Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Question For Those Of You With Dairy/lactose Intolerance


WakeupNurse

Recommended Posts

WakeupNurse Newbie

I am still in the beginning stages of finding out if I am celiac or not. However, my question is about dairy. I have always known that I am lactose intolerant but have been able to eat some things without "apparent" consequences. If I'm going to eat pure milk products or processed cheeses then I take Lactaid and I'm usually ok. For those of you with dairy intolerances, do you find that taking Lactaid prevents your symptoms or do you have to avoid all dairy all together? I never really thought that some of my other symptoms could be related to the dairy I was ingesting that just weren't causing the very noticable reactions. Any opinions would be appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

My first thought is that you probably won't know what reaction is what until you have the celiac question sorted out.

An intolerance to milk protein, casein, can give similar symptoms as celiac, so once you are gluten free it's easier to see if that's the case. The way to test it is to see how you react to dairy products that have little to none lactose, like hard cheese. I'd think that if you eat hard cheese and take a couple Lactaids and still get a reaction, that you need to avoid dairy all together. But if you only react to stuff with lactose in it then you'll probably be fine with moderate amounts of dairy accompanied by Lactaid. BUT if you are still eating gluten, you won't know for sure what you are reacting to!

Also, if you have celiac, you can be temporarily lactose intolerant, in which case it might change once you've gluten free long enough for your intestines to heal.

Pauliina

kabowman Explorer

I am lactose and casein intollerant so I cannot have any dairy products. My youngest son is only lactose intolerant - we did a food test/challenge and the lactose pills helped him, his other problems we have not been able to fully identify because he still eats many lactose containing foods away from home.

tummytroubles Newbie

When I first took dairy out of my diet, I could still eat a little of it with lactase pills and be okay for the most part. I would only do this if I had to eat out for any reason. Instead of dairy, I used soy cheese which has casein in it. I was okay with that at first. However, when I started eliminating other foods that caused me problems, I found that my system was more sensitive and that I couldn't eat any dairy or casein even if I took lactase pills. I think it is because my body can now tell me when any little amount of problem food is injested since it is not having to deal with all of the major intolerances like gluten. My body probably was so busy dealing with the big problems related to gluten, etc. that it didn't have the energy to worry about the "smaller" intolerances.

Juliebove Rising Star

For years I thought I was just lactose intolerant. That's what the Dr. told me. I stopped drinking milk and felt better. I thought I could handle a little milk cooked in something. Thought I could eat cheese. Then at age 46 I had an allergy test done and found out I was allergic to milk and 2 other foods. I can not have any dairy at all now. Not even a speck. Seems when I was eating it all the time, I didn't realize how sick it was making me. Only when I totally stopped it did I feel better. Now I can't handle any at all.

cajun celiac Rookie

I have always known I was a little lactose intolerant even before the Celiac disgnosis. My doc says it is possible that intolerances differ. Taking Lactaid has never helped me. If I have milk on an empty stomach I suffer, for instance having a bowl of cereal for breakfast. But cheese, milk, etc. with meals throughout the day doesn't bother me.

Here is something strange, since going gluten free my lactose intolerance has gotten worse. My doc said it's only coincidence.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,874
    • Most Online (within 30 mins)
      7,748

    Kelly Bates
    Newest Member
    Kelly Bates
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac.  What did your doctor recommend? What about your Vitamin D?  It helps regulate the immune system.  
    • ehb
      @knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily 
    • Alibu
      I just had my endoscopy the other day and the doctor took 12 samples because he said if we're going to find something we're going to find it today LOL. But when he got down there, he said everything looked good. So I have it in my head again that it's going to be negative because everyone I've heard of who had a positive biopsy had their endoscopies where the doctor was like yep, I can see the damage. My tissues all look great apparently. So if they come back negative, I'm not sure where to go from here. Could it still be a non-celiac gluten sensitivity even with my blood work? I thought NCGS didn't show up on blood tests. Is it possible that the biopsy still comes back positive even if everything looked healthy on endoscope? I had it done at a big hospital in the state, so I would think they'd have the kind of equipment where they'd be able to see it well. I even have pictures in my report and they don't seem to have the damage that others have seen.
    • trents
      That's just it. When they are doing an EGD, even with biopsy, if they aren't thinking about celiac disease they may miss it. They should take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and easily missed if sampling isn't through. And patch damage may explain lack of dramatic symptoms. Let me assure you that we frequently have posters on this forum who were silent celiacs for years and were diagnosed incidentally with celiac disease when their docs were checking for other things. They developed other medical problems such as anemia or vitamin and mineral deficiencies, neurological deficits, Hashimodo's thyroid, osteoporois, etc. - non GI symptoms - but their docs recognized those problems as often connected to celiac disease and had them checked for celiac disease, both blood antibody testing and biopsy, and found damage. A couple of years ago the Mayo Clinic did a large study involving over 300 people. They started with those officially diagnosed with celiac disease and also tested their first degree relatives. They found that almost 50% of  the first degree relatives tested positive for celiac disease and many or most were totally caught by surprise because they were largely asymptomatic. Their diagnosis was confirmed by biopsy. I really don't have anything more to say. You have some decisions to make.
    • knitty kitty
      Blood tests are affected by what you've had to eat in the previous day or two and any vitamin supplements you've taken in the past month or two.   If you have been taking vitamins before the time of the blood test, the vitamins supplements could mask a deficiency.  So get the tests before supplementing, or allow eight to twelve weeks for the supplements to wear off.    The thing with blood tests is that they measure what is in the blood, not what is stored inside organs and tissues where vitamins are actually utilized, and may miss subclinical deficiencies.  In times of shortages, the brain can order cells to release their stored vitamins into the blood stream in order to keep important organs like the brain and heart functioning.   Overall, getting blood tests for deficiencies is a good idea if it's available to you.  Ask for an Erythrocyte Transketolace test for Thiamine deficiency.  If you're deficient in any of the B vitamins, take a B Complex with all the B's in it.  The eight B vitamins work with one another like an orchestra.  Supplementing just one can throw the others off.  
×
×
  • Create New...