of your problem. Like the post above the flour poofs up & gets on & in everything - even your lungs & throat which goes down to your tummy. Anyone with celiac disease in a house that also contains flour - needs to just take the flour, container and all, & toss it in the trash. Bread crumbs are bad enough but there is no way that you will not get sick from flour.

hez Enthusiast
hez
Posted
  • Author

My dh does not use flour. Really the only gluten in the house is their cereal and bread. Everything else is gluten-free. Dh even makes gluten-free pancakes even though I rarely eat them :lol: We have seperate condiments and he can only have his gluten in one area of the kitchen.

I am just really struggling. I feel awful even on no processed foods. I have spent most of the day reconfirming that all the things I use are gluten-free. I am so hoping this gets better in a few days. I will see the doc at the end of the month.

Hez

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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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