Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Poll: Were You Or Your Children Breast-fed?


Mtndog

Were you breast fed?  

84 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

prinsessa Contributor

I was bf for about 2 years. My mom stopped because she was pregnant with my brother.

DD was bf for 2 months.

DS is over 3 years old and still bfs once every week or so. I thought he was weaned because he didn't ask to bf for weeks, but this past week he started asking again. He has a couple of bottles of formula when he was a baby, but he didn't like it (he didn't even want my milk if it was in a bottle).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2boysmama Apprentice

I was breastfed until about six months (I think). I breastfed my first son for a year and didn't learn of his gluten sensitivity until about six months ago (he's 3 now). I'm currently breastfeeding our almost-seven month old son, and plan to continue until at least a year - maybe 18 months.

confused Community Regular

I wasnt breastfeed as a kid. I did try with my first son, my milk didnt come in, with my second son was was born 6 weeks early, i tried for about 2 weeks, i even pumped and nothing came in, he became very jaundice, so i had to bottle feed, my first daughter, my milk never came and in and i tried again with my last daughter and again my milk never came in.

I am really thinking i have had wheat intolerance/celiac for a very long time

paula

MrsYoung84 Newbie

I voted yes: 1-2 years.

Rosario was breastfed until she was 13 months.

I only stopped because she was having problems with her weight gain and the peds [and I] thought it was because she wasn't eating enough table food and relying on being nursed even if she didn't eat her meals.

I wonder now, even though she hasn't been diagnosed yet if she was getting gluten through my milk and that was causing problems. I guess I'll wait until the tests come back... :rolleyes:

dlp252 Apprentice

I finally voted, lol. No I was not breast fed at all. My mom started me immediately on formula and when that gave me eczema, switched me to soy formula.

  • 2 weeks later...
amber Explorer
We've been talking in another thread about breast feeding and celiac and many of us were wondering how many people with celiac were breast-fed and for how long. Here's a link to that topic:Open Original Shared Link

I breast fed my daughter for 18 months and she was diagnosed with celiac six months after I stopped feeding her.

Kyalesyin Apprentice

This poll is interesting, given that my wife and I are planning to have children in a few years time. She was born severely premature, and so wasn't breast fed, because by the time she was de-tanked her mother's milk had all but dried up. She was always a sickly child- athsmatic tendencies, psoriasis, eczema, poor muslce tone, all of that. Cleared up the second we went gluten-free.

We've talked to her mother, who has never really had any of the celiac symptoms and although she tried going gluten-free nothing much changed, and we're wondering if my wife was simply born so premature that her gut wasn't strong enough to cope, since there seems to be very little in the way of genetic indicator.

I hope that made sense.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor
This poll is interesting, given that my wife and I are planning to have children in a few years time. She was born severely premature, and so wasn't breast fed, because by the time she was de-tanked her mother's milk had all but dried up. She was always a sickly child- athsmatic tendencies, psoriasis, eczema, poor muslce tone, all of that. Cleared up the second we went gluten-free.

We've talked to her mother, who has never really had any of the celiac symptoms and although she tried going gluten-free nothing much changed, and we're wondering if my wife was simply born so premature that her gut wasn't strong enough to cope, since there seems to be very little in the way of genetic indicator.

I hope that made sense.

My understanding is that celiac is genetic, so perhaps she doesn't get the gene from her mother? Has your wife had genetic testing done? Otherwise, it seems that her trigger to activate celiac was when she was a baby...not surprising for a preemie...especially considering all infants are born with immature digestive tracts. Breastmilk, especially colostrum, is an important part of developing healthy intestinal flora.

Michelle

Kyalesyin Apprentice
My understanding is that celiac is genetic, so perhaps she doesn't get the gene from her mother? Has your wife had genetic testing done? Otherwise, it seems that her trigger to activate celiac was when she was a baby...not surprising for a preemie...especially considering all infants are born with immature digestive tracts. Breastmilk, especially colostrum, is an important part of developing healthy intestinal flora.

Michelle

We haven't had genetic testing. We fought for three months just to get her a blood test done when a friend of mine who is still a med student said 'I know what these symptoms look like...' as it is, the health service has refused point blank to do any testing at all. According to our last doctor, you can't check for food intelorences with a blood test. She's a university student see, so the doctors just ask 'what have you taken, how much did you have to drink and who have you slept with?' and go deaf after that. In the end, we paid out for a private lab to do blood tests, but the health service doesn't recognise them as 'official enough.'

As it is, we went gluten free and haven't looked back, but even so.

We didn't even think of her father in this, simply because he's healthy as a horse. Nothing at all we could associate with celiacs. Her mother has always been a little sickly though, and osteoperosis runs in the family, but going gluten free didn't change much, if anything for her.

Fiddle-Faddle Community Regular
My understanding is that celiac is genetic, so perhaps she doesn't get the gene from her mother? Has your wife had genetic testing done? Otherwise, it seems that her trigger to activate celiac was when she was a baby...not surprising for a preemie...especially considering all infants are born with immature digestive tracts. Breastmilk, especially colostrum, is an important part of developing healthy intestinal flora.

Michelle

All true; however, I am now convinced that, while there is definitely a genetic component to celiac, especially when it appears in an infant, gluten intolerance combined with continued gluten ingestion DOES lead to celiac (if you define celiac as changes to the villi).

And as an adult, you can be as "healthy as a horse" one day, and suddenly develop an autoimmune condition the next--look how many of us this has happened to!

Michi8 Contributor
All true; however, I am now convinced that, while there is definitely a genetic component to celiac, especially when it appears in an infant, gluten intolerance combined with continued gluten ingestion DOES lead to celiac (if you define celiac as changes to the villi).

And as an adult, you can be as "healthy as a horse" one day, and suddenly develop an autoimmune condition the next--look how many of us this has happened to!

One certainly won't develop celiac if they never ingest gluten. That's the same with allergies...you cannot become allergic to something you aren't exposed to.

I don't know about autoimmune conditions coming on suddenly, though. I think it's a gradual process that isn't noticed until symptoms are impossible to ignore or brush off as "normal."

Michelle

marlykarly Rookie

I was not bf.. and have celiac

However My two celiac boys were both bf.. and one of them for over 2 years..

my shortest bf child.(2mo). does not have celiac

So i blow the stats

sarah ruth Newbie

I and both my kids were breastfed over two years. :rolleyes: ..wish I had cut out wheat before my pregnancies and nursing because my inability to digest things certainly triggered reactions in my babies. I know breastfeeding is best, and support it 100%, but it's not a panacea for all whoes. My husband was the only child not breastfed of his siblings and is the healthiest by far (mind you, fed raw milk fresh from their cow!). It's interesting to read how babies are fed, and am curious how this relates to "averages".

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    2. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.