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Don't Think That Its Dandruff Anymore....

Canadiangirl

By Canadiangirl
in Dermatitis Herpetiformis

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Canadiangirl Apprentice
Canadiangirl
Posted

Thoughts!?!

I have had this patch of scalp for about 6 months that wont go away. I have tried all diff. shampoos, non-gluten, dandruff etc. I am starting to think it may be have something to do with celiac.

Its a specific patch on my scalp near the front of my head/hairline that peels no matter what I do. Sometimes itchy, but mostly just flakes in big chunks. Its gross! And it wont go away:(

-canadian girl

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LisaJ Apprentice
LisaJ
Posted

I had the same problem for about a year and tried every over the counter product there was - nothing helped at all. Finally went to the doctor and got a topical steroid for it. Worked wonders - I wish I would've gone to the doctor sooner!

lovegrov Collaborator
lovegrov
Posted

Sounds like psoriasis.

richard

lonewolf Collaborator
lonewolf
Posted
Sounds like psoriasis.

Richard beat me to it. I have psoriasis and it's just like this in my scalp. Unfortunately, it hasn't gone away by going gluten-free (or egg-free, dairy-free or soy-free). Cortisone cream should be helpful and you could also ask to try some Dovonex - it's a prescription Vitamin D cream.

stennis07 Newbie
stennis07
Posted

Yea... I wasn't convinced it was dandriff either. So I went to the derm and he was like..."well...uh...psoriasis"......OK. WELL... the stuff he's prescribed me hasn't been working. And it's RIGHT on my hairline--quite embarassing. ---Itchy, dry, flaky, red little bumbs.--- Grr.

I'm getting tested next week for celiac...so I'm thinkin this might be DH. The doctors havn't said ANYTHING about it...just that I may have celiac...(which I prolly DO have (my blood tests were high positive...but my scans were negative)>>>>soooo YA!! Tube-down-the-throat-time! :angry:

Oh well...I'm thankful that I have found doctors that are willing to do their job and figure out whats wrong with me>> it's been about 3/4 of a year....vs. some people where it may take years--*my prayers are with them*

ROM. 5:3-5

Generic Apprentice
Generic
Posted

I know that as DH heals it leaves a purple scar behind. Allot of people with celiac do suffer from psoriasis, and it tends to get better after going gluten free. Some people suffer from it regardless, if they are gluten-free or not. It can also be triggered by food allergies. My daughter's friend gets it when she eats pork or corn.

-Laurie

lovegrov Collaborator
lovegrov
Posted

I would go ahead and get tested for DH, but believe me psoriasis is completely unpredictable. The stuff I got got for my scalp has done little good, while the psoriasis on other parts has reacted in different ways. Some has disappeared completely, some has gotten better but is not gone, and some hasn't improved at all.

BTW, I didn't have psoriasis at all until after going gluten-free. You just never know.

richard

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Canadiangirl Apprentice
Canadiangirl
Posted
  • Author

this is all great feedback thank you! i will see my doctor about it....

canadian girl :)

debmidge Rising Star
debmidge
Posted

husband had patches on hairline which looked like psoriasis (forgive spelling) and in eyebrows and on middle of chest and after going gluten-free they are gone. For years we thought it was "psoriasis."

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Have Tru Joy Sweets Choco Chews been discontinued??

      By MauraBue · Posted

      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By knitty kitty · Posted

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
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