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Could This Be Celiac?


floridanative

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floridanative Community Regular

My exercise teacher told me last night about her friend who is 45 and is NYC this week for a second opinion about why her bones are so brittle. She has about four pins in her body from various breaks, all from doing normal activities as far as I can tell. The doctors in Atlanta have not been much help and one of them 'thinks' she could have bone cancer but isn't sure of that. Can anyone tell me if someone with Celiac could have such problems? I have a mild case of osteopenia at 43, due to my Celiac so I figured it's worth asking. This woman has been looking for answers for a while now. Thanks if anyone has any insight on this matter.


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Jestgar Rising Star

It seems pretty likely. More likely than bone cancer anyway. If you aren't absorbing nutrients properly, you aren't remodeling your bones properly.

Fiddle-Faddle Community Regular

I lost a dear frined to multiple myeloma, which caused multiple bone breaks. She was 82, so for several years, they just assumed that it was osteoporosis. It wasn't. Here is a link: Open Original Shared Link.

Obviously, I hope it's celiac instead.

AZKat Newbie
My exercise teacher told me last night about her friend who is 45 and is NYC this week for a second opinion about why her bones are so brittle. She has about four pins in her body from various breaks, all from doing normal activities as far as I can tell. The doctors in Atlanta have not been much help and one of them 'thinks' she could have bone cancer but isn't sure of that. Can anyone tell me if someone with Celiac could have such problems? I have a mild case of osteopenia at 43, due to my Celiac so I figured it's worth asking. This woman has been looking for answers for a while now. Thanks if anyone has any insight on this matter.

My husband was diagnosed with advanced osteoporosis at the age of 45. He had elevated parathyroid hormone as well. The reason we found out was that he broke his ankle just walking on the sidewalk in front of our house. No trip, fall, stumble, nothing. We knew there hadn't been enough trauma to break a normal bone, but it took several months to convince the doctor to order a bone scan. We had to offer to pay for it ourselves before she took us seriously and ordered it. When the results came in she was absolutely stunned. He had given up wheat in general before this happened because it didn't agree with him, so any tests from endocrinologists would not have picked up celiac. After 5 years of searching for the answer, we finally found out his vitamin D was low recently (he had started eating wheat again) and we started reading about celiac. Enterolab results confirm moderate malabsorption and gluten intolerance. After being put on high doses of prescription Vit D his parathyroid hormone came back to normal as well. His blood test still came back negative for celiac. We are now both gluten/casein free.

Nancym Enthusiast

Probably vit. D deficiency is one of the major causes. We get so little sun on our bodies these days.

Here's an interesting lecture from a doctor about vit. D: Open Original Shared Link

floridanative Community Regular

Thanks for the replies and info. I think it's worth this woman getting tested for Celiac if she has not been. I met her briefly and don't know how to contact her but my instructor will make sure and tell her that it's important she at least rule Celiac out. I have a feeling that no doc has thought of this but maybe they will in NYC. She is either just back from there or coming back this weekend.

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      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
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