Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Celiac?

floridanative

By floridanative
in Related Issues & Disorders

Recommended Posts

floridanative Community Regular
floridanative
Posted

My exercise teacher told me last night about her friend who is 45 and is NYC this week for a second opinion about why her bones are so brittle. She has about four pins in her body from various breaks, all from doing normal activities as far as I can tell. The doctors in Atlanta have not been much help and one of them 'thinks' she could have bone cancer but isn't sure of that. Can anyone tell me if someone with Celiac could have such problems? I have a mild case of osteopenia at 43, due to my Celiac so I figured it's worth asking. This woman has been looking for answers for a while now. Thanks if anyone has any insight on this matter.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

It seems pretty likely. More likely than bone cancer anyway. If you aren't absorbing nutrients properly, you aren't remodeling your bones properly.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I lost a dear frined to multiple myeloma, which caused multiple bone breaks. She was 82, so for several years, they just assumed that it was osteoporosis. It wasn't. Here is a link: Open Original Shared Link.

Obviously, I hope it's celiac instead.

AZKat Newbie
AZKat
Posted
My exercise teacher told me last night about her friend who is 45 and is NYC this week for a second opinion about why her bones are so brittle. She has about four pins in her body from various breaks, all from doing normal activities as far as I can tell. The doctors in Atlanta have not been much help and one of them 'thinks' she could have bone cancer but isn't sure of that. Can anyone tell me if someone with Celiac could have such problems? I have a mild case of osteopenia at 43, due to my Celiac so I figured it's worth asking. This woman has been looking for answers for a while now. Thanks if anyone has any insight on this matter.

My husband was diagnosed with advanced osteoporosis at the age of 45. He had elevated parathyroid hormone as well. The reason we found out was that he broke his ankle just walking on the sidewalk in front of our house. No trip, fall, stumble, nothing. We knew there hadn't been enough trauma to break a normal bone, but it took several months to convince the doctor to order a bone scan. We had to offer to pay for it ourselves before she took us seriously and ordered it. When the results came in she was absolutely stunned. He had given up wheat in general before this happened because it didn't agree with him, so any tests from endocrinologists would not have picked up celiac. After 5 years of searching for the answer, we finally found out his vitamin D was low recently (he had started eating wheat again) and we started reading about celiac. Enterolab results confirm moderate malabsorption and gluten intolerance. After being put on high doses of prescription Vit D his parathyroid hormone came back to normal as well. His blood test still came back negative for celiac. We are now both gluten/casein free.

Nancym Enthusiast
Nancym
Posted

Probably vit. D deficiency is one of the major causes. We get so little sun on our bodies these days.

Here's an interesting lecture from a doctor about vit. D: Open Original Shared Link

floridanative Community Regular
floridanative
Posted
  • Author

Thanks for the replies and info. I think it's worth this woman getting tested for Celiac if she has not been. I met her briefly and don't know how to contact her but my instructor will make sure and tell her that it's important she at least rule Celiac out. I have a feeling that no doc has thought of this but maybe they will in NYC. She is either just back from there or coming back this weekend.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,745
    • Most Online (within 30 mins)
      7,748
    Barbfh
    Newest Member
    Barbfh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.