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Body Achyness


PeaceAngel22

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PeaceAngel22 Apprentice

Does anyone else deal with all over body achyness? I just would like to experience a day without feeling achy all over. What do you take or do to cope? Would taking Tylenol help me?


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wowzer Community Regular

That is a symptom that I had for years. At one point thought it was my mattress. It seems if I can sleep 8 hours I wake up in more pain. I can't take tylenol, so I take Mobic (prescription) or ibuprofen. I'm not sure if it's better to get sleep, now it seems hands and feet ache, or less sleep and less pain. I'm not sure if maybe I'm getting gluten and that is causing it. I need to start writing down everything and try and figure it out. I have only been on the gluten free diet since the beginning of the year. I have had many benefits from it, so I'm sticking with it.

Jestgar Rising Star

My whole body hurts. Some days more than others. I decided it was probably in part due to being generally inflamed from the gluten. For a while I was taking one or two ibuprofen every night before going to bed. My theory was that at least for a while I would have less inflammation while my body was at its peak healing time.

It did make a difference, and some doctors recommend taking an ibuprofen or aspirin at night for your vascular system so its not doing something bad to yourself.

tummyache Newbie
Does anyone else deal with all over body achyness? I just would like to experience a day without feeling achy all over. What do you take or do to cope? Would taking Tylenol help me?

Yes, I too have that. I'm in my thirties and I feel like a ninety year old person. I have no strength sometimes and other times I'm brimming with energy. I think it mostly happens when gluten finds itself in my diet. YUCK!

Guest jokamo

I was dx'd with lupus and fibromyalgia in 2001, and have been gluten free for about 2 weeks. I used to be in terrible pain everyday. Sometimes my body would ache all over so bad that it was like I had the flu everyday. I have noticed a difference in the amount of pain since going gluten free. I still have my pain days, but if I eat gluten the pain is soooo much worse. I definately think that my lupus and fibro are connected to gluten in my diet! I take ibuprofen to help with the inflamatory pain that causes the aching and it works well.

hope this helps!

Jodi

darlindeb25 Collaborator

First I want to add to this statement: some doctors recommend taking an ibuprofen or aspirin at night for your vascular system so its not doing something bad to yourself. Ibuprofen is ok occasionally, yet should not be taken regularly--it can cause stomach upset over time. The asprin doctors recommend is in a low dose and should always be enteric safety coated. I take a 81mg (low dose) enteric safety coated low strength adult aspirin, Walmart brand Equate. Always check with the manufacturer, at any time the ingredients can change. I think Bayer is safe too, but you should call and find out. I alternate my meds for pain, I use Tylenol Arthritis, Aleve, Excedrin Extra Strength (only during the day, I can't sleep when I use this one), and Advil.

Some of you may be experiencing neuropathy pain, which in some celiac's, the nerves tend to repair in time after going gluten-free--some of us have too much damage by the time we go gluten-free.

Sometimes, after being ill for a very long time, it can take the body a long time to heal. Most of us were sick for years before going gluten-free and we really can't expect all that damage to be repaired in just a few months of gluten-free. Our bodies were being terribly abused and it takes time to get over abuse. Not only are our intestines recovering, but the whole body has to recover. When nerves are included, they take more time and nerves healing, also cause pain. I know it doesn't make sense, yet many say there is pain in recovery too. Then you throw in all of the probems of our enviroment, working while in pain, trying to live as normal a life as possible--is there any wonder we hurt?

One day at a time and remember the words to this song:

Song: I Hope You Dance Lyrics

I hope you never lose your sense of wonder

You get your fill to eat

But always keep that hunger

May you never take one single breath for granted

God forbid love ever leave you empty handed

I hope you still feel small

When you stand by the ocean

Whenever one door closes, I hope one more opens

Promise me you'll give faith a fighting chance

And when you get the choice to sit it out or dance

I hope you dance

I hope you dance

I hope you never fear those mountains in the distance

Never settle for the path of least resistance

Living might mean taking chances

But they're worth taking

Lovin' might be a mistake

But it's worth making

Don't let some hell bent heart

Leave you bitter

When you come close to selling out

Reconsider

Give the heavens above

More than just a passing glance

And when you get the choice to sit it out or dance

I hope you dance

(Time is a real and constant motion always)

I hope you dance

(Rolling us along)

I hope you dance

(Tell me who)

I hope you dance

(Wants to look back on their youth and wonder)

(Where those years have gone)

I hope you still feel small

When you stand by the ocean

Whenever one door closes, I hope one more opens

Promise me you'll give faith a fighting chance

And when you get the choice to sit it out or dance

Dance

I hope you dance

I hope you dance

(Time is a real and constant motion always)

I hope you dance

(Rolling us along)

I hope you dance

(Tell me who)

(Wants to look back on their youth and wonder)

I hope you dance

(Where those years have gone)

(Tell me who)

I hope you dance

(Wants to look back on their youth and wonder)

(Where those years have gone)

Slackermommy Rookie

I too suffered a lot of body achiness, as well as hand tingling. I have been gluten free for 5 months, and it improved SO much.

Recently my arms and hands have started to get so sore again.

Deb, I loved your post. I never thought about healing, and how that might hurt. And, I am doing so much more than I did before, and my body is not used to it. It's been 4 and a half years since this all started, I guess it will take awhile to be as good as it will get.

Thanks!


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      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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