Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Is So Frustrating


wowzer

Recommended Posts

wowzer Community Regular

I finally noticed in the last week that I can sleep for eight hours or longer, but when I get up I am in so much pain. For some reason my hands and feet are so stiff. I used to take Mobic, but when it when generic I seemed to react so quit taking it 4 months ago. I started the gluten free diet the first of the year. It has helped me in many ways. The best that horrible itching that was just so itchy is gone. I have so many improvements. I just hope this isn't a setback or something else. It's been close to a year from when the itching started. I was given atarax and that doesn't even touch it. I have to say the diet helped that the most. I'm frustrated and not sure what to do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I am no doctor here, but have you had you blood pressure tested lately? High blood pressure can be the cause of itchiness in the limbs. I am not familiar with your med and not comfortable to comment.

If you have a rash, that is another issue. DH can be a significant side effect of celiac. If so, you need to revisit you diet and make sure that you are TOTALLY gluten free...lotions, shampoo, toothpaste, mouthwash, bath soap, cosmetics that may come into contact with your mouth.

Do a food diary and write down everything that comes in contact with your mouth. If that shows nothing, they venture onto other food intollergies.(spell check says I made up that word)

Perhaps, just a thought to consider.

wowzer Community Regular

Thanks for your input, my blood pressure is fine. I know some of my itching is due to dry skin. I'm being careful with the products that I come in contact with. The stiffness is in my hands and feet. I have had many improvements since I started the gluten free diet the first of the year. I was having trouble sleeping for one. In the last week, I am finally getting sleep. It seems like I'm more sensitive to gluten. Was using a lip gloss, threw it out when I found out. I am still trying to get my family to understand too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    2. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,061
    • Most Online (within 30 mins)
      7,748

    Ellen Gnassi
    Newest Member
    Ellen Gnassi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
    • Churro
      No I haven't had one since 2021. I rarely have more than 1 per week. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.