Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Good Life

Guest ~wAvE WeT sAnD~

By Guest ~wAvE WeT sAnD~
in Coping with Celiac Disease

Recommended Posts

Guest ~wAvE WeT sAnD~
Guest ~wAvE WeT sAnD~
Posted

Hey Gluten Free Friends!

Just an interesting idea...I was wondering, what everyone thought was the best part about being a Celiac? A plethora of answers is welcome!!!

Here are mine:

*I learned how to COOK!!! (and not only do I love to cook, I am in control--unlike at a restaurant.)

*We DO have food choices--and it's amazing how much they taste like the REAL thing!!!

*There are a lot of us out there going through the same predicaments!

*THIS SITE!!!

*THIS MESSAGE BOARD, AND THE PEOPLE HERE!!!

*You can still exercise!

*You can promote awareness--and change the way your fellow Gluten consumers look at ingredient labels!

*Wegmans!!!!

*There is still chocolate!

*Support Groups

---That's just a drop in the bucket.

Beat the Wheat (barley, oats, and rye),

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

Definitely the incentive to try even more new ingredients in cooking.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Awwww! Plus we read lables and KNOW what we're eating!

kalo Rookie
kalo
Posted

I think the best part is all the new friends I've made. (behind on this board from feeling so good and enjoying life. :D )

Alexolua Explorer
Alexolua
Posted
Awwww! Plus we read lables and KNOW what we're eating!

Though I never look at calories, fat, etc.. too concerned about the other part of the label, LOL.

Good points Jill. Though I don't really like to cook, even now... argh! (I do though, lol)

Guest gfinnebraska
Guest gfinnebraska
Posted

The thing I like is when I am at a function or someone's home & they offer me something that does NOT look appetizing... I can ALWAYS say, "Ummm, I'm sorry, but I can't eat that because of the gluten..." :) It also keeps unwanted calories down at holidays! PLUS, when at certain restaurants, the gluten-free version they make for me always looks nicer & bigger than the regular version! Bonus!!!

jendenise Rookie
jendenise
Posted

First of all, GREAT idea! There are more positive aspects of this than I originally thought. For me atleast, I don't gain weight! therefore I got to go shopping for a whole new wardrobe! Also, the gluten-free food I buy is a tax write off! sound too good to be true? Well it's not. Gluten free food can be submitted for a tax write off so start keeping all receipts and take advantage! I'll find the correct info tonight and post it asap as a new post. Also, I've become friends with people I never would have known otherwise. Mostly though, I'm eating healthier, maybe not always by choice, but to keep from getting sick I have to, I don't get to eat a box of doughnuts, or a box of cookies when I want, because, doughnuts are difficult to find and cookies are expensive. One last thing, there are sights that say Celiacs Disease can cause irretableness. I have the BEST excuse ever when I'm snotty. "I can't help it, it's a disease!" Enjoy it if you gotta deal with it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Pegster Apprentice
Pegster
Posted

1. I can still eat chocolate

2. I can still eat at In N Out

3. I can Just Say No to Krispy Kreme (because I know what it does to me)

4. When I travel to Italy, the waiters treat me like I'm special and bring me delicious gluten-free meals including dessert!

5. I know what makes me sick and all I have to do is avoid it. No more surprises!! :D

astyanax Rookie
astyanax
Posted

hmm i'd say learning how to cook, eating much healithier than i ever would have!, learning a lot about self control, and discovering that i like whiskey.

BRCoats Enthusiast
BRCoats
Posted

1. It makes me feel better!!!!!! (That's #1 for a reason!) :D

2. I learned how to make rice bread, and it's fun to have everyone taste it and get the "oohs" and "ahhs".

3. It makes me feel better.

4. I discovered Pamela's chocolate cocholate chip cookies.

5. I now have a legitmate diagnosis, instead of telling people I'm sicker than a dog, and them not believing a word of it (due to not knowing what is wrong).

6. I'm in a good mood, for the first time in at least a decade.

7. I get to read celiac3270's posts. (celiac3270, I thought you were at least 35 years old by all that wisdom revealed in your posts!!) ;)

8. It makes me feel better.

9. I am no longer a slave to breads and pastas.

10. Did I mention it makes me feel better? :lol:

Brenda

plantime Contributor
plantime
Posted

It is easier to lose weight, since I can't eat all of the yummies that made me gain weight. It has also made my kids more aware of what they eat, so they eat better.

lilliexx Contributor
lilliexx
Posted

Pamela's chocholate fudge cookies!!!!!!!!!! :D:D:D ( the best cookies i have ever eatin in my whole life...and mt son agrees!!)

kalo Rookie
kalo
Posted

I was going to say that it made me feel better but then I thought that was the result of going gluten-free not the reason for having it. But I like the fact that FINALLY I have a diagnosis after 55 years of searching. Feeling WELL is the real key in all of this for me. :P

kalo Rookie
kalo
Posted

I was going to say that it made me feel better but then I thought that was the result of going gluten-free not the reason for having it. But I like the fact that FINALLY I have a diagnosis after 55 years of searching. Feeling WELL is the real key in all of this for me. :P BTW, are In N Out french fries gluten-free? I guess they would be since that's ALL they cook (in addition to burgers.). WOW! I miss my french fries. Can you have a hamburger patty minus the bun? Please let me know and I'll be on my way to find one. LOL ;) What about their sauce? I'm off to do a search. <_<

FreyaUSA Contributor
FreyaUSA
Posted

Wow! Great thread! The number one positive thing it's done for me (the gluten-free diet that is) is make me feel great! I love going out and doing things now. I lost my problem with crowds. I play more with the kids. I just like to DO things now where in the past I never felt good so I was kind of a sidelines person.

I'm also REALLY interested in the tax thing. With four of us here eating gluten-free, the grocery bill has been a bit STAGGERING. Lol! (Okay, not to say it wasn't before, too. :D )

Also, is that chocolate cookie recipe on this site? :lol: (Off to search for it!)

jendenise Rookie
jendenise
Posted

Okay for the tax thing I just realized it's on the home page of Celiac.com, so... Scroll down towards the bottom under Celiac.com Site index, it's the 5th link from the bottom. Save all your receipts from stores, online purchases, etc... Just make sure you're very careful and honest with what you submit because they may audit you, and make sure that you were doctor diagnosed, not self proclaimed - which I doub't anyone sane would even consider. But I hope it helps!

babiesatemydingo Newbie
babiesatemydingo
Posted

cheetos :)

BRCoats Enthusiast
BRCoats
Posted

Cheetos are gluten-free????? Yipee!!!!

:D

babiesatemydingo Newbie
babiesatemydingo
Posted

hey go ahead pig out!

Open Original Shared Link

babiesatemydingo Newbie
babiesatemydingo
Posted

word of caution though they are made on the same lines so there is a chance traces could get in there.Not for the super sensitive.

ponita Newbie
ponita
Posted

This thread has really made my day! It's been great reading everyone's positive words. I'm printing this off and keeping an ongoing list on my frig!

* Being gluten-free has really made me aware of my nutritional needs.

* I have lost some nagging unwanted pounds.

* I have decreased my joint pain by atleast 75%!

* My husband tells me my "restless leg syndrome" is not a problem as it used to be (I guess I would kick him so much it would wake him up.

* I have energy to take on more activites.

* I love having the extra couple of hours a day to enjoy instead of napping.

I'll keep thinking of more, thanks for the spark.

Melissa

Guest Lindam
Guest Lindam
Posted

:D I have to agree with what everyone has said so far, except for shedding all those unwanted pounds. How are you doing it? I lost 20 and I fell like I've gained some of it back and I don't want it!!!

The best things for me is the knowledge that I have gained, the "friends" I have made, and the encouragement from everyone to let me know I am not alone.

Linda ;)

Guest gfinnebraska
Guest gfinnebraska
Posted
:( I hate to be the "party pooper," but Cheetos & Fritolay "say" they are gluten free, but if you check the label, they contain MSG = gluten. I have a major reaction after eating them. Sorry!!! They are one thing I really do miss... does anyone know of a good gluten free cheese curl?? Thanks!
FreyaUSA Contributor
FreyaUSA
Posted

Today, especially in the US, MSG is made with sugar cane or sugar beet. MUCH more cost effective to produce. Thus, Frito-Lay must be using non-gluten containing MSG in it's products if it is claiming to be gluten free. Sites I've read basically state if you're buying a product made in the US that contains MSG, it will be gluten free. But, do not assume the same for imports.

Guest gfinnebraska
Guest gfinnebraska
Posted

Thanks for the MSG info. ~ Then I must just be very sensitive to the use of same lines to make gluten items. Bummer!! I can't eat any of their products without a serious reaction. :( I thought it must be the MSG... oh well. :blink:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hmart
      - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end...
    2. trents
      - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So...
    3. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

      I have a lot to learn! Thank you
    4. DebJ14
      - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. ...
    5. Hmart
      - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,926
    • Most Online (within 30 mins)
      7,748
    fr0gger03
    Newest Member
    fr0gger03
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      Is this celiac?

      By Hmart · Posted

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.