Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So I Had Some Blood Work Done


Sweetfudge

Recommended Posts

Sweetfudge Community Regular

When I went in to the dr. on thursday, I had them take some blood to test my thyroid, as many here have recommended I do. They called me back friday morning. (Sidenote: I was amazed by this, as it took them 3 1/2 months to call me back after taking my blood for the celiac test...lol). Anyway, they said I have borderline low thyroid levels, and that they wanted me to come back in a month or two. What does this mean, and why "in a month or two"? Shouldn't I be taking something to help this? What are the pros and cons of being on thyroid meds? Any advice? Helpful links?

I called my parents yesterday and talked w/ them both. My mom said there's no history of thyroid problems on her side of the family, but that thyroid medicine will probably help me feel better, lose a little weight, and give me back some energy. My dad said that he doesn't think there's anything on his side of the family, although I do have 2 cousins w/ thyroid problems...they most likely got this from their mom's side of the family. He did mention that my grandpa was dxed w/ chronic fatigue syndrome back in the 60's...and they never did any tests on that, so it could have been a thyroid thing. I don't know how important it is to know my family history, I was just interested in seeing if anyone else had dealt w/ it.

Anyway there's my story, just looking for some feedback. Thanks much :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

If even the 'official' thyroid tests show borderline low thyroid, you really need to do something about them. And 'coming back in a few months' is NOT going to be any help at all!

Make an appointment with your doctor to see you now. If this doctor doesn't understand about treatment for this, then find a doctor who does.

Here is a good website to educate yourself while you wait to see your doctor Open Original Shared Link

Sweetfudge Community Regular

so i looked at that site a bit, and lots of the symptoms sound like me. what do i need my doc to do for me/give me/etc? what is a good treatment? i've not had time to do much research yet, so i feel pretty clueless....thx :)

georgie Enthusiast

I composed a long mail and the cookies ate it :lol: Go back and get your paperwork. You need to see what your Thyroid result was - as a NUMBER - and if all the Throid tests were done. I was told 30 years ago that I had a borderline Thyroid, and that it didn't matter. I have suffered 30 years of CFS, Fibro and it was all due to this one Dr making a bad dx. Many Drs do not understand how to test Thyroid, and how to read a blood test for Thyroid, and how the new labs ranges for Thyroid are changing. Many labs are still using old lab ranges and you may find that your borderline result is not borderline at all.

Sweetfudge Community Regular
I composed a long mail and the cookies ate it :lol: Go back and get your paperwork. You need to see what your Thyroid result was - as a NUMBER - and if all the Throid tests were done. I was told 30 years ago that I had a borderline Thyroid, and that it didn't matter. I have suffered 30 years of CFS, Fibro and it was all due to this one Dr making a bad dx. Many Drs do not understand how to test Thyroid, and how to read a blood test for Thyroid, and how the new labs ranges for Thyroid are changing. Many labs are still using old lab ranges and you may find that your borderline result is not borderline at all.

Is there a specific type of doctor that I need to look for to correctly diagnose what's wrong? What are all the tests they need to do for me? Thx :) I will call the dr on monday and find out what my numbers were.

Corkdarrr Enthusiast

I have been hypothyroid for over 13 years. And just in the last few months I have finally found a competent doctor.

I would highly recommend that you find a doctor who prescribes and understands Armour thyroid. For a lot of people it makes a HUGE difference.

You can find doctors that prescribe this type of med several ways:

1. ask your local pharmacist for the names of the doctors who prescribe armour

2. visit armour.com and do a search

3. Open Original Shared Link

visit the above website. on the right hand side choose the link for 'Top Drs' and search for your state

Even though I felt blatantly hypo and my gut feeling told me I was hypo, My tests kept coming back 'normal,' but as Georgie was saying, the thyroid tests are inaccurate and their ranges are HUGE. So if I'd ever thought enough to actually ask to see a copy of my test, I probably would've caught this sooner. So much for trusting your doctor...

If your doctor is on the wait-and-see with borderline low thyroid numbers it might not hurt to get a second opinion.

Keep us posted!

Courtney

happygirl Collaborator

An endocrinologist is a doctor that you might want to see (with your tests in hand).

Thyroid and Celiac problems go hand in hand.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

I would suggest a Dr that uses Armour and uses saliva testing. If you ring the saliva labs they may have Drs names that use their services. Also the same with pharmacies in your area. A Dr that is DO often seems quite good. Endos seem about the worst usually. They refuse to understand and treat adrenal fatigue, and don't understand borderline Thyroid readings on blood tests. My Dr is just a normal GP who is interested in Natural Therapies as well.

Sweetfudge Community Regular

Thanks everyone. I will give the doc a call tomorrow!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,075
    • Most Online (within 30 mins)
      7,748

    MamaJessica
    Newest Member
    MamaJessica
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.